Thanks so much Sunshine...I too had chondrosarcoma but it was in my wrist..Im fine now, hope you are too.

Take care,

Jacci x

Your welcome jacci, mine was primary chondrosarcoma

In my thigh ive had half my thigh bone taken

Away. You are the first person I've met when

Has had it. How are you now? Xxx

Mine was as well...Conxultant was very surprised as he has never met anyone with it in their distal ulna, it was a grade 1 so I was very lucky..I had it removed and a bone graft put in, I had it done in feb 2012 and yep Im fine, next check up in Feb, how are you?

Jacci x

Me I had half my thigh bone taken away with 11cm tumour

They replaced it with wires 20cm plus plate and 9

Pins . At the moment I can't walk and is going to

Be a long recovery I've been told. I have check ups every

Two months at moment until all healed then every

3 months. Where do u go for ur check ups?

I go to oswestry bone cancer tumour unit.

It's so nice to speak with someone who has been

Though what u have. ( I mean it in good way ) although

Wish it wasnt about cancer. This disease is very evil

And is like a roller coaster ride. I'm so glad you have recovered

And thank you for talking to me about it.

Hugs

Bless you,its not been easy for you has it Hun. Im fine cant put my weight on it but other thasn that have full mobility. I broke my wrist trying to open a window at work and it was found...turned out  when they looked at my xray I had been suffering stress fractures for prob years but I didnt know. I was fortunate I get private healthcare through my work so had it done privately. I still had to travel from Sussex to Herts to have it done, as you know there are not many Consultants that deal with it.

My man is quite confident it shouldnt come back, he has told me it wont spread and it wont kill me so I have to believe him. Hate the check ups because you cant help but worry then. I would rather mine came back though than to see my Mum suffering like she is...It would only be another op for me.You are right though its nice to speak to someone else as its so rare..about 80/90 people are diagnosed each year in UK with chondro I believe.

You take care and I hope your recovery goes really well, talk to me whenever you like Hun.

jacci xxx

Thanks Sunshine and I really hope all goes well for you too.

Jacci x

Hi Jules,

Sounds like you had a lovely time, you and your hubby deserved to be spoiled. It's all over so quickly though. My Christmas was all about making memories as well! although muy Mum wqas feeling too ill for Christmas dinnershe did enjoy present opening and lots of Christmas tv. My first stab at cooking Christmas dinner for myself and my dad wwent very well so I'm feeling a little pleased with myself !

Wishing you and your hubby all the best for the new year.

Helen xx

Hello Jacci,

I'm sorry to hear that your Mum is in hospital. She will be well looked after though. Make sure you are looking after yourself and that you get yourself properly better before you go rushing around! This journey is a rollercoaster and I remember how daunting it is being at the start. If it's any comfort I can promise that there are good days as well as bad one and small things you and your Mum do will be 100 times more special.

Take Care and feel free to moan anytime you want :-)

Helen xx

Thanks Hope, feel much better today, the only positive I can take from all this is that Mum and I had a bit of a strained relationship. TBH she often didnt want me to visit and I could never understand why. This rotten thing has already made us much much closer, and I do have

some lovely memories from Xmas.

Take care.

Jacci x