Struggling with chemo

I had my second cycle of chemo treatment last Monday and by Friday I went out for the day, thinking that this one was easier than the first. But this weekend I've felt rubbish. My oncologist gave me 3 extra days of steroids to help with the nausea and I had one night where I had terrible nightmares, unable to sleep and have felt rough and sick for two days. I phoned the nurses and they said don't take the last steroid tablets, so maybe it was just a bad reaction to them. The outcome is I've felt depressed all weekend, sorry for myself and wondering how I'm going to survive this! And then I feel guilty for my lovely man who is trying so hard to support this grumpy person. 
Looking in the mirror with a fuzz of hair and one breast doesn't help either! 
I realise that I am more lucky than lots of people on this site and that hopefully my prognosis will be good, it just gets to you sometimes, the anxious living in fear. 

With kindness,  

Silver 
 

  • Hi there, you replied to my first post a few weeks ago and were helpful. I'm about to start my chemo next week and to be honest I'm terrified. I feel just the same and haven't even started it yet! On the outside ya try to be funny and positive but on the inside its just criminal. Maybe we just all stick together on this....even if its to say FOR GOD SAKE when will this ever end? RLP has been great help to me ....another lady in our boat! Right now I'm just frustrated and frightened. I feel ungrateful but the surgery and even the promised hair loss is the better bit compared to what i know of the chemo mix I'll be on. I won't say chin up it'll be fine so just message if ya need a chat. Lorna

  • Morning ladies, it's tough isn't it, I had my 2nd cycle on Thursday last week, a new lower dose cocktail of chemo drugs as I had such bad reactions to cycle 1. I'm not having day 8 this cycle to see how I react. I'm on GCSF injections too this time to try and stop my white blood cells going back to zero. 
    Ive actually felt ok since Thursday (hope I'm not speaking too soon), the anti sickness meds are working, I've just been really tired and dealing with wearing my wig out for the first time which was actually ok although I felt really self conscious.

    My partner has been so supportive but I feel guilty that I'm stopping him doing all the nice things we used to do. We did take his elderly mum out for lunch on Saturday (and she didn't comment on my wig), although she has dementia and isn't aware what's been going on with me but usually has no filter, and we went for a short walk on the coast yesterday until the rain started then went for a coffee (mint tea for me), although I wore my turban cap as too windy to risk the wig!

    Hang in there girls, and let's hope this will all be worth it in the long run.

    Ruth x

  • Hi Lorna,

    I felt better after my first chemo as the second I knew what to expect. The nurses will give you medication for every side effect to manage it. My drugs are for breast cancer and I have 6 cycles followed by 3 weeks of radiotherapy. It seems endless but taking it one day at a time. 
    Lots of us out here to chat to! 
    Best wishes

    Silver x 

  • Hi Ruth

    I had my 2nd chemo on Monday, I too was unwell the 1st chemo and thinking this one was was better until this weekend. My oncologist gave me extra steroids to help with the nausea but I was literally having hallucinations in the night. . I was phoning the nurses to see if I could stop taking them the next day but the number was engaged all the time, I was only calling my own home number! Talk about chemo brain!

    Feeling a bit brighter today, so hope springs eternal !

    Best wishes 

    Silver 

  • Hi guys  well nothing to report other than off to my "chemo training" course at 3pm!!! Will let ya know how that goes. Will ask questions and find out when my first round is. Take care. Lorna

  • It's helpful the chemo course! 

  • Hi silver i have my second round on friday im dreading it as i felt rubbish for aweek after the 1st everything made me feel sick and too top it off i started to loose my hair yesterday.Dont get me wrong i have lots of support but honestly ive never felt so alone,i like to be positive in front of my family as i dont want to upset them but when im alone its a different story. It helps coming on here and reading how others are feeling and dealing with it .Hope your feeling better  soon x

  • Hi ladies, I thought I'd pop on to say that you are all doing amazing. It's really tough and feels like a hard slog but you will get through it as you are braver and stronger than you think you are. 
     

    I had 6 cycles of chemo for breast cancer over the summer, had a mastectomy with Diep reconstruction in October and then radiotherapy in January. It was hard, physically and mentally but I got through it. The worst bit was not knowing how I would react to the treatment. Be kind to yourself, rest when you need to, eat what you want when you want it.  Here if you ever want to chat or have any questions. 
     

    wl

  • Wow that's  one hell of a track record and so glad you got through it WL! Hi ladies too!

    I don't feel brave at all....more terrified child lol!

    Had my chemo training and it was ok, but shocked at the ease of infection not to mention what you can't eat and where from or how. Basically you left feeling slightly optimistic but wanting to self isolate for 4 months!

    I just hate creating stress on hubby, he's a star, but we've had to cancel 3 holidays over the entire period and he could really have done with one. 

    Anyways I'll see how i respond on the 19th. Timing off as its mother's day and my birthday on the 22nd. I'm ok with that its just the rest of the family.

    L xx

  • I will be so relieved when treatment is over. You must be so pleased it's over.  Did you have any long lasting side effects? I find my eyes have been affected, I have reading and varifocals and it feels like the script has changed. Will mention it to my doctor. 
    Silver