A great day for your thread Ian, your great news  and now Mick improving, onwards folks!

Wow all,

Just up from nap to see so many nice wishes.

Thank you all again for your kind wishes and means a lot.
Nice special day for me I guess and was my grandmothers birthday on the 5th so hopefully she has been looking down on me having a hand in this.
Not sure if makes sense but not sure how I feel. I know I should celebrate but im probably still a bit numb by it all and being told cured after all this time.
Anyways, told a few people who are obviously delighted but already had comments like thats great you will be off morphine now and you should now book a holiday. Whoa there !
At the end of the day I'm still recovering , have fatigue and no great appetite yet, so need to dampen down others, including work,  immediate expectations for me to change and be well overnight.

Again thank you all so much and I wish all who are still going through treatment/recovery the very best.
I have met so many nice people on here and this has been a great thread to bring us all together for support and encourangement and long may it continue.
I do intend to be around as would like to still help and be here if needed for others but I think its probably right that I dilute my weekly updates now that I have this news
I will still contribute if anything crops up and will maybe do random general updates as will my blog.
Maybe little focus on me today becasue of news, but now time to focus on others who are still going through treatment/recovery and needing all the help and support we can give.

Onwards and Upwards to all
ian

Hi j4 

how strange I also have a latex and nickel allergy 

hazel

Hi J4

Speaking of silk scarves for neck I have a selection of soft neckerchief/neckwarmers for when I go out.
My neck wasnt too bad really but I still like to cover up when I go out.

Ive put a link onto site . One i have linked to are the best I have come across and nice soft silky feel and perfect fit as not too tight or too loose. 
Also reduced in sale so good bargain (middle one reduced to £8.78) but if you type in neckerchief then neckwarmeer you will see the full range if you want others, but I swear by La Sportiva dedalus tubes.
Under armour from amazon is another good one I bought that I would recommend.

www.alpinetrek.co.uk/.../

Ian

great advice as always thnks all, i have a few neck buffs, wear them out doors, quite like them! Am i right in saying that after a few months its actor 50 in treatment area, but rest of body ok?I went out to do lotto there, must be 25 degrees and felt sun on my arms, got me thinking! I cant avoid it here, i know im lucky but im trying to do the right things.Thanks.

OHi 

I am using fsctor  50 on nd o mixed with a factor 30 false tan from consum so that neck blends in with rest  of body p. Still in Spain as you know cycling and walking every day .just protecting rest of body as usual with factor 50. Also havecseldction if scarfs neck buffs . I had 3 rd degre burn and burn dressings in fir 5 weeks touch wood neck ok. I have a red blotch which will never go as my oncologist said when I look in mirror will remind me of him it has a name telenguasia or something like that basically the blood vessels under skin that took full blast have widened and will remain like that. But have even exposted body in bikini I know hold the though Lol but sat under parasol on beach am living my life as oncologist told me to .

oneards and uowards even eating a cream cracker  with cheese something 8 months ago wouldn’t have thought possible .

h x

Hi Graeme,

Try Scotland mate. We dont have that problem !

We only see the sun like that on utube or TV programmes

ian

They look good, thanks for the tip

Hi all

little update and probably draw line under re updates and just leave to others to post on how you are all progressesing either here or on other threads, but as started thread come full circle and wanted to record for my blog as well.

I have taken a little longer to recover than anticipated but i've been back to support team and on action plan. Been on this for 2 weeks now and cut long story short feel million times better and progressed really quickly in a short space of time. Ive probably just needed that discipline and structure to kick start again and trick body.
I log what i eat but am back to eating what i like and am eating regular meals with ease and fully enjoying.
Am totally off motphine and back on my normal codine, which I needed for back anyhoo pre preatment, so again another bonus.
Sleep wise, havnt totally solved but Im sure thats just matter of time and with fuel getting in now and offf morphine that should help fatigue and sleep pattern.
Was signed off work for next 3/4 weeks to fully concentrate on recovery and not have any stress/clutter and appointment with work occupational health to have a phased work plan when I go back.

Seeing speech therapist Monday and Wellbing clinic next thursday for whole of support team then consultant early May.

Long journey but starting to see much inroads finally and thank you all who have supported and helped.throughout.

Hope I find you all well no matter where you are on your own journeys.

Will update my blog and will post link here for last time on this thread.

radiotherapythroat.home.blog

Onwards and Upwards
Ian

Hi Ian 

well done long journey but we are all different ,keep in touch Buzz Lightyear from Roadrunner

Hazel x

Best news today Ian, well done fella. I can now FULLY sympathise with yourself, Hazel ,Dave and others on SALIVA IMPACT. My rash meant antihistamines, which meant dehydradion, on already impacted saliva. I made eating a chore. Well, i have inadvertently lost 5 pounds. Now i know a good diet plan for future, 1400 calories and FOUR LITRES of water a day. But i need to get it back to normal and get a few pounds back on. This saliva thing is ROTTEN, good luck to anyone who suffers, im getting back to new normal now pills stopped.

Thanks Graeme saliva is still my main issue ,like I’ve said before until u haven’t any or have limited yiu have absolutely no idea on how vital a role is played by it .shecsays whilst vainly trying to eat a baguette with pate on it lol .weight wise I am holding now at 9 st 10 which is fine by me. 

Have a good weekend everyine come on Oscar ( Dave) superman need your results to come through ! 

Man U can cope with 1-0 just need a 2-0 win at nou camp

h x

Thanks Graeme saliva is still my main issue ,like I’ve said before until u haven’t any or have limited yiu have absolutely no idea on how vital a role is played by it .shecsays whilst vainly trying to eat a baguette with pate on it lol .weight wise I am holding now at 9 st 10 which is fine by me. 

Have a good weekend everyine come on Oscar ( Dave) superman need your results to come through ! 

Man U can cope with 1-0 just need a 2-0 win at nou camp

h x

Nice one Ian sounds like you have turned the corner great to hear, 

TFS you are right about the saliva, its my one problem but it has a big impact on your life, I cant wait for it to return.

Thanks Hazel I had my PET scan last week and the results are next thursday, its on my mind a lot Im just trying to keep busy and be patient which isnt one of my strong points, a mate who I play football with has just had the all clear from Esophogus cancer, made my day yesterday when he told me. :)

Winning at the Nou Camp is a big ask Hazel but you never know.

Dave

Hi Dave you will be fine I csn ferl it in my bones. Please message on Thursday. Re football fingers n toes x but agree hard one. 

My saliva still not 100% have brief moments of thinking yep it’s bsck but then days of sticky glue in mouth unless you’ve had it like us it’s so hard to explain to anyone isn’t it. 

Obesrds n upwards. Off to pick daughter n grandson up at airport coming to us for a week so that will be goid 

take care love to Julie xx

Thanks Hazel Julie sends here regards x have a great time with your family :)