Enzalutamide (Xtandi) experiences

Hi 
Ive just joined the group as my husband was diagnosed In sept and due to start enzolutamide tomorrow !!  He has decided to not read about the side effects unlike me , who is reading everything I can find.  I'm terrified for him. He's never had a days illness in he's life and is now coping with stage 4 prostate. He started the hormone tablets then the injection which no one told him would be a slow release implant In he's stomach.   It's all happened very quickly for us and neither of us know what to expect. Any comments or advise will be gratefully received. 
Thanks 

x

Parents
  • Hello Koncerned

    I'm sorry to hear about your husband's recent diagnosis. It understandable that you're feeling overwhelmed by things at the moment. I'm sure you've had a whirlwind of appointments and a lot of information to take on board. 

    I think that it's important to remember that whilst a drug manufacturer is legally obligated to list all possible side effects, not everyone who takes that drug will experience every side effect. 

    What is important is that your husband talks to his Consultant and the team looking after him about how he is feeling whilst taking the medication. It may be that they are able to adjust things to better suit him if he does struggle or to offer an alternative or other support with managing things. 

    I'd also recommend you giving our team of nurses a call to talk things through. I'm sure they will be able to answer some of your questions and offer some support and reassurance. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    I'm also going to tag in one of our lovely members [@Billygoatt]‍ who has been living with what he calls his uninvited guest for a number of years now (Billy also has prostate cancer that has spread). I'm sure that he will pop by to say hello when he gets chance and share his experiences with you. 

    I hope this helps. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

  • Hi Jenn

    Thank you so much for your reply and advise, I will definitely look into contacting the team of nurses x

     

    Thank you x

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