Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  • Hi Brian. If you’ve time Amazon sell propolis it’s about £7 I find it helps. Yes ice cubes do plus avoid the triggers gif me it’s cheese  fermented  foods yoghurt apart  from Greek acidic stuff pickles vinegar snd too much sweet stuff. 
    the propilud  use eith cool boiled water abd rinse it’s pretty foul but ok. 
    Typically I usually get it as well on our Spanish  trios. Enjoy. 
    leg mr know if ur helps 

    moly’s change toothpaste fir a while to oranurse it’s gentler than duraphat ik tj use fir a few weeks I akazts gsve uf jn plus bioxtra mouthwash i grg toothpaste ftom Amazon mouthwash presc 

    h xx

  • Excuse typos in way to allotment hope you can decipher 

    h x

  • Hazel , no time for Amazon but I see Holland and Barrett sell bee health liquid propolis ? Is this the same ? Just gargle yup?? Thanks as usual 

  • Hi Brian it will be propolis is made by bees. So get some try their toothpaste as duraphat can irritate. Sorry was at allotment H xx

  • You can gargle and spit or even swallow as it helps immune system  H x

  • Hi Hazel hope you’re well your 5 years next week, well done you’re an inspiration to us all, just to let you know I finally got an appointment last week , everything good , he liked what he saw when I had camera down, I told him about my pains in neck he told me it’s the radiotherapy damaged the nerves , I’m 18 months in now and I have to say this week hasn’t been good my tongue burns and I’m struggling to find food to enjoy, my consultant told me it’s early days, so I have to be patient, I’d love to know anybody reading this who are at my stage how things are going 

    Chris x

  • Hi Chris. Oh bless you thank you for remembering my five year anniversary. Yep it’s next Thursday five years since the bell was rung . Welcome to the burning tongue club for me certain foods trigger and it tends to be fermented acidic and citric cheese, especially if it’s an aged cheese  some yoghurts can do it. I tell you something from Amazon called propolis  it’s about £9 and it’s an extract of the pollen and use it to sort of swill  around your mouth. . You will find that the burning till sensation comes and goes there’s no rhyme. No reason touchwood I’ve been looking for about the last six month but I always have it in in just in case.Bedt thjng you can do is keep a  food diary. Find you triggers. Plus come iff duraphat for a few weeks oranurse is high fluoride not as high as duraphat but in scheme if things a few weeks won’t matter. 
    the heck pains will be fibrosis I have a small amount it’s worse when I chop vegetable s so guess what I delegate that. A face roller can help they are only small and you can use on your neck. 
    thus lust might scare u but it show what we might get

    remember we don’t get everythjng but helps to kniw whst ti look out for. Remember thyroid needs checking annually as well as many get thyroid issues but nothjng tk worry about one tablet a day sorts that xx

    Will pop links on new post 

    thank you for kind words Hazel  we all get there in the end xx

  • Hi Chris 

    https://www.e-roj.org/journal/view.php?number=1453

    thus is the link. The face neck roller is also on Amazon ps think Amazon should pay me lol. I’ve a standing order for xyimelts and propolis with them. 
    inreally hooe it helps and once again thank you 5 years I still remember every day if treatment but oook how far I E come yiu will gett there Hazel x

  • Thank you Hazel for all your information it’s invaluable to myself and my other half,I’m now off to Amazon , good luck for your final appointment next Thursday 

  • Hi Chris no more appointments I had my last in July with the scope and ent. My dates worked out that late July fitted in with holidays etc. it’s just my head says 5 years on anniversary of ringing the bell. I will,see oncology dr Sen in January but that a social visit he promised me he woukd see me annually until he retires and that next year we tend to chat about football and holidays he sees me in his lunch hour so I don’t take up an appointment. 
    good luck with Amazon 

    The propolis isn’t pleasant few drops in Luke warm water then rinse and spit or swallow it’s good for up-immune system I probably go through 4 bottles a year so nit too bad Thu i they may have it on offer at minute. 
    H x