Cancer and Addisons

Hi all I've been on forum for quite a few years now.

Haven't noticed anyone with both.unless I've missed it .

But thought I'd let people know what's going on with me lately ,

Beginning of the year my PSA (cancer count) rose up quite fast and quite high ,so oncologist put me on New meds, nearly three months ago since then My blood pressure is going mad mainly low so oncologist and Addisons specialist told me to increase my fludrcortizone, for my heart,from 1 1/2 to 2tablets a day, about two weeks later,no improvement so doctor and oncologist tell me to increase to 3 tablets day a week later phone call from Dr stop extra tablet my sodium levels have dropped dangerous levels so i carry on with low BP , spoke to Addisons specialist this morning explained everything everything he told me I should never have increased dose to 3and those tablets would not decrease my sodium levels,its more than likely that My new cancer meds are making My Addisons meds metabolize to fast in my body so they don't last long enough to do there job properly,at last something is making sense.

Now hes arranging a all day blood test at hospital so I have to Go early have tablets with blood test either side by about an hour, morning, lunch and evening,to see if meds are going out of My body to quickly.

Then at least I should know one way or the other than hopefully someone will figure out what to do..

Sorry if I'm ranting a lot but three months of being told one thing then another im getting rather fed up,fed up is rather mild to what I actually think, but thought id keep it clean,.

Hope everyone is keeping safe,keeping positive and keeping fighting.

Billy

  • Not sure about injections im afraid. Had some years ago, doctor made things worse, so tried cbd haven't looked back, hope your knees improve quickly, you can go dancing again (disco)

    Love Billy xxxx 

  • Hiya,

    My daughter uses cbd but it didn't do anything for me.  My friend round the corner is terminal now and he uses the real thing. His neurologist prescribed the true cannabis for him, months ago, and it's the only thing keeping him going.  Alongside his wicked sense of humour, that is.

    I'm hoping this experience doesn't mean the injections are going to stop working.  My doc says the next step is new knees and I've heard such horror stories from friends who have gone down that route that I really don't want surgery.

    I'm going to take it easy today, had a weird night, and it's persisting down all morning, apparently, so I might just catch up with some reading!

    Have a good(ish) day!

    love

    Christine xx

  • Just a thought dear Christine, have you thought about knee brace, i had to use now and again, after crawling about since i was 15 on concrete or steel plates, don't suppose you tried cbd for very long as i found it needs time to work and after more time i don't need it so often. 

    Hope you don't kneed op although I've friends had it and as good new and very happy. 

    Remember keep positive. 

    Love Billy xxxx 

  • Hi again!,

    I do have knee braces and I use them when the injections start to wear off.  They are very good.  My knees are feeling ok this morning, touch wood, but I'm still going to take it easy as I have a lot of shopping to do next week and I want to get it all done in one day, then its done!

    C x

  • Hi dear friends,  hate living on painkillers, brake them inhalf but still big, found go down easier with tomato juice as it thicker, only 1 shop in town sells it and it about furthest one i go to, luckily scooter run and footpaths cut journey in half as roads like an S. Marvellous money im saving with scooter compared to car when weather is ok, saving up for little summer house, mainly for Brenda be better than gazebo in colder weather..I've nearly emptied gazebo ready for winter just doing things slowly, still want rid of little red scooter if anyone interested it in gazebo just now. 

    Sorry going off at tangent. 

    I'll update later Brenda wants breakfast. 

    Love to all. 

    Billy xxxx 

  • Hi all  radiotherapy didn't happen, got there ready told ct scan and tattoo, RT next Friday definitely no on paperwork i have. 

    Anyway got face to face with oncologist Fri 11.50, RT 16.00,so phoned up about 4+hours doing nothing so phoned up oncologist asking if things can be moved, got called back by RT moved time nearer to noon so definitely worth trying. Anyway another week of painkillers. 

    Hope Al my friends are doing ok. 

    Love Billy xxxx 

  • Thank you for updating us billy!

     

    I hope everything goes smoothly. I'm sending you lots of love and warmth from tropical country here.

  • Morning all, yesterday had RT, hour later painkillers again, managed to sleep ok with painkillers managing ok this morning, normal things done. 

    Told in about a month chemotherapy, 6 sessions over 4 months then hopefully be back to normal for a while. 

    Hope all my friends are managing ok and getting ready to enjoy Xmas as much as possible and plenty of friends and family around. 

    Love Billy xxxx 

  • update  check RT side effects wearing off, still slightly tired in day  but alot better. Pain gone. 

    Brenda enjoying her new Christmas nighties and duvet cover, just started raining again after good morning frost. Always raining lately. Waiting for chemotherapy dates. 

    Love to all my friends Billy xxxx. 

  • Blood test tomorrow if i get Blood form waiting three weeks post in 2 hours and hoping. Chemotherapy on Monday IF i get Blood test form. 

    Iv arranged transport in case I'm not very well after treatment. and Brenda has someone coming in to check now and again..

    Billy