A great day for your thread Ian, your great news  and now Mick improving, onwards folks!

Wow all,

Just up from nap to see so many nice wishes.

Thank you all again for your kind wishes and means a lot.
Nice special day for me I guess and was my grandmothers birthday on the 5th so hopefully she has been looking down on me having a hand in this.
Not sure if makes sense but not sure how I feel. I know I should celebrate but im probably still a bit numb by it all and being told cured after all this time.
Anyways, told a few people who are obviously delighted but already had comments like thats great you will be off morphine now and you should now book a holiday. Whoa there !
At the end of the day I'm still recovering , have fatigue and no great appetite yet, so need to dampen down others, including work,  immediate expectations for me to change and be well overnight.

Again thank you all so much and I wish all who are still going through treatment/recovery the very best.
I have met so many nice people on here and this has been a great thread to bring us all together for support and encourangement and long may it continue.
I do intend to be around as would like to still help and be here if needed for others but I think its probably right that I dilute my weekly updates now that I have this news
I will still contribute if anything crops up and will maybe do random general updates as will my blog.
Maybe little focus on me today becasue of news, but now time to focus on others who are still going through treatment/recovery and needing all the help and support we can give.

Onwards and Upwards to all
ian

sounding good Graeme and pleased to hear such good positive progress, especially at week 2 post treatment.

onwards and upwards
ian

8 weeks post treatment for me now I don’t know where the time goes probably because Im busy all the time, no real change here I’m doing pretty well I played in the over 60s league matches yesterday and even scored a few, being a stone lighter has made me a bit quicker and a few of the lads have commented on it, still struggling with a dry mouth though.

TFS the first pint was a few weeks ago and Iv had a few since but I have definitely lost my taste for it and can take or leave it at the moment, still early days though. Well done you sound like you are coping well.

Dave

Thanks Dave, im keeping my fitness up, but a pint will be a few weeks away yet, just wait and see, when im ready im ready. Kinda thought your reply may be that Dave, i notice taste chages, subtle but there. So will wait a good bit yet. 

Hi everyone 

quick uodate just back from  first long bike ride 48 km furthest I’ve been since diagnosis last May feltbgood doing ut the Spanish sunshine deffo helps !!!!!

has a treat of fish cod  and chips sat outside .

no alcohol for me last drink was a gin n tonight 25 April last year m never a big drinker could goes months without one not sure if my mouth will cope with alcohol anyway.

Saliva still struggling drinking copious amounts of water help but come one partook gland re generate yourself it’s been 6 month now n thick saliva just ain't cool  ,I have to spit and it’s not ladylike can’t always get to tissue in time. 

Taste buds are ok just every now n then go off kilter.

enjoy your weekend and Ole Ole Ole giveback him the job Man U pull your finger out there’s no one else who is as passionate .

hazel x

Hi Dave and Julie

week 9 how’s it going ? Still good I hope. We are still in Spain have upadtes my blog www.radioactiveraz.wordpress.com with latest photos and write up,if yiu are bored and fancy a look. 

Saliva n dry mouth still there but had a few mins where mouthnfelt normal the other day. Shame about Sunday’s results no answe as to why but hope Saturday a good game. Scholes didn’t last long like Hiw he resigned  via text !

hope to hear from you soon

hazel x

Hi Hazel you seem to be doing really well covering plenty of miles and slowly regaining your saliva great news, people just wouldn’t understand how much we rely on saliva until it’s not there.No real change for me at post week 9 I think Iv got a slightly wetter mouth but it’s when I eat that I realise how little saliva I have, it’s early days though so no complaints.

Ole had to lose at some point but it could have gone our way if Lukaku hadn’t missed that easy early chance, we’ve got Barca in CL so as expected the hardest draw possible. Scholesy quitting didn’t surprise me that much I don’t think he’s right for management. 

Dave

Hi Dave 

thank you I am finding the more exercise I do the better I feel and the better I sleep.totally agree re saliva  yiu just take it for granted and trying to explain to anyone you see their eyes glaze over !

re. Champions  league was always going to be a tough draw so fingers x.

keep in touch and keep doing what you are doing superman

h x

Exercise and all that sun won’t be doing you any harm we are really jealous Hazel :cool:

Dont worry we’ll keep in touch. :)

H Dave deffo sun helps

h x

Hi Dave 

good luck for scan tomorrow you will be fine just part of the process. Hope your appetite had improved won’t mention football last night !

h x

Hi Dave 

good luck for scan tomorrow you will be fine just part of the process. Hope your appetite had improved won’t mention football last night !

h x

Hi Dave

rooting for you as well re scan and fingers crossed all good news.

ian

Thanks you two :) Im quite relaxed at the moment and looking forward to getting it over with, i`ll update when I can.

Dave  

So today I had my mask fitting, not so bad takes fifteen minutes to cool down on your face, as some people said it like having a hot towel put on your face, breathing OK but would have liked to breath via my mouth rather than nose. When it was cooled I had to go for a CT scan with it on, fully cooled it felt quite tight and I didn't like how it squashed my Adams apple, made it hard to swallow. But they did say it can be heated up in that area and just pushed out a tad. Staff were brilliant and talk to you the whole way through, CT scan only about fifteen minutes not like PET/CT that takes forever, you go in the scanner three times, last one with some **** they inject into your vein. I also got my dates, treatment starts 23 April day after Easter, I have three Saturday sessions because of the Bank Holidays that are coming up. All are around the 10.30-11.30 time slots with a couple at 12 noon, not bad as light nights will still give plenty of day time. Treatment finishes on Sat 1 June so pleased it didn't run over into seventh week. 

Now the one I really dread my PRG fitting on Friday...

Sorry Oscar, I dont know why it pops your name up as a response to...

Forgot to say got £50 parking fine, left car park at 10 55am trying to pay by parking app, it woulnt take my password so I had to change it, hospital wi fi so so slow and droping out, it was 11.24 by the time I got the payment made, ticket was processed at 11.16 have watched the car from 11.05. Hey ho, costly business paying parking at hospital, got my free pass though today for treatment phase.

Hi oh no take it with you in Friday as a cancer patient surely you shouldn’t have to pay it’s hardly a pleasure trip and you are talking minutes !

good luck Hazel

Problem is it isnt a hospital car park, it belongs to the swimming pool right next to hospital, it almost entirely used as hospital overflow car park. I will try writing to the council and see if they can void it but wont hold my breath...

Hi Cotswold boy,

I`ve just been catching up. You sound like your tolerating the mask well! Hopefully they will slacken it off at throat area.

It does worry a bit the stuff they put into our veins for scans etc!

Take your pass to office at hospital they will cancel the ticket,we were told to do that if we ever got one.

Hopefully your treatment weeks will pass quickly. Keep in touch with your progress best wishes x

PS just read its a council run car park. Yes def get in touch send a photocopy of your hospital pass to support your letter.

agree with Clara it’s worth a try 

hazel x

Hi folks , not posted in a while. I am six weeks out of 33 radio sessions, last update i was doing well, eating pretty normally. I still am, but it is only right that any negatives get shared so;

My set back the past two weeks has been due to skin reactions. After 5 weeks on an expensive cream my radiologist said 2 weeks post treatment, let's go to a more normal aquaeous moisturiser. I had a bad reaction early on in treatment, my skin must be very sensitive, always was with metal allergies etc. 

I live on an island that produces aloe vera, tons of it. So i got a top local cream, was amazing for 2 weeks. Than all Hell broke out, well actually my skin broke out! All treatment area came out in a rash. They gave me a cream patients get who have chemo reactions, only available in hospital. Great for 10 days, then nurse said try aloe again. Why did i let her?! 2  days this time, same result. My radiologist intervened again, back to the radio therapy cream. 24 hrs later, my wife said " you look like you have been pulled out of a fire". And this time a rash spread down my arms and chest. They had said any more reactions they would send me to dermatology. So i said "sod it", went to my GP thinking id get sent to local hospital dermatology. Buy no, she gave me a lotion, said come back Monday we will figure out a cream. So the lotion has killed the rash and skin though dry is clearing. 

Been Hellishly frustrating as i feel almost normal bar some dry mouth and hair loss. Hoping i get the right cream for my hyper allergic pain in the *** skin! Good luck all.