Hi hazel

ipad was just before I went into scan room, not in actual scan.I appreciated to be honest as 45mins or so went in really quick while waiting. Was fascinated over the fragility of this stuff and how all comes from preston. Guess we all just take for granted and turn up but quite a lot of logistics in the background. When you think of the amount of people and departments are involved just for us, its quite amazing.

ohhhhh mcdonalds sounds nice and glad you enjoyed..I still have a vision of warm Ensures on your holiday so if you run out of ice dont tell me.thought makes me shudder lol 

ian

Hi ian u never know warm ensures maybtaste good. Lol. 

No in the room before the scan we can’t take anything in no distractions what so ever .!,  peace and quiet is what they insist. Yes agree a lot of people behind the sciences. 

H xx

HinIan and Dave

just for to share tonight’s tea with yiu. For the first time in a year nearly a Chinese takeaway !

ok nothing hit or spicy 

but noodles ,spare ribs chicken wings ,prawn foo yung a few chips dipped in bbq Sauce and several,prawn crackers hope it’s gives you hope. Plus Mac Donald’s for lunch  umm maybe nit the healthiest option but hey ho needs must.

good result for us on Monday ,anyway  off to check passports !!!!!! Sorry

h x

H xx

That’s brilliant Hazel another milestone conquered we had a pancake trial run for shrove Tuesday and they are so easy to eat, think I managed six but they don’t call me super Dave for nothing I’ll report back how my appointment goes tomorrow.

Another good win for Ole on Monday, hopefully another win this Sunday, if we win that I’ll be reeeeally happy

Dave

Thank you pancakes aren’t my favourite so tend to forget about them butbyorkshire puddings n stew deffo. Yep super fave 6 pancakes wow hope plentynif golden syrup and cream calories calories. Shout extra loud on Sunday as we will be docking in Santander so will miss the game hope to catch up on radio if my spanish is up to it !,

busy day tomorrow will let yiu know Hiw I get in as well we an compare camera experiences lol 

hope Julie is ok 

h 

Hi Hazel

Sounds great and mouth drooling...It's great you are upping eating game and being able to eat so many different things now...wee milestones like that are a great positive achievment and means a lot huh.

Enjoy latest adventure and remmber the ice box !

ian

So week 13 post treatment and still chugging along. My posts can be detailed but again I find personnaly therapeutic and I want to be able to look back and have the milestones as would forget otherwise.

I do feel there has been an improvment this week and although baby steps it's in the right direction this week.
I'm still sleeping a lot but am awake for longer and longer although I have turned night into day a couple of times.
Eating wise, am still on Ensures but not as much and have been trying to experiment a little more. One of the tricks I think is to try smaller portions as I get put off by a big plateful knowing I cant eat it all.
Had stovies/fishcakes/cottage pie as examples and also back on my mini curly wurlys and fruit salad squashy gummys. Have also tried Hazels suggestion of mini jaffa cakes and enjoyed.Hot toasted cinnamon and raisen loaf  and butter/cup of tea now goes down nicely.
It's funny and not sure if others same but I dont seem to have much consistency as I can enjoy say cottage pie one night but few nights later cant touch it. The other thing i am finding is that my mind is actually in the mood of certain foods, I really want to eat them but for some reason I cant. I dont know if its a mental block or otherwise but I dont fully undertand why I cant eat what I know I like and want to eat but can't sometimes physically do..Not sure if making sense but I know what I mean.

Had my PET/CT scan today which ive posted separate detail about and also being doing some work from home and enjoying.Reading a bit more so all in all when I add all these things up I guess that although im still tired and sleep a lot, I do feel some  progress has been made this week and am hoping to build on that. I'm taking this week as positve step in right direction.

I have also been thinking that for anyone reading my blog and I am week 13 post treatment it is perhaps pertinent to say that we are all different and react and recovery will be different for us all. There is no automatic magic number of days or weeks that applies to us all. SuperDave has had a remarkable recovery period and Hazel has done really really well and back on bike quite early on but still has occasitional side effects .I'm probably lagging a bit recovery wise in terms of fatigue and appetite so we all varied.
I went into this treatment just after a bout in hospital after 4 weeks chronic diahorreah and hospitalised for a week and on steroids 3 months (reaction to wrongly prescribed medication).Not entirely fit so I'm sure that may have something to do with my longer recovery period wheres if you are reasonbly fit beforehand there would be a good chance that would stand you in good stead post recovery.
I guess just to point out as I dont want anyone using me as a particular barameter thinking wow 13 weeks and still not as far on as expected.
We are what we are and although I think my mind is overtaking my body, you just have to accept that it is what it is and it will al come back in good time and in your own time and not anyone elses.

So still positive and hoping to get good results from scan  - also aware tha scan is so detailed it can also pick up other things not related to cancer, but pretty much a thorough MOT given.

Meds slighly reduced again this week, left gums still swollen sometimes and Im still drinking then drinking again then drinking some more.

Onwards and Upwards

Ian

Hi Laura

Good that treatment finishes on Friday and hopefully recovery period wont be too bad or long.

We are all different so lets think positive and think hubby will have a very short recovery period and up and running again in no time.
As you say plenty of info here and on blogs to highlight what to maybe expect regarding recovery but do let us know of progress

ian

Hi Ian 

totally agree on the food side ,there is no rhyme or reason for it . I still amaze my self thatbtoast goes down a treat but bread some days won’t. .re iterating ian s comments some if us are SuperDave made if kryptonite some of us more fragile like glass ,but we will all get here in the end .

i am beginning to think I am reverting back to childhood food what mum used to cook ,stew n dumplings goes down well New foods like pasta and rice noodles nonway they tend to stick. Jelly n custard great  mousse and fancy yoghurts not as easier. Wonder if a study should be done on it a dissertation maybe for some university student.

New treat for this week lotus biscuits found in Tesco a coffee biscuit dipped in milky coffee goes down a treat .

plus manageda few prawn crackers let them melt dipped innsweet  bbq sauce  . Have u ever said u really really want a bag of walkers plain crisps !!!! And a few nuts 

glas you feel like a corner as been turned soeingbus in the air dull days of winter and hospital s receeding in the distance. 

Sure your m o t will be fine. 

Onward and Upward s  glad you have re discovered reading it makes such a difference  will update from Spain after the 3 day journey glutton for punishment i know 

h