My husband was diagnosed with prostate cancer over 2 years ago following an operation for prostatitis with a gleason score of 3+4 and is on active surveillance which he was happy about. He has always had a very low PSA score both before and after the operation but over the last year it has increased from 0.48 to 0.56 over 3 months which is very low but is a significant increase for him. We know that PSA can increase for all sorts of reasons but are concerned that his consultant does not want to take any action until the PSA score reaches 3. The discussion was very rushed, abrupt and there was little or no appetite to answer our questions. There has been no explanation for this figure of 3 and my husband's visit to the GP following a further increase just resulted in a reiteration of the consultant's view.
We have had 2 close friends die of prostate cancer and want to be informed and involved in decisions but do not know how to find out more information or have a reasonable discussion with someone. We do not want to take up NHS time unecessarily but also know of people whose concerns about cancer were brushed off by NHS personnel and then died - the family of one gained a very large pay out from the NHS - the death was avoidable and there was negligence. So we do not want to be complacent either.
Any advice or information about research would be welcome.
