Hi,

My cancer is on my right tonsil so have already had my tonsillectomy. I've been told it's a T4, 0, 0 so as far as I know it doesn't effect any other areas. I'm going in with a bit of naivety and trusting the professionals.

Hi 

I have total faith in my oncologist he promised me cure and deliveeed also promised me treatment would be rough and delivered  that as well. Lo.l Ps 61 year old female whom cries  if she breaks  nail but radiotherapy n 2 chemotherapy didn’t phase me postive mental attitude got me there .!

h 

my spread ead was local,to,lymph nodes are you h p v 16+? It can make a difference

Just wanted to say thanks to everyone who has commented and been so positive especially Ian as your journey is nearly identical to my partners.  He was told in July 2018 he had cancer but it wasnt until his tonsils were taken out (as a precaution ) in September just before he started his chemo that we were told it was in his right tonsil.   The things you have all said have been similar to his , the mucas, salvia , food issues , thrush .  It's just good to know he is on the right path and not alone and that what he has been suffering is not unusal (if that makes sense) .  I am going to show him the blogs and let him read for himself .  He is eating a lot more but still baby steps and still having  2 drinks a day as it is very hit and miss with what he can actually eat, he fancies something but then when he eats it ends up throwing it away as it burns or tastes awful BUT defo getting there every day he is a little better in himself.

  We are now waiting for his PET on the 5th March (which has been put back from this Friday 22nd Feb) to confirm the next stage as he still has a slight lump in his throat and his consultant has indicated that there is a good chance it could come back !!!! which is not good to be told. 

After reading what Hazel has said I think I will ring and ask why it has been changed as that means he wont get an update until nearer end of March and dont want it hanging over him.

thanks again and take care , enjoy your road trip Hazel.

Thanks

Michelle

Hi Michelle

fingers n toes  crossed for you and hubby. Yes it’s so strange we have all have a similar diagnosis but treatment and recovery is so different for all of us. End ifvthus minthninwill be 6 month post radiotherapy if someone has said to me in August I woukd still be having some albeit small eating issues and the dry mouth gunky mouth I wouldn’t have believed them niw it’s still take it one day at a time babybsteps. It’s hard for our other half’s we try and explain yes last week I could eat xyz but umm not thus week no rhyme e or reason for it either. It’s just a frustrating for us the patients as you the  other half but will getbthere. 

Thank u for kind words will try and enjoy at least unlike when we return last year I have no intention of bringing tonsil cancer back with me !!!!!!!!!!!

if you read newleymarried. Emma on here her hubby Paul is now 3 years into remission and at his pet ct scan his lymph nodes went clear so ended up having a neck dissection so don’t despair sending hugs

hazel

Hi Gormo

Sorry to hear of husbands diagnosis but equally please that he seems to be doing well albeit baby steps.

I'm glad you found blog helpful and you are able to resonate with the journey and side effects as the intention is to help others.
I hope hubby can read the blogs ( Hazels is a very good read as well ) and betwen both am sure you get quite a reasonably big picture, but as you say might hopefully reassure him his side effects are normal.
I'm just back from scan this morning and although results available Monday dont have appt till 19th March so will chase next week and what happens and will let you know.
Please keep in touch with husbands progress and also let us know if we can help in any way at all

kind regards
ian

PET/CT SCAN

So just back from PET/CT scan this morning and an update that I will put in my blog to share procedure based on what happened this morning.

So first of all taken through to locker room where valuables/phone etc left as well as my water. Nothing contaminated allowed in and water given in pre room if required.
Just as an aside, was told cancellations can be high just now as only one company in Preston makes the stuff injected and made at 2.00am in morning then driven up through the night to suppply all hospitals. So dependent on any machine/equipment or traffic issues can actually determine whether scan goes ahead.

Anyhoo mine was ok for today and weight/height and blood sugar taken.Too much sugar in system and scan will not go ahead.
Injection into vein then saline then I guess then the radioactive liquid.
Was allowed my ipad in so rested and read on comfy electric recliner for around 45 mins or so as that allows for liquid to be effective.
I had jogging bottoms/t shirt and sneakers on and I didn't have to change into gown or anything as made sure I was in my comfy attire.

Taken through to scan room and told to lie on bed. Option whether to have music on.
Put through a machine with a big polo mint 2 or 3 times for CT  then just lay there while PET scan took place,
Whole scan took about 25/30 mins then up collected belongings then home.

All painless and pretty straightforward and now just the waiting for results, which I will share once I know.

kind regards
Ian

Also wanted to ask did/does anyone experience dizziness and tingling on fingers and toes ? (not at the same time )

thanks

Michelle

Hi Ian

yep sounds pretty much like mine but deffo deffo no ipad I wasn’t allowed as much as a book or magazine ! Was lie down close eye and relax ! Just shows how different hospitals handle the same thing. Am sure all will be ok have you got  an earlier date for results ,I know they will be ready after weekend it’s unfair to mak you wait until 19th !!

taken grandson to macdonalds as halfback term treat , the chips drfeated me !!!!! Yes am human ,the cheese burger was manageable without the bread bun but the twin  ice cream was yummy !!!!

look forward to tomorrow’s blog

hqzel 

Hi Michelle

i did experience slight dizziness early when treatment finished dr out utbsiwn to chemotherapy n radiotherapy still being in system it was wore in a morning but didn’t last long. Ditton with tingling in hands n feetbsame reason our bodies have been  poisoned and burnt . I also have waves if what u woukd describe as Heat pouringnout of my body at ransom times still get occasional  hot spots.  Plus body thermostat is off kilter I turn heating up hubbybturns it down !!!! I never felt the cold previously ,likewise have been told that I may struggle with the heat m hence why. May June July August n September early will be out of bounds for the dorsseabke future. But again everyone is different npbutbthink the body temp is quite common.

h