Hi Laura,

Good luck to Mick and keep us posted on his journey.

Wish him all the best and hope side effects kept to a minimum but all rooting for him.

Dave

well done completing treatment and will keep positive for you on recovery

Same wishes to all on this journey, no matter the stage you are at. 

kind regards

ian

Hi Ian

well,allmthose sleep deprive day nights have paid off just been given the All clear it’s such a surreal feeling hope I can be of inspiration to others .see oncologist in 12 months in meantime lovalmENT every 3 months

hope you are doing ok ,

Hazel

I got moved a few times to other machines to keep things moving but never had a breakdown in 6 weeks.

Yes, think our newest machine is a one off here.

Hi Dave Ian Tfs 

bit if interesting reading that’s I’ve come across if u google After the treatment has finished-then what. By dr Peter Harvey Leeds hospital trust. It’s an excellent article on recovery. Hope everyone is ok ?

hazel

Thanks Hazel. x

thanks for sharing that Hazel, Excellent article as you say and can relate to that.

ian x

Ian, you back to work, doing ok ?

Good article that very true, I’m only 5 days post treatment so no real changes for me apart from a slight saliva improvement, the tiredness has really kicked in now I’m sleeping well at night plus the daytime naps. We’ve done a few long walks which has been good and not missing the daily trip for treatment one bit :)

Dave

Hope article helps it’s so true. Walking is good it really helps the radiation tiredness. Just remember keep drinking hope you don’t get all the *** after effects. How’s the eating ? 

I can’t swallow food so back on soft foods and Oramorph, porridge, soup, yogurt, I’m drinking warm water just for a change but I need to drink more Hazel, any tips on getting more inside me?

MHave you been prescribed any high calorie food drinks like Ensure or fresubin? From your Macmillan nurse or dr .yiu really need them as they are highly balanced to make up all the nutrients we are missing. They are a bit gloopy so what we did was dilute then with bottled water I still can’t drink tap water!  If you dilute them you get a double hit 300 calories instantly but 600 mil if liquid. 

Soda water was my main source is drink have you tried herbal tea ie had peppermint only luke warm though and de caff green tea .youbreally need the liquid as it helps to get rid if the radiation are you keeping a record  get Julie to keep a  record if Hiw much you are  drinking need a min if 1.5 litres 2 is better plus at least 1900 calories sorry to bearer of bad news. But the 3 things that get us through ut are food drink sleep and lightbexercise .

keep,in touch

Hazel 

MHave you been prescribed any high calorie food drinks like Ensure or fresubin? From your Macmillan nurse or dr .yiu really need them as they are highly balanced to make up all the nutrients we are missing. They are a bit gloopy so what we did was dilute then with bottled water I still can’t drink tap water!  If you dilute them you get a double hit 300 calories instantly but 600 mil if liquid. 

Soda water was my main source is drink have you tried herbal tea ie had peppermint only luke warm though and de caff green tea .youbreally need the liquid as it helps to get rid if the radiation are you keeping a record  get Julie to keep a  record if Hiw much you are  drinking need a min if 1.5 litres 2 is better plus at least 1900 calories sorry to bearer of bad news. But the 3 things that get us through ut are food drink sleep and lightbexercise .

keep,in touch

Hazel 

Yes Iv got the high calorie drinks too I forgot to mention them, I can’t stand the taste but get them down by pegging my nose.

hi dave

so dilute them  with water it makes them more palatable which ones do yiu have ? I used to have 4 Ensure and 1 fresubin a day hated them like u say but diluted they are a bit more palatable it’s really a case of calories calories in a week or so try a boiled egg with wait for it toast lathered with lurpack I still find roast easier than bread although today I had a cheese sandwich on whole meal bread sorry. 

Anither food to try toasted fruit tea cake with cheese on then grilled like cheese on toast cut into quarters seems silly but well greased toast I and everyone who I’ve rold it aboutbsays wow likewise I was skeptic as toast is harsh but give it a try 

h

The drinks are Fortisip I have three a day, another thing I forgot to mention is Julie makes a huge smoothie with fruit, high fat milk, yogurt, honey etc 

Well done on smoothies i couldn’t touch them  for weeks the fruit just dried my mouth out. See if dr will prescribe Ensure they are creamier than the fortisips or try complan made with milk that’s anither good one to try most supermarkets sell it in sachets also I’d undontbwant to bother dr try meritene from chemists as a powder to make up .its slowly coming back to me I am 20 weeks since finish which is scary  . No one tells you how long recovery is likely to be ok we are all doing it at different paces ,i a must now onky on paracetamol but sleeping isn’t good along with dry mouth at night during day am fine. Off to bed now so try the abive u might find them better than fortisip n if u get on with them getbdr Tom prescribe them 

night Haze