After 6 chemotherapy and 30 radiotherapy sessions which ended 4 weeks ago I seem to be in a worse state than ever. During treatment my mood was mostly up, I continued to eat well, although my eating amounts reduced and also were more wetter and slippery in texture. I lost weight, but not at an alarming rate.
The day after my radiotherapy ended my skin on my neck broke down and that started a woeful week of daily dressings and poor sleep. I ended in hospital with an infection - again not an experience to savour.
My new skin finally started to regenerate at the beginning of week 3 after treatment stopped. Common sense would presume everything else would also improve- but no.
i am struggling to eat at all. My taste buds range from nil to everything tastes horrid. I cannot generate any saliva, so dryness of mouth is a constant battle. My neck externally looks so much better, but the inside is still so sore. I know I need to eat, but simply struggle to finish even the smallest of meals. I have the protein shakes which my wife bolsters with creams and carnation- but even they are awful. My weight loss is approx 25kgs and growing.
i am at the lowest of ebbs and am struggling to see any light at the end on a tunnel. I have young kids and always try to put a brave face on it. But that facade is increasingly hard to maintain- I feel as though healing has forgotten about me.
