I can’t swallow food so back on soft foods and Oramorph, porridge, soup, yogurt, I’m drinking warm water just for a change but I need to drink more Hazel, any tips on getting more inside me?

MHave you been prescribed any high calorie food drinks like Ensure or fresubin? From your Macmillan nurse or dr .yiu really need them as they are highly balanced to make up all the nutrients we are missing. They are a bit gloopy so what we did was dilute then with bottled water I still can’t drink tap water!  If you dilute them you get a double hit 300 calories instantly but 600 mil if liquid. 

Soda water was my main source is drink have you tried herbal tea ie had peppermint only luke warm though and de caff green tea .youbreally need the liquid as it helps to get rid if the radiation are you keeping a record  get Julie to keep a  record if Hiw much you are  drinking need a min if 1.5 litres 2 is better plus at least 1900 calories sorry to bearer of bad news. But the 3 things that get us through ut are food drink sleep and lightbexercise .

keep,in touch

Hazel 

Yes Iv got the high calorie drinks too I forgot to mention them, I can’t stand the taste but get them down by pegging my nose.

hi dave

so dilute them  with water it makes them more palatable which ones do yiu have ? I used to have 4 Ensure and 1 fresubin a day hated them like u say but diluted they are a bit more palatable it’s really a case of calories calories in a week or so try a boiled egg with wait for it toast lathered with lurpack I still find roast easier than bread although today I had a cheese sandwich on whole meal bread sorry. 

Anither food to try toasted fruit tea cake with cheese on then grilled like cheese on toast cut into quarters seems silly but well greased toast I and everyone who I’ve rold it aboutbsays wow likewise I was skeptic as toast is harsh but give it a try 

h

The drinks are Fortisip I have three a day, another thing I forgot to mention is Julie makes a huge smoothie with fruit, high fat milk, yogurt, honey etc 

Well done on smoothies i couldn’t touch them  for weeks the fruit just dried my mouth out. See if dr will prescribe Ensure they are creamier than the fortisips or try complan made with milk that’s anither good one to try most supermarkets sell it in sachets also I’d undontbwant to bother dr try meritene from chemists as a powder to make up .its slowly coming back to me I am 20 weeks since finish which is scary  . No one tells you how long recovery is likely to be ok we are all doing it at different paces ,i a must now onky on paracetamol but sleeping isn’t good along with dry mouth at night during day am fine. Off to bed now so try the abive u might find them better than fortisip n if u get on with them getbdr Tom prescribe them 

night Haze

Hazel

Back to work next week..baby steps...2 days working at home ..1 day on office and 2 days annual leave to break in...mixed feelings as im still so tired but ill give it a go.

Update this blog tomorrow as end of week.

Dave

on the drinks like ensure....i am still taking them but can only tolerate the banana or strawberry ones..the chocolate or vanilla gave me the boak( nor that any are great) so maybe trial and error as to what you can take without discomfort. Smoothies sound good but do they tatste proper?

I tried ice cream wee while ago and coudlt.

Drink wise, maybe im lucky as I got used to drinking water from the get go and litres of it. It makes a difference if its cold tho and always need cold from fridge. Kind forced at start but came easy and still drink so much as mouth still claggy and it does help.

I was told by advanced nurse practioner that water was the best medicine I could take and would make a differnce post treatment if I did from start. Was told to drink then drink then drink some more.

Best advice I have been given thoughout my journey, but we are all different

ian

Thanks Ian I’ve taken the water advice onboard and i’ll up my game, looking at my urine it’s a good straw colour but like you say you can’t drink too much. 

Iv got a lot of the Fortisip drinks so I better use them up as I can’t abide waste, the Smoothie that Juile made me yesterday was the nicest thing Iv had in a month it had mandarins mango pineapple Greek yogurt, high fat milk, honey, and complan. I slept well again Iv only been awake 20 mins and 9.20.

Dave

Well done on sleep lol nearly a week into recovery slowly slowly, for once dirhetbthe waste yiunwill Ben able to use them later in the process the ithervare more palatable take it from me n Ian although we call the bush tucker trial drinks ,likewise I couldn’t do coffe chocolate or toffe. Vanilla banana strawberry were ok 

re sleep I woke sry mouth even though I am using the xymelts again 0200 0300 0530630 up atb0830 answer I am a solid 8 hour a day girl hey ho

ps have yiubseen wherevthe fergie is turning up at Carringtonnfor training !!!!

hazel