Hi Laura,

Thank you and sorry Micks side effects ramped up. Although temporary it doesnt make it any easier at the time and wish him well and I hope you are coping and doing ok as well.

Hope Mick has a good week and keep us posted.

Ian

Hi Ian. Good luck for tomorrow,I am sure all will be absolutely fine,let us know when results  are in . I had a 10 day wait hopefully yours will be quicker 

hazel who is  getting ready for road trip ,taking 96 ensures with us in then car just in case. Lol bush tucker trials on the beach ! 

Hello again Ian,

It has pehaps given you an insight as to why I feel so strongly about pain management during/after treatment.

I avoided mentioning husband as I feel this thread is more about fighting this beast of a disease and finding the best roads to recovery.

I have`nt come across anyone still having diagnostic tests right up to day before surgery. I am having lymphoscintigraphy, as ent consultant said to "try" to find the sentinal nodes. This involves 4 injections of a radioactive material around the tumour it should then flow to the sentinal node/s. They can then biospy them. I hope the bed/trolley is comfy as it can take hours :-) I should take comfort in that Glasgow Dept of Neurosciences is very highly regarded as the best in Scotland.

I will keep you posted how it all goes.

Kind regards x

Hi Clara,

Please do keep me posted.
You are a remarkable woman, selfless, and courageous.Seems such a cruel twist of fate that you also find yourself in this situation. I know what you say re purpose of this thread, but your experiences helps us all understand further the lack of boundries this disease has. and we are also here for you in anyway which way we can to help. Whether it be sharing experienes or just being able to chat to others who undertstand some of the issues.

Lets hope all goes well and as you say it is some comfort being in the hands of such expertise.
Will hear from you soon.

kind regards
Ian x.

Hi Everyone

i certainly echo everyone s comments to Clara keep strong and please keep us updated. .

arrived at apartment this afternoon , ferry journey was hard but did it. Food was difficult as fish in menu but heavily breadcrumbed and can do most stuff but breadcrumbs nope .john had lamb my favourite sorry Emma I pinched a bit and sat there salivating well I woukd if I had saliva it tasted like heaven mashed potatoes fine and lemon meringue tart. Also managed a full English but in Sunday was too tired in pain mouth to drive so left that to John hotel overnight and woke in bettercstate and did a 2 hour stretch on motorway which is the furthest I’ve driven since diagnosis last June. 

Sunny here jihn says warm but u feel cool factor 50 on the neck

will keep in touch hope everyone is getting there

h x 

Hi Hazel,

Glad you got to your destination quite a mammoth drive!

Meeting up with friends on here for a meal, that was so nice to read :-)

Now a word of warning!!! you are in danger of becoming a worse foodie than me. That bikini wont fit for long, you have been warned HaHa You know me I cant resist injecting a bit humour :-)

Have a great time and look after yourself (hubby too) xx

Hi Clara

yep it was a mammoth journey which normally we do twice a year with ease but was difficult this year but I did it. 

Was great to meet up with Nikki and Paul then Emma and Paul we had shared such intimacy without speaking just texting was brill to hug n chat. We got in so well that are hoping to do a long weekend in summer if we can all manage it. 

I exposed bidyvwhen I was 2 stone heavier than I am now so if need be will do it again Bith jihn n I believe in growing old disgracefully lol. 

Please keep in touch 

h x

May i add my support Clara, im sure the people on this site, and indeed this thread of Ian's will be of great use to you. best wishes.

This reply was meant for Clara, but i managed to reply to myself . My partner was given Codeine but doesn't want to take it. He's been eating better the last few days, tonight the same amount of food as my girls. I so understand when you said your partner would watch TV but not know what was on!! It's almost impossible to get a straight answer to anything... unless I ask if he wants bread!! (He hates it!)

Thanks for your reply!  I totally agree with you, when I had 2 c-sections I never felt any pain because I took the tablets, I'd rather not feel any pain. My partner is very stubborn and isn't even using the aspirin mouth wash prescribed, nor the Codeine. The reason why I said I was impressed was because the dietician said people usually start using strong painkillers from week 2 or 3, whereas he only started feeling the pain in week 5, that's when he started with paracetamol. He dislikes the taste of many foods, water is vile, bread is disgusting etc, but he has eaten more the last 3 days. In fact he said I was very optimistic when I handed him his chicken stew tonight as I served a heaped serving spoon on some rice, but he ate it all and asked for more. I think he's finding the taste and texture a bigger issue than the pain.

Oh your poor partner not eating for 6 weeks. I can't imagine the pain he was in

Thank you so much for your reassurance Emma. It means a lot  I must say, my partner has perked up a lot these last few days, he's even looking more normal! Doing things like browsing the internet and watching YouTube videos is certainly a sign that he's gradually getting better and able to focus on something. Still very tired, but started his short walks today. Thank goodness it's getting warmer!! My girls are able to have conversations with him now, so I think everyone is feeling happier. To them he looked looked like he was dying, no matter how much I assured them he'll be getting better. But they're starting to see him come back to life and they were delighted to see him meet us on their way home from school today

Thank you so much for your reassurance Emma. It means a lot  I must say, my partner has perked up a lot these last few days, he's even looking more normal! Doing things like browsing the internet and watching YouTube videos is certainly a sign that he's gradually getting better and able to focus on something. Still very tired, but started his short walks today. Thank goodness it's getting warmer!! My girls are able to have conversations with him now, so I think everyone is feeling happier. To them he looked looked like he was dying, no matter how much I assured them he'll be getting better. But they're starting to see him come back to life and they were delighted to see him meet us on their way home from school today