Hi All 

Looks like we are all in a state of anxiety together. I have emailed CRUK and NCUK been on various sites and the bottom line is self isolate as best as possible until after treatment or until the viruses have died out...that will be approx summer.

If possible keep interaction to a minimum including appointments. 

I'm now sleeping in the spare room as my hubby travels on trains alot and meetings. He's going to try to work from home where possible and I'll make him hand wash as soon as he comes in.

The reality is we are at the highest risk but even the flu or sepsis is high risk, irrelevant to covid-19...its pretty much the same issues either way.

I admit I've left a message to speak to chemo nurse and wether i can postpone treatment, but i know the answer really which is ya can't cancel cancer treatment. 

We'll get through it but its going to be as boring and frustrating as hell...I'm already going nuts without human interaction and work.

Lets keep our eyes on the finish line.

Take care all

Lorna x

I'm with you on the boredom, I'm really starting to struggle keeping myself busy during the day when friends are at work, and by evening I'm so tired I can't be bothered speaking on the phone. My partner and I don't live together although currently we are both staying either at his or at mine as I'm a bit scared to be on my own in case my temperature soars again at night and I need to go to hospital.

I wonder if there are any support groups that do webinars/Skype/FaceTime. I find this chat forum good but some face to face interaction would be good and there are lots of topics where we could share experiences, advice and concerns, or have a virtual (non milky) cuppa!  I'll do a bit of digging to see if I can find anything and see if CRUK or Macmillan can suggest anything..

I'm also going to see what yoga/breathing/mindfulness stuff there is online as I'm slowly becoming a couch potato and think if I get into a routine of some exercise that will help both my mental and physical wellbeing throughout this difficult time.

I'll let you know if I find anything helpful....

R x

Thats some great ideas Ruth. Stay in touch.

Lorns

Yes, maybe, I'm on FEC drugs 

Maybe not for me then.

I am on FEC drugs for breast cancer.

Flourouracil

Epirubicin

Cyclophosphamide

Such powerful drugs, the middle one is the hair loss.

Some FEC patients also receive Docetaxel from their 3rd chemo, but it hasnt been discussed for me yet.

Keep strong,

Silver

hello, I’m the same.. I had round 3 of docetax..hell last Friday I haven’t left the house in over a week as I’m just too scared. I think I’m driving my husband and kids nuts as I keep going on about wiping door handles and light switches ect. I had 4 EC chemos prior to docetaxol and I’ve got one more left before surgery.  Part of me hopes that they’ll say I don’t need to do the last one due to virus threat plus I’ve had suffered terribly with horrible bone and muscle pains. 

My poor husband has been sleeping in the spare room to try and keep any spreading of germs minimal. He’s now been told he can work from home, he was getting the train to London every day so one less thing to worry about. I’m spending more and more time in my bedroom isolating myself from my family it’s just horrible. Very scary times indeed.

keep safe everyone 

fishnchips x

I think we all feel exactly the same.  I was having work done to the house but delayed till summer now sfter my last cycle snd hopefully when all the bugs have died off.

I try to tell myself that covid19 is another virus and we are at the same risk as we would be with a flu epidemic.

It is scary but just keep posting for reassurance.

Lorna x

Hey Guys, my wife is currently going through chemo and has just finished her 3rd cycle. I'm so concerncered regarding the Coronavirus as we have a 6 and 4 year old in school. I feel like taking them out  of school until the summer holiday (as wife finish treatment in June) and self isolating for a few months. I'm really not sure what to do as there seems little advice for cancer patience going through treatment? Children sont seem to contract it but I'm not sure if they can spread it. 
This is such a pain! 
we can only be positive and wash hands constantly and wear gloves in public and keep away from crowded place. Stop touching my face. Keep away from all family and friends until they figure out what is going on!!

not sure what else to do

Hi huni

I feel for you. My husband is being such a strong guy but i know what he's thinking. He's working from home for 2 weeks, i finish end of may,  but can't for the full duration. My daughter works in the nhs so all told not great.

I think we just have to hVe trust in the government and nhs and be vigilant and isolate as much as we can. Your kids still need a life too.

I wish my hubby would join the chats but i think he feels he needs to show strength. Which he does but believe me your wife will know how you feel.

Take care and just keep chatting.

Lorna x