Enzalutamide (Xtandi) experiences

Hi 
Ive just joined the group as my husband was diagnosed In sept and due to start enzolutamide tomorrow !!  He has decided to not read about the side effects unlike me , who is reading everything I can find.  I'm terrified for him. He's never had a days illness in he's life and is now coping with stage 4 prostate. He started the hormone tablets then the injection which no one told him would be a slow release implant In he's stomach.   It's all happened very quickly for us and neither of us know what to expect. Any comments or advise will be gratefully received. 
Thanks 

x

Parents
  • Hi koncerned.

    I started on enzalutamide nearly four months ago,and apart of hot flushes, I'm having trouble with My BP its reacting with some other meds I'm on but my PSA is dropping nicely .

    I was diagnosed Feb 2016 prostate cancer, gone to lymph nodes spine ribs pelvis and a lung, PSA was 1580 stage 4 T3b N1 M1b .

    I started off on hormone therapy injections every three months then chemotherapy , what ever I have just as Jenn says im living with my uninvited guest.

    Just carrying on keeping positive and fighting, living my life as normal as possible especially in lockdown .

    Cancer can affect everyone around them now just the one with cancer so look after yourself as well take care.

    Best wishes.

    Billy

    P.s if I can help in any way please ask remember im not medically trained just a cancer survivor.

     

     

     

  • Hi Billy

    How lovely of you to message, Thank you. 
    what an interesting and accurate name to give it  'uninvited guest'.  
    I really appreciate you taking the time to send us this message.  
    So far, only day 2 on the Enzolutamide for my husband Steve,  he says he feels fine physically. It's the mental part he's finding difficult. He says he is now 'Living with cancer' !  
    I hope your BP and other meds sort their self out real soon 

    thanks again 

    xxx

Reply
  • Hi Billy

    How lovely of you to message, Thank you. 
    what an interesting and accurate name to give it  'uninvited guest'.  
    I really appreciate you taking the time to send us this message.  
    So far, only day 2 on the Enzolutamide for my husband Steve,  he says he feels fine physically. It's the mental part he's finding difficult. He says he is now 'Living with cancer' !  
    I hope your BP and other meds sort their self out real soon 

    thanks again 

    xxx

Children
  • There are quite a few people living with cancer on the forum,we just get on with life,and call it the New normal, .

    Just living one day at a time having treatment when neaded .

    I usto be working for two years after diagnosis in a metal working shop carrying steel plates and welding,till My darling wife,was diagnosed with Parkinson's and Alzheimer's I'm now her official carer,so still plenty of work to do.

    Keeping busy is best and positive thinking and actions.

    Billy