Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  • Hi Laura, i am also a week after last rads, and it has been my worst week, as you say, well warned on here, but not much by docs!

  • Hi Dave

    welcome  tomthe lets have drink with every mouthful of food club ,it does get better now I can take  a few mouthfuls before I need to drink . But it’snoiw the thick saliva club only way to describe  it is like snot Coming out if your mouth instead of your nose. Sorry guys to break that one to yiu hopefully none  if you will get this one !!! LOL

    re weight I’ve been stable for quite a few weeks but probably onkybwating half of what I used to eat  didn’t I ever say I miss crisps   Lol yep I know I did but I do miss them  

     

    h hoping for another good result for ole ole and the  boys 

    hx

     

     

  • Hi Laura 

    deffo babybsteps it’s still my mantra 6 month today since last Radiotherapy session . My mouth is still sore but at least am here to tell the tale . Just make sure Mixk keeps his calories intake up either orally or by peg as it’s vutal these next week weeks to aid recovery. 

    Onward and upward 

     

    h xx

  • Hang in Graeme and Laura&Mick,

    recovery period as we all know can be a bit of a challenge but as Hazel says, baby steps is the only way to go.
    I'm afraid there is no elevator option for recovery phase and we have to take the stairs !

    Hope you all have a good forthcoming week.

    Onwards and Upwards
    Ian

     

  • Good luck Ian and thank you. I've been told if my results are not good I will have radiotherapy of the mouth so it will be helpful to compare reactions. I have no idea what it will be like or the after effects. 

  • Hi Eiger and thank you for wishes.
    Please keep us posted on how your results go and if you do have to have radiotherpy, then you will find plenty of support and advice on this thread as well as being able to follow some of our journeys that may help you.

    Regards
    Ian

  • Hi Eiger

    just hang in  there waitbuntil results then read up about radiotherapy etc I had tonsil cancer now 6 month post radiotherapy after 35 radiotherapy sessions and 2 chemo.if I need treatment lots of us on here who can tell you our experiences 

     

    hazel 

  • Fingers crossed for Tuesday, Ian. I'll be thinking of you and hoping it marks the end of your treatment.

    My partner is just completing week 2 post treatment. It wasn't as bad as expected. Even before treatment had started both the consultant and dietician had said the 2nd week after would be the worst. We've actually got a trip to France/Disneyland booked exactly a month after treatment (planned and paid for ages ago) and they said it probably won't be possible for my partner to go. That's when I started googling and found this post. I'd say for my partner the worst week was week 4, that was due to chemo and not eating due to the vile taste of everything (he looked very poorly then, almost green!). It's so interesting to read how everyone differs. He's still very tired and is usually in bed by 8pm. But is pottering around now occasionally and now eating the same portion size as our girls for dinner, a 3rd tin of soup for lunch and the occasional crumpet or pancake - his step-mother is delivering pancakes to the house almost every day.... Not good for my waistline! Plus the Ensures via the tube. Even though i really want him to come I'm trying not to have my hopes up high for him to go on the trip, if he can't I'll take the girls on my own. They're competing in a competition and will be part of the Disney pre-parade, so it's something we committed to ages ago. 

    Hope everyone has a good weekend. Doesn't look like we'll be basking in the sun!! Oh dear, 2am, I better get to sleep. The birds have just started chirping!

  • Hi Louisabel,

    Thanks for wishes re Tues and just a wait and see game just now

    Side efrects for hubby seem pretty normal at this stage and when I started to find it tough. I certainly woudnt be able for a trip - even now week14 post treatment we wouldnt plan a trip away as id probably been asleep most time and not able to go out for a social mean.

    That said, we are are different as many say on here 

    Eating sounds good and positive and panckes mmmmmm

    Hope your hubby has a good forthcoming week

    ian

  • Hi Ian

    quick message for tomorrow .Good luck sure all will be fine,sending positive vibes to you and your family ,look forward to hearing from you 

     

    h x