Hi Laura,

Thank you and sorry Micks side effects ramped up. Although temporary it doesnt make it any easier at the time and wish him well and I hope you are coping and doing ok as well.

Hope Mick has a good week and keep us posted.

Ian

Hi Ian. Good luck for tomorrow,I am sure all will be absolutely fine,let us know when results  are in . I had a 10 day wait hopefully yours will be quicker 

hazel who is  getting ready for road trip ,taking 96 ensures with us in then car just in case. Lol bush tucker trials on the beach ! 

Sounds like you are a great time Hazel you cant beat a bit of winter sun, we even had 3 days here in Manchester this week where we could sit out in t- shirt and shorts it was about 18 degrees..factor 50 on the neck of course! back to grey and miserable now though.

Week 7 post treatment not much I can add Im doing fine apart from the saliva being non existent and eating is difficult unless washed down with tea or water and Im drinking lots of water, weight now stable at 13st.07  which is a stone lighter than before treatment but I hope to keep to this weight if I can.

Ian good luck with your scan results.

Dave

Hi Ian 

just dropped by to wish you loads of luck for next tuesday I know the waiting is horrible especially when you know everyone else knows except you. We expected Pauls results at his consultant appointment- we were travelling on the friday to Birmingham for Pauls stag do and the results were due on the next tuesday. Another guy who was having treatment for base if tongue ca at the sametime texted us tobsay he couldnt wait any longer so had spoken to our consultant and got the all ckear. Paul didnt want to spoil his stag do if it was bad news so wouldnt phone and find out. We had a great weekend but waiting for us when we got home on the sunday was a letter for admission for a neck dissection in a weeks time ! Not good - but was because we were getting married in 3 weeks and they wanted to make sure he had the surgery prior to that so the secretary was on the ball not knowing we hadnt had the results if the PET CT yet. Anyway he had the surgery and is cancer free so even if the scan is not what you want it to be - fingers crossed for you its all clear- it doesnt mean doom and gloom.

Wishing you so much luck and a positive outcome

Emma 

Hi Emma

Thank you so much for your kind wishes and understanding re results.
From the sound of yourself, Hazel and myself there does appear to be different processes regarding provision of results. I understand that they would not give bad results over the phone, nor would I want them, but probably would have been better had a few of the staff from various depts not saying I could get them but then couldnt and I just had a natural instinct to ask.

Anyways will see on Tues and am re assured by your post that even if there are further issues it does not mean that they are not solveable so I'm going to remain positive either way.
I will defo chap on your door if you dont mind if I do need further treatment for advice and tips but i'm hoping not to have to.

regards
Ian

Hi Dave

welcome  tomthe lets have drink with every mouthful of food club ,it does get better now I can take  a few mouthfuls before I need to drink . But it’snoiw the thick saliva club only way to describe  it is like snot Coming out if your mouth instead of your nose. Sorry guys to break that one to yiu hopefully none  if you will get this one !!! LOL

re weight I’ve been stable for quite a few weeks but probably onkybwating half of what I used to eat  didn’t I ever say I miss crisps   Lol yep I know I did but I do miss them  

h hoping for another good result for ole ole and the  boys 

hx

Fingers crossed for Tuesday, Ian. I'll be thinking of you and hoping it marks the end of your treatment.

My partner is just completing week 2 post treatment. It wasn't as bad as expected. Even before treatment had started both the consultant and dietician had said the 2nd week after would be the worst. We've actually got a trip to France/Disneyland booked exactly a month after treatment (planned and paid for ages ago) and they said it probably won't be possible for my partner to go. That's when I started googling and found this post. I'd say for my partner the worst week was week 4, that was due to chemo and not eating due to the vile taste of everything (he looked very poorly then, almost green!). It's so interesting to read how everyone differs. He's still very tired and is usually in bed by 8pm. But is pottering around now occasionally and now eating the same portion size as our girls for dinner, a 3rd tin of soup for lunch and the occasional crumpet or pancake - his step-mother is delivering pancakes to the house almost every day.... Not good for my waistline! Plus the Ensures via the tube. Even though i really want him to come I'm trying not to have my hopes up high for him to go on the trip, if he can't I'll take the girls on my own. They're competing in a competition and will be part of the Disney pre-parade, so it's something we committed to ages ago. 

Hope everyone has a good weekend. Doesn't look like we'll be basking in the sun!! Oh dear, 2am, I better get to sleep. The birds have just started chirping!

Hi Louisabel,

Thanks for wishes re Tues and just a wait and see game just now

Side efrects for hubby seem pretty normal at this stage and when I started to find it tough. I certainly woudnt be able for a trip - even now week14 post treatment we wouldnt plan a trip away as id probably been asleep most time and not able to go out for a social mean.

That said, we are are different as many say on here 

Eating sounds good and positive and panckes mmmmmm

Hope your hubby has a good forthcoming week

ian

Hi Ian

quick message for tomorrow .Good luck sure all will be fine,sending positive vibes to you and your family ,look forward to hearing from you 

h x

Hi hazel

many thanks and fingers crossed.

hope you stil enjoying the sun and your biking.

ian

FHi Ian

pleasant 20 km yesterday on bike then reading in the sun went out last night to celebrate belatedly Johns 60th didn’t go out until 1800 back in for 2215 but shows recovery is slow as meal everyone enjoyed it apart from me toomdifficukt 

dim sum too stick rice no chance  duck was nice but omg a tiny but if chilli ended up in my mouth and omg that was it deffo still babybsteps somlast night was hard but I also managed to drive hime has john has had 2 pints so I had to .

today been ok gentle stroll to beach 24 degrees neck coping well keeping factor 50 on ut but am exposing  it this time to the sun in a morning and  tea time slowly slowly. .

sleep well my friend  presume early appointment in morning

h x

Hi Ian

keeping everything crossed for you tomorrow - sending positive vibes your way and loads of best wishes

Emma xxxx

Hi Ian

keeping everything crossed for you tomorrow - sending positive vibes your way and loads of best wishes

Emma xxxx