Yes I agree not having saliva is a small price to pay for the right outcome, amazing what saliva does for us, we taste with it, it protects teeth, helps us chew and aids digestion.

I don’t care who we get in the quarters Hazel I’m just enjoying the Ole revival.

Dave

Hi Dave agree on both points. Re saliva it’s so difficult to explain to anyone how you feel ,it the most  debilitating thing. I find talking to too many people hurts if that makes sense your mouth is such an integral thing it’s impossible  to describe to someone who isn’t going through it. 

But hey got at least 18 months before I know what I will end uo with so slowly slowly it is improving .

bring on Sunday and Arsenal gane

h 

Hi Guys,

Hope I find you all well and curious to see updates where you are all at and latest progress

Clara, Louisabel, Graeme, Laura, J4 and others....I hope all good.

ian

Hi Ian, and all ........week 2 post treatment today. Started to half my painkiller, so far ok but early days. Less mucus now, saliva at 70% but i was lucky not all glands in target area. I am eating better daily, trying tougher foods, managed a fair bit of take away pizza, that and bread do need max sauce/gravy/butter but taste is good. If i get through a week on this dose of drug will drop more, and see where i am. But happy for now, also moved from radiocare cream to aloe vera yesterday, odd itchy bit but feels so much better. Have a great weekend all........ps......Dave (Oscar)........first pint yet?

sounding good Graeme and pleased to hear such good positive progress, especially at week 2 post treatment.

onwards and upwards
ian

Thanks Dave, im keeping my fitness up, but a pint will be a few weeks away yet, just wait and see, when im ready im ready. Kinda thought your reply may be that Dave, i notice taste chages, subtle but there. So will wait a good bit yet. 

Hi everyone 

quick uodate just back from  first long bike ride 48 km furthest I’ve been since diagnosis last May feltbgood doing ut the Spanish sunshine deffo helps !!!!!

has a treat of fish cod  and chips sat outside .

no alcohol for me last drink was a gin n tonight 25 April last year m never a big drinker could goes months without one not sure if my mouth will cope with alcohol anyway.

Saliva still struggling drinking copious amounts of water help but come one partook gland re generate yourself it’s been 6 month now n thick saliva just ain't cool  ,I have to spit and it’s not ladylike can’t always get to tissue in time. 

Taste buds are ok just every now n then go off kilter.

enjoy your weekend and Ole Ole Ole giveback him the job Man U pull your finger out there’s no one else who is as passionate .

hazel x

Such brilliant news Ian I am so pleased for you absolutely wonderful!

Thank you Eiger...appreicate your kind comments

ian