Stage 4 confirmed - back on chemo next week

Hi All,

Got the confirmation today that the breast cancer has metastasised to my right hand side so definitely stage 4 now.  Will be having Herceptin and Perjeta on Tuesday then chemo (Carboplatin) on Wednesday.  After that they will be delivered together every 3 weeks.  6 Cycles of chemo but Herceptin and Perjeta look to be for as long as I live.

They had been discussing chemo being permanent but they still think I would benefit a lot from having the bilateral salpingo-oopherectomy, so they will do 6 cycles, give my body a short rest and then see if I am well enough for the surgery.  Then it will likely be back on chemo but time will tell.  Oncologist is still seeking second opinions as it's still proving to be a complex case apparently.

Radiotherapy now off the cards for the foreseeable as they would be treating too large an area, I presume they want to keep radiotherapy as an option for when there is organ involvement.

Hoping not to get hit too badly with the side effects, don't think I could keep working if I get the diarrhoea, and want to keep working.

Am looking at signing up for Race for Life 10k (end of May).  Have never been a runner before, but if I can get some friends to do it with me I'll give it a go.

That's all for now, need to go cuddle my man and check he's alright.

LJxx

  • Hi there ..

    I will vertually run right there with you ...  anyone who can brake the treadmill ... can do anything ... 

    So when you run and feel so many running there right by your side ... you won't see them ... but it'll be us lot vertually there ... Chrissie xx

  • If I can get my man to read a book then I can read a book (which is good cause I buy short stories in Italian to practice my Italian and I haven't done much of late!) but if he insists on sitting with me and doesn't have a book to read then splitting the headphone socket to watch comedy together sounds like the best way to pass the time.  Anything that distracts him as he worries.  A good book is more relaxing though!!!!

    LJx

  • Weirdly I feel the folk on here alongside me at every stage of treatment so I will add you all to the run.

    I really don't know at all if I'll manage it, I'm not convinced, but you can walk it so I will aim to run it but all is not lost if, on the day, I need to walk it.  I'll feel guilty, but hey ho!

    LJx

  • Sounds like you’ve got a good man there :)

    A combination of comedy, chat, books sounds good to while away the hours.

    take care x

  • Oh no! I have been having a tough time on chemo and today decided to look you up and read this...your one in a million, you really are.

    you were one of the First Ladies to come along and comfort me in December, and all this time your living your own nightmare.....

     

    i couldnt even even begin to think about a run...even next year! But by god you inspire me...I think your a complete star and deserve the very best of everything.....

     

    xxxxxxxxx

  • Hi Marlyn

    I have been thinking about you. So sorry you are having a bad time with chemo. Twin Two is an inspiration to us all but this disease just sucks. 

    Sending a hug.

    C x

  • Hi Marlyn, sorry to hear you are suffering from the chemo. I wish I was at your stage though. I have no mastectomy in sight until the little b****r shrinks and it doesn’t look like it is going anywhere!

  • Hi, I can't remember if we ever chatted back when my wife was diagnosed with stage 4 OC back in September, but I do recall reading a lot of your posts in those dark days and finding them an absolute inspiration. All that I can say is thank you, and wish you all the very very best for the future.  

  • I have only just caught up with you having been away from home.  You are so impressive and I would like to sponsor you in the Race for Life.  Go for it.  Annie

  • Hi all you on the dreaded chemo, or waiting ... isn't  it great to be able to all hold each other up ... your all amazing ... everyone of ya ... I was lucky enough to not need it up to now .. but like all of us, know it sits there on our shoulders just waiting to pop up again ... but got my boxing gloves in reaching distance , ready to put on again ... 

    Yes cancer sucks ... 

    Let's all keep kicking cancers *** ...

    Twin two ... hope your still boxing well ... thinking of you ... a big vertual hug to all Chrissie