GP is ringing her tomorrow morning....letter just says he needs to discuss some test results with her. Bless her she says she is starting to get breathless again, I hope it isnt the fluid building up again. Mind you chances are it is I suppose.

Jacci

Hi

Have just caught up with your thread (internet access has been up and down).  Wish you and your Mum all the very best for her next appointment/discussion with the doc. and hope she can have a peaceful Christmas and be kept pain free.  (My hubby has cancer of the lung membranes  and I am aware of the breathlessness /pain problems that your Mum will be experiencing).  Do hope she can give her doc permission to discuss things with you which may make it easier for you to help her through any discussions that take place.  I usually go with my hubby for his hospital appointments (he knows only too well what is going on as he wanted to know right from the beginning(but does not find it easy to talk about from a very emotional point of view - diagnosis was nearly two years ago now and he has palliative care involving pain relief/regularly check ups)  as he prefers not to discuss things more than is necessary.  The only thing I would say is to take a notepad/pen both with the questions you/your Mum may have and also to jot down anything the doc may say so that you can refer to it afterwards (I find it helpful as very often its hard to take it all in at the time).  The forum is a very supportive place and its a good place to offload anytime you need to share your thoughts/emotions.

Take care.  Jules54

Me again, just spoken to one of the lung cancer nurses and as I thought bronchoscopy no 1 was inconclusive, no 2 which will happen tomorrow will hopefully give conclusive results. Mums appt on 8/1 has been cancelled. The letter regarding appt on 14/1 was an error and she will probably have an appt now on 15/1 so although its all delays again perhaps we are getting there now.

Take care all.

Jacci xx

Thanks for update Jacci and glad appointment situations have been clarified so you now know what is happening during the coming weeks.My  hubby's  next scheduled consultant appointment is during last week in Jan providing he feels able to cope until then.  If that goes ok then we are due to have a long weekend away (flooding permitting!) with friends in Bournemouth.Keeping everything crossed we can enjoy what is usually a great social weekend.

Take care and hope Mum more comfortable when you visit next. Jules xx

Hi Jules, wishing you a lovely weekend away when you go with no flooding!! Well its all change again, no bronchoscopy tomorrow, instead she is going to be sent to St Georges hospital in Tooting ( when they have a bed) for a test done under general anaesthetic. As I said we dont know when that will be yet.....there just doesnt seem to be any sense of urgency which I find peculiar to say the least. Would that be because of her age? I really dont know...she seemed more comfy tonight but said she was still in agony, she has had morphine today and was a bit high with it.....I found her quite exhausting tbh she didnt stop talking for a nano second but it was lovely to see her so much better than she was at the weekend.

Take care,

Jacci xx

Just had a voicemail from Mum, she is going into St Georges for test today and will hopefully be back in the original hospital tonight.

Jacci x

Hi Jacci

Glad that the test is going ahead and do hope for all of you that this will give you some clue as to what is going on and lead to more appropriate treatment. Its certainly no easy task coping with work, family, travelling on top of the exhaustion that the worrying can cause.  Hope its not too long before she returned to her original hospital/ward and that she can be kept comfortable. Somehow if the pain is under control it seems somewhat easier to relax about things.

  You had the reverse today of what I have just experienced with my Mum with regards to 'chatter' (currently in a care home as unable to look after herself).  After the initial hello and did you bring an umbrella she clammed up and it was all one way traffic from then on. I was told after 40mins that I could leave (felt like I was a child again which is probably how she sees me still!!).

Take care of yourself.Jules xx

Hi jacci, I hope your ok will be keeping my fingers crossed for the test results xx

Hi Jules and Hope, would you believe test was cancelled yesterday but will be done today, I can only assume there has been no urgency because of Mums age and likely prognosis. Couldnt see her last night as she rang me too late for me to get to hospital....this one is about 3 hours away but will get there tonight. I slept very well last night though and feel much more like me today because of it. Still not a happy Jacci but a bit better IYKWIM.I am feeling very angry with life today but I suppose that is normal.

Take care,

Jacci x

Hi Jacci

I would be annoyed too if myMum was being messed around.  Apart from anything else you expect things to happen when  you are told and plan arrangements around that info!  Its not as if visiting is just round the corner for you. Hopefully she will be sorted out today (do wonder if sometimes they just cannot get the transportation between hospitals arranged but its no excuse when Mum'sis expecting to be looked after quite rightly so).

Pleased that you managed to catch up on much needed sleep and you are so right that it makes a difference in how you can cope. Will keep fingers crossed that the next news you get will be more promising.  Take care. Jules xx

Well Mum had the test done on Wednesday so results will be about 10/14 days and she has now been transferred back to her local hospital. She is in so much pain and keeps being sick and bless her had an enema today too..she told me tonight she would rather die now than be in this pain..honestly and I dont mean this to sound selfish or heartless, if the hospital rang me now to say she had had a fatal heart attack I would feel relief for my poor Mum. This is tearing her apart..I didnt think people had to be in pain these days...she has been like this now for well over a week, its cruel. I cant believe all this time has gone on and we still dont know what we are looking at, although we do have a fairly good idea....anyway I will stop rambling now and try to go to sleep.

Night all,take care,

jacci xx

Thinking and praying for you all x

Thinking and praying for you all x