Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

Parents
  • A great day for your thread Ian, your great news  and now Mick improving, onwards folks!

  • Wow all,

    Just up from nap to see so many nice wishes.

    Thank you all again for your kind wishes and means a lot.
    Nice special day for me I guess and was my grandmothers birthday on the 5th so hopefully she has been looking down on me having a hand in this.
    Not sure if makes sense but not sure how I feel. I know I should celebrate but im probably still a bit numb by it all and being told cured after all this time.
    Anyways, told a few people who are obviously delighted but already had comments like thats great you will be off morphine now and you should now book a holiday. Whoa there !
    At the end of the day I'm still recovering , have fatigue and no great appetite yet, so need to dampen down others, including work,  immediate expectations for me to change and be well overnight.

    Again thank you all so much and I wish all who are still going through treatment/recovery the very best.
    I have met so many nice people on here and this has been a great thread to bring us all together for support and encourangement and long may it continue.
    I do intend to be around as would like to still help and be here if needed for others but I think its probably right that I dilute my weekly updates now that I have this news
    I will still contribute if anything crops up and will maybe do random general updates as will my blog.
    Maybe little focus on me today becasue of news, but now time to focus on others who are still going through treatment/recovery and needing all the help and support we can give.

    Onwards and Upwards to all
    ian

     

  • great advice as always thnks all, i have a few neck buffs, wear them out doors, quite like them! Am i right in saying that after a few months its actor 50 in treatment area, but rest of body ok?I went out to do lotto there, must be 25 degrees and felt sun on my arms, got me thinking! I cant avoid it here, i know im lucky but im trying to do the right things.Thanks.

  • OHi 

    I am using fsctor  50 on nd o mixed with a factor 30 false tan from consum so that neck blends in with rest  of body p. Still in Spain as you know cycling and walking every day .just protecting rest of body as usual with factor 50. Also havecseldction if scarfs neck buffs . I had 3 rd degre burn and burn dressings in fir 5 weeks touch wood neck ok. I have a red blotch which will never go as my oncologist said when I look in mirror will remind me of him it has a name telenguasia or something like that basically the blood vessels under skin that took full blast have widened and will remain like that. But have even exposted body in bikini I know hold the though Lol but sat under parasol on beach am living my life as oncologist told me to .

    oneards and uowards even eating a cream cracker  with cheese something 8 months ago wouldn’t have thought possible .

    h x

  • Hi Graeme,

    Try Scotland mate. We dont have that problem !

    We only see the sun like that on utube or TV programmes

    ian

  • They look good, thanks for the tip

  • Hi all

    little update and probably draw line under re updates and just leave to others to post on how you are all progressesing either here or on other threads, but as started thread come full circle and wanted to record for my blog as well.

    I have taken a little longer to recover than anticipated but i've been back to support team and on action plan. Been on this for 2 weeks now and cut long story short feel million times better and progressed really quickly in a short space of time. Ive probably just needed that discipline and structure to kick start again and trick body.
    I log what i eat but am back to eating what i like and am eating regular meals with ease and fully enjoying.
    Am totally off motphine and back on my normal codine, which I needed for back anyhoo pre preatment, so again another bonus.
    Sleep wise, havnt totally solved but Im sure thats just matter of time and with fuel getting in now and offf morphine that should help fatigue and sleep pattern.
    Was signed off work for next 3/4 weeks to fully concentrate on recovery and not have any stress/clutter and appointment with work occupational health to have a phased work plan when I go back.

    Seeing speech therapist Monday and Wellbing clinic next thursday for whole of support team then consultant early May.

    Long journey but starting to see much inroads finally and thank you all who have supported and helped.throughout.

    Hope I find you all well no matter where you are on your own journeys.

    Will update my blog and will post link here for last time on this thread.

    radiotherapythroat.home.blog

    Onwards and Upwards
    Ian

  • Hi Ian 

    well done long journey but we are all different ,keep in touch Buzz Lightyear from Roadrunner

     

    Hazel x

     

  • Best news today Ian, well done fella. I can now FULLY sympathise with yourself, Hazel ,Dave and others on SALIVA IMPACT. My rash meant antihistamines, which meant dehydradion, on already impacted saliva. I made eating a chore. Well, i have inadvertently lost 5 pounds. Now i know a good diet plan for future, 1400 calories and FOUR LITRES of water a day. But i need to get it back to normal and get a few pounds back on. This saliva thing is ROTTEN, good luck to anyone who suffers, im getting back to new normal now pills stopped.

  • Thanks Graeme saliva is still my main issue ,like I’ve said before until u haven’t any or have limited yiu have absolutely no idea on how vital a role is played by it .shecsays whilst vainly trying to eat a baguette with pate on it lol .weight wise I am holding now at 9 st 10 which is fine by me. 

    Have a good weekend everyine come on Oscar ( Dave) superman need your results to come through ! 

    Man U can cope with 1-0 just need a 2-0 win at nou camp

     

    h x

  • Thanks Graeme and also sounds like you are, in the main,on the mend.

    And yup, some of the side effcets are rotten and debiliating.

    I'm really pleased to hear you are getting back to your new normal now and long may it continue.
    Please keep us posted on progress and scans etc.

    Hope you also find the balance of where you want to be regarding your singing etc and that you are able to decide rather than have decided for you if you know what I mean,

    All the very best
    Ian
     

  • Thank youI  Ian, best wishes

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