Mother about to be diagnosed with Lung Cancer

Hello,

My mother is 82, gave up smoking 29 years ago and has had a bronchoscopy for suspected lung cancer. She had over 2 l fluid on her lung which has been drained and a ct scan has shown a 5.1cm lesion that has spread to 2 lymph nodes and because of this and the fluid (pleural effusion)  they are classing it as stage 4.

Once results are in there will be another mdt meeting and she is going to see Consultant (with me) on Jan 8th,it would be sooner but obviously Xmas and New Year are slowing things up. Now my mum didnt understand the terminology in her discharge note and she is in denial and tbh Im not prepared to burst her bubble.

I presume her only course of treament will be palliative care...I have had bone cancer mself so unfortunately have a bit of  an idea of his evil disease alhough I was very lucky and am in remission.

I will be her sole carer as my brother died 9 years ago and I want to be as aware of the situation and of things that will happen to her as possible.When we go for her Consultants meeting does anyone know how they will advise her that it is incurable...will they give her a full prognosis and possibly a time scale? I want to be as geared up as possible for her so I can be as helpful to her as I possibly can.I would love to think they are wrong because I adore my mum and although she is 82 Im not ready to lose her and never thought she would get lung cancer because she had stopped smoking so long ago.

The lung cancer nurses are being wonderful and calling her most days, the card they gave her says chest nurses but looking up the hospital I saw that they are lung cancer nurses so that sort of dashed any bit of hope I had.

Sorry to ramble on but thanks so much for reading..consultant thinks its T4N2M1A.

Thanks again,

Jacci

Parents
  • GP is ringing her tomorrow morning....letter just says he needs to discuss some test results with her. Bless her she says she is starting to get breathless again, I hope it isnt the fluid building up again. Mind you chances are it is I suppose.

    Jacci

  • Hi

    Have just caught up with your thread (internet access has been up and down).  Wish you and your Mum all the very best for her next appointment/discussion with the doc. and hope she can have a peaceful Christmas and be kept pain free.  (My hubby has cancer of the lung membranes  and I am aware of the breathlessness /pain problems that your Mum will be experiencing).  Do hope she can give her doc permission to discuss things with you which may make it easier for you to help her through any discussions that take place.  I usually go with my hubby for his hospital appointments (he knows only too well what is going on as he wanted to know right from the beginning(but does not find it easy to talk about from a very emotional point of view - diagnosis was nearly two years ago now and he has palliative care involving pain relief/regularly check ups)  as he prefers not to discuss things more than is necessary.  The only thing I would say is to take a notepad/pen both with the questions you/your Mum may have and also to jot down anything the doc may say so that you can refer to it afterwards (I find it helpful as very often its hard to take it all in at the time).  The forum is a very supportive place and its a good place to offload anytime you need to share your thoughts/emotions.

    Take care.  Jules54

  • Thanks so much Jules for your reply, fortunately the GP was about a urine test that the hospital should have sent to lab for testing...but they forgot to send it.Im sorry to hear about your hubby and I hope you had a peaceful Christmas too.

    Mum deffo had the best Xmas ever, my son, fiancee and our little grandaughter aged 3 came for dinner and it was fab and we thoroughly spoilt Mum. She is having shoulder pain and has lost a fair bit of weight now, she looks shorter as well somehow.I have stopped smoking today and strangely enough Im the same age as she was when she stopped.I recently found out that my father who I hadnt seen since I was 3 died a few years ago from lung cancer so I obviously havent got a choice regarding smoking.

    Well appointment is 8th Jan, the lung cancer nurse is lovely and rings Mum most days to see how she is. I will be on here when we get the full diagnosis but Im dreading that day. I totally agree with the notepad and pen idea, when I was going through my own journey I had to get my Hubby to write things down as my head was all over the place.

    Take care everyone and I really hope 2014 is as kind as it can be to us all.

    Jacci xx

  • Hi there, I'm new to this site but just noticed your post about your mum. My my passed away on Boxing day 2012. She had small cell lung cancer which had spread to her liver and kidneys. She went through chemo and felt great for a while but unfortunate the chemo had affected her liver. The cancer never grew in her lung. My mum didn't want to know timescales - I think she would've given up. You mum's nurses sound really good, it's something my mum didn't want as she was still in denial. I'm  glad you managed to give her a good Christmas. I know how it feel to dread appointments as my dad was diagnosed with parotid gland cancer in June 2013 and then with prostate cancer in August 2013. I think the waiting between appointments is worse. I hope you and your mum can have some nice quality time together. Wendy xx

  • Hi Jules,

    Just wanted to say I hpe you and your hubby had a peaceful and pleasant Christmas and you enjoyed not cooking

    Much Love

    Helen xx

  • Thank you Wendy and Helen so much for your replies...this cancer is evil isnt it. All we can do is be there isnt it but if Im honest I am absolutely dreading Jan 8th. Take care both of you and if you ever need to chat Im here....wish to God we didnt have to be but we can support one another Im sure.

    Thanks again,

    Jacci xx

Reply
  • Thank you Wendy and Helen so much for your replies...this cancer is evil isnt it. All we can do is be there isnt it but if Im honest I am absolutely dreading Jan 8th. Take care both of you and if you ever need to chat Im here....wish to God we didnt have to be but we can support one another Im sure.

    Thanks again,

    Jacci xx

Children
  • To be honest, I didn't have any experience of cancer until last year. My mum had breast cancer 7 years ago but had the lump removed and 6 weeks of radiotherapy so never thought much about it. Every test, scan and appointment I would pray for good news even though I knew one day it wouldn't be. I really understand how much you will be dreading the 8th but from what I've seen so far on this site, there are so many supportive people here so you are never alone. I just don't understand why cures can't be found for all cancers and get rid of it once and for all. Take care and remember one of the most important things is to take care of yourself so you are strong enough for your mum. Wendy xx

  • Bless you Wendy, I will look after myself as much as I can...stopped the smoking so that is a major bonus. Obviously eating rubbish at the mo but next week Im going to make sure im eating healthily etc.I was very lucky when I had bone  cancer, just had tumour removed and have follow up xrays every six months. I would far rather mine came back as it would just be another op than watch my mum suffer but life is what it is isnt it.

    Take care Wendy and this site is a total godsend.

    Jacci xx

  • I know what you feel my brother was aso suffering from Lung Cancer and it makes me weak to see him sufferring fro series of chemotherapy. He is now admitted at Basavatarakam Indo American Cancer Hospital & Research Institute in India. I don't know what happen to him he is not even smoking but he acquire Lung Cancer. I am really hoping for his fast recovery. Really Cancer is a Traitor illness!

  • Hello Monica, yes cancer is evil and random, it just seems to strike wherever it wants. Im so sorry to hear about your brother, please come and have a chat on here as I have found it really helps.this situation we are in is far from easy.

    Well Mum is so so much better! She looks normal, is acting normal, the chesty cough has gone and she cannot wait to come home! Honestly to look at her now you wouldnt know she was ill!! The meds obviously affected her big time. I just hope that she can stay at this stage for some time, she is so positive now as well, bless her she is a very strong woman which is why when she was so weak last week it was such a worry..I think she will be home tomorrow or Thursday and I have decided after a chat with hubby I will stay one night in the week and one night at the weekend and obviously play it by ear.

    I am still in my bed.....Booking these few days off was one of my better ideas!!

    Well take care everyone and thanks again so much for your support.

    Jacci xxx

  • Hi  Jacci

    Glad you are able to manage that much needed lie-in/rest.  It must help enormously to have seen your Mum in better spirits and do hope she can maintain this and get home this week.  If nothing else she will probably be far happier in her own bed.  Also sounds like you have a good plan for your visiting time and am sure she will really appreciate it.  Its all a case of taking things as they come and coping the best we can given the circumstances and the forum helps us all along the road we are travelling.  Sending kind thoughts and hugs for a peaceful week.  Jules xx

  • Well Mum is hopefully going home on Thursday, I really hope so. She had a bit of pain yesterday, they gave her a small dose of oxynorm and it did work, hopefully the small dose wont give her the awful side effects.She is now her normal self mentally and is talking very matter of fact about the cancer, she had a couple of friends in yesterday and they asked her how she was and she just said I had fluid on my lung, then it collapsed and Drs say I have cancer.

    She is hoping for a miracle  which is fine as it keeps her going, she is a very strong individual and wont give up without a fight bless her.

    I have a very dear old friend coming round today for lunch which will be fab and then off to Mum tonight. It is much easier dealing with this when I dont have to go to work I must admit, this break has done me the world of good.

    Well take care all,

    Jacci xx

  • Hi Jacci

    Good to read your update and to hear that your Mum may soon be home.  She sounds as though she is regaining her strength (mentally and physically) and hopefully her medications can keep her comfortable as this makes life a little easier to deal with.

    Hope you have a lovely lunch with your friend and the break definitely helps regain your own cope-ability (think I made up this word).  Wishing you and the family all the best both now and for when  Mum returns home.  Virtual hugs and peaceful thoughts sent your way.  Jules xx

  • Hi jacci

    I'm sorry I've not kept up with whats been going on

    With you and your mum.

    It's really good news that's she might be home Thursday

    I will have my fingers and toes crossed all goes well

    And the medication she is on now keeps your mum

    Comfortable as possible, much love to you, your mum,

    And family xxxx

  • Hi jacci

    Was thinking about you, and thought I'd check

    To see how things are . How is your mum doing?

    How are you coping jacci? I hoe your mum made

    It home yesterday and everything is in place for

    Carers to come in xx takecare Hun

  • Hello Jacci, have been thinking of you and wondering how you and your Mum are doing?  Hope x