Hi Laura,

Good luck to Mick and keep us posted on his journey.

Wish him all the best and hope side effects kept to a minimum but all rooting for him.

Dave

well done completing treatment and will keep positive for you on recovery

Same wishes to all on this journey, no matter the stage you are at. 

kind regards

ian

Hi Ian

well,allmthose sleep deprive day nights have paid off just been given the All clear it’s such a surreal feeling hope I can be of inspiration to others .see oncologist in 12 months in meantime lovalmENT every 3 months

hope you are doing ok ,

Hazel

Doc told me i’ll have an examination at 6 weeks camera up the nose etc and scan at 12 weeks, he didn’t say which type of scan.

Dave

Ask him next time you go.would younbelieve I only had a camera up on the 2 nd lovalmloval Ent clinic  Oncologist hasn’t done one he believes in science from the scans , in my case with it being tonsil said the camera wouldn’t tell him anything somwhy put me through it. 

Tell yiu one thing it’s a very very strange feeling today m John and I just been talking and we are both the same elated that the cancer has gone but there’s a deflated feeling as well hard to put into words maybe becasue we’ve lived ut day and night since 14 May last year and now it’s gone !!!

Hazel 

I think the whole process is a strange experience Hazel, Iv gone from being fighting fit for my age riding bikes, walking, playing football to being hit by a juggernaut, even now months on I can’t accept it fully but I’m in a process of getting me back to normal and doing everything I can to get back to where I was, never thought it would happen to me.

Dave

Ditto if you’ve read my blog we cycled 1100 km lastvMay ok had what turned out to be s lymoh nide with cancer cells in it but I don’t drink don’t smoke n for 61 female fairly fit n get tonsil csncerbfrom h p v 16+ virus. Why us when there’s scores out there that abuse their bodies.  Only saving grace the cure rate is good. Like my oncologist said on first meeting him it’s the cancer he would choose if he had to get one. But the treatment is probably the worst of all as until u can’t use your mouth u have no idea how much it and the tongue do. 

Hope u get a good night anyvwuestions justcsdk. Just because I’ve got my results I am still going to help as many as I can for a long time to come . Off to Spain Saturday 19 days gentle bike riding no mountains though all flat 

hazel 

We are 2 1/2 years into remission and athough that sounds a long time the experience changes you forever. It’s something you can’t explain to those who haven’t been through it. The doctors say go live your life but that’s easier said than done especially when the cancer diagnosis creeps up on you with no major symptoms.

There are so many unanswered questions- why did I get it , why did I survive , will it come back ? How will I know ? As time goes by although cancer may not be the first thing you think about when you wake or the last thing before you sleep it is still there everyday.

I do think theres a whole piece of work regarding survivorship that needs doing particularly the psychological impact and how you move forward.

Until then those who are lucky enough to get the ‘cancer free’ meeting muddle along living their lives to the fullest and managing the longbterm side effects.

How you guys get on with machine maintenence/breakdowns? We got told Fri no treatment Mon, machine wroks. Drove up today, waited 2 hours past my time they kept saying maybe 20 mins, then we all got cancelled!  They are calling tomorrow to advise if off still. It sounds unusual and maybe, dangerous to our outcomes?

I got moved a few times to other machines to keep things moving but never had a breakdown in 6 weeks.

Yes, think our newest machine is a one off here.

Hi Dave Ian Tfs 

bit if interesting reading that’s I’ve come across if u google After the treatment has finished-then what. By dr Peter Harvey Leeds hospital trust. It’s an excellent article on recovery. Hope everyone is ok ?

hazel

Thanks Hazel. x

Thanks Hazel. x