Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

Parents
  • Hi Laura,

    Thank you and sorry Micks side effects ramped up. Although temporary it doesnt make it any easier at the time and wish him well and I hope you are coping and doing ok as well.

    Hope Mick has a good week and keep us posted.

    Ian

  • Hi Ian. Good luck for tomorrow,I am sure all will be absolutely fine,let us know when results  are in . I had a 10 day wait hopefully yours will be quicker 

     

    hazel who is  getting ready for road trip ,taking 96 ensures with us in then car just in case. Lol bush tucker trials on the beach ! 

  • Hi Gormo

    Sorry to hear of husbands diagnosis but equally please that he seems to be doing well albeit baby steps.

    I'm glad you found blog helpful and you are able to resonate with the journey and side effects as the intention is to help others.
    I hope hubby can read the blogs ( Hazels is a very good read as well ) and betwen both am sure you get quite a reasonably big picture, but as you say might hopefully reassure him his side effects are normal.
    I'm just back from scan this morning and although results available Monday dont have appt till 19th March so will chase next week and what happens and will let you know.
    Please keep in touch with husbands progress and also let us know if we can help in any way at all

    kind regards
    ian

  • PET/CT SCAN

    So just back from PET/CT scan this morning and an update that I will put in my blog to share procedure based on what happened this morning.

    So first of all taken through to locker room where valuables/phone etc left as well as my water. Nothing contaminated allowed in and water given in pre room if required.
    Just as an aside, was told cancellations can be high just now as only one company in Preston makes the stuff injected and made at 2.00am in morning then driven up through the night to suppply all hospitals. So dependent on any machine/equipment or traffic issues can actually determine whether scan goes ahead.

    Anyhoo mine was ok for today and weight/height and blood sugar taken.Too much sugar in system and scan will not go ahead.
    Injection into vein then saline then I guess then the radioactive liquid.
    Was allowed my ipad in so rested and read on comfy electric recliner for around 45 mins or so as that allows for liquid to be effective.
    I had jogging bottoms/t shirt and sneakers on and I didn't have to change into gown or anything as made sure I was in my comfy attire.

    Taken through to scan room and told to lie on bed. Option whether to have music on.
    Put through a machine with a big polo mint 2 or 3 times for CT  then just lay there while PET scan took place,
    Whole scan took about 25/30 mins then up collected belongings then home.

    All painless and pretty straightforward and now just the waiting for results, which I will share once I know.

    kind regards
    Ian

  • Also wanted to ask did/does anyone experience dizziness and tingling on fingers and toes ? (not at the same time )

     

    thanks

    Michelle

  • Hi Ian

    yep sounds pretty much like mine but deffo deffo no ipad I wasn’t allowed as much as a book or magazine ! Was lie down close eye and relax ! Just shows how different hospitals handle the same thing. Am sure all will be ok have you got  an earlier date for results ,I know they will be ready after weekend it’s unfair to mak you wait until 19th !!

    taken grandson to macdonalds as halfback term treat , the chips drfeated me !!!!! Yes am human ,the cheese burger was manageable without the bread bun but the twin  ice cream was yummy !!!!

     

    look forward to tomorrow’s blog

     

    hqzel 

  • Hi Michelle

    i did experience slight dizziness early when treatment finished dr out utbsiwn to chemotherapy n radiotherapy still being in system it was wore in a morning but didn’t last long. Ditton with tingling in hands n feetbsame reason our bodies have been  poisoned and burnt . I also have waves if what u woukd describe as Heat pouringnout of my body at ransom times still get occasional  hot spots.  Plus body thermostat is off kilter I turn heating up hubbybturns it down !!!! I never felt the cold previously ,likewise have been told that I may struggle with the heat m hence why. May June July August n September early will be out of bounds for the dorsseabke future. But again everyone is different npbutbthink the body temp is quite common.

    h

  • Hi Michelle,

    Can honestly say I can still feel lightheaded sometimes if standing too long but not otherwise nor have I experienced any tingling on fingures or toes.

    ian

  • Hi hazel

    ipad was just before I went into scan room, not in actual scan.I appreciated to be honest as 45mins or so went in really quick while waiting. Was fascinated over the fragility of this stuff and how all comes from preston. Guess we all just take for granted and turn up but quite a lot of logistics in the background. When you think of the amount of people and departments are involved just for us, its quite amazing.


    ohhhhh mcdonalds sounds nice and glad you enjoyed..I still have a vision of warm Ensures on your holiday so if you run out of ice dont tell me.thought makes me shudder lol 

    ian

  • Hi ian u never know warm ensures maybtaste good. Lol. 

    No in the room before the scan we can’t take anything in no distractions what so ever .!,  peace and quiet is what they insist. Yes agree a lot of people behind the sciences. 

     

    H xx

  • HinIan and Dave

    just for to share tonight’s tea with yiu. For the first time in a year nearly a Chinese takeaway !

    ok nothing hit or spicy 

    but noodles ,spare ribs chicken wings ,prawn foo yung a few chips dipped in bbq Sauce and several,prawn crackers hope it’s gives you hope. Plus Mac Donald’s for lunch  umm maybe nit the healthiest option but hey ho needs must.

     

    good result for us on Monday ,anyway  off to check passports !!!!!! Sorry

     

    h x

     

    H xx

  • That’s brilliant Hazel another milestone conquered we had a pancake trial run for shrove Tuesday and they are so easy to eat, think I managed six but they don’t call me super Dave for nothing I’ll report back how my appointment goes tomorrow.

    Another good win for Ole on Monday, hopefully another win this Sunday, if we win that I’ll be reeeeally happy

    Dave

Reply
  • That’s brilliant Hazel another milestone conquered we had a pancake trial run for shrove Tuesday and they are so easy to eat, think I managed six but they don’t call me super Dave for nothing I’ll report back how my appointment goes tomorrow.

    Another good win for Ole on Monday, hopefully another win this Sunday, if we win that I’ll be reeeeally happy

    Dave

Children
  • Thank you pancakes aren’t my favourite so tend to forget about them butbyorkshire puddings n stew deffo. Yep super fave 6 pancakes wow hope plentynif golden syrup and cream calories calories. Shout extra loud on Sunday as we will be docking in Santander so will miss the game hope to catch up on radio if my spanish is up to it !,

    busy day tomorrow will let yiu know Hiw I get in as well we an compare camera experiences lol 

    hope Julie is ok 

     

    h