Herceptin and heart damage

I was diagnosed with breast cancer in March and completed four cycles of EC chemotherapy. The plan was to followed with four cycles of Herceptin,  Pertuzumab and Docetaxel. However the last cycle of Docetaxel was cancelled due to fatigue and shortness of breath. 

 

I've been told that this could just be due to the chemotherapy,  a low haemoglobin level or heart damage. I have an appointment next week for an echocardiogram prior to surgery of a wide local excision. 

 

The chemotherapy had been brutal and I've also got thrombophlebitis in my left arm which I can't use fully.  Now I'm possibly looking at heart damage too. 

 

Has anybody else had any heart issues while on Herceptin?  I'm supposed to be on Herceptin injections for a year. 

 

Will the thrombophlebitis get better? The Doctors don't seem to know and just say "maybe."

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  • Hi, I'm due my 7th herceptin tomorrow, I'm only having 9 in total as I'm on a trial. Throughout my heart has been well monitored and I had my 3rd heart scan 2 weeks ago  and am awaiting the results .

     

    I do know hp can affect the heart but my onco also said the heart can recover ....

     

    i do get palpitations but im still blaming this on the chemo which I finished in May.

    your mind will be put at rest once you've had your heart scan, our bodies have taken such a huge battering. Some days I'm amazed I can get out of bed! Lol....

    Hope everything is going well....x

  • Thank you for the reassurance. After everything that I've been through the thought of heart damage is really worrying me. How do you receive the Herceptin? Fingers crossed for you regarding the heart scan. I'm puffing away like a steam train every time that I move around and stairs are a challenge. I can't live like this permanently.
  • I get the herceptin by injection in the thigh. Yes, I struggle with stairs ( never used to) it can be very frustrating, especially when I can't keep up with my 88 year old mum in law, it has improved a little since finishing chemo but I do really need to pace myself....xxx

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