Hi Laura,

Good luck to Mick and keep us posted on his journey.

Wish him all the best and hope side effects kept to a minimum but all rooting for him.

Dave

well done completing treatment and will keep positive for you on recovery

Same wishes to all on this journey, no matter the stage you are at. 

kind regards

ian

Hi Ian

well,allmthose sleep deprive day nights have paid off just been given the All clear it’s such a surreal feeling hope I can be of inspiration to others .see oncologist in 12 months in meantime lovalmENT every 3 months

hope you are doing ok ,

Hazel

You  ARE   our inspiration, delighted for you xx

Hi Hazel

Thats great news and as you say *** journey but proves there is light at the end of the tunnel for all of us. 

Just delighted for you and you are a wonderful insipration to so many.

All you need to do, now that you have a clear head, , while Mr Ole is doing fab and admirable, you should consider the perfection going on with Mr Klopp lol

bet you have put a smile on a lot of faces here with your news

kind regards

ian

I Thank you Ian for your kind words Mr Klopp I ok but there  is only one Red team !SOrry  Won’t fall out with you ivervthat one. 

If I have jnspired anyone that’s great but selfishly I did the blog for me !!! And if I’ve helped people by that  on here brill.

keep asking questions as will still be on here , maybe cancer free but still got 5 years of visits to look forwards to.

hazel

Just kidding re klopp hazel and I know yr a MU fan lol

YourBlog and reason not selfish at all and totally get that. I started this thread as soon I as knew and as I have said many times, it was to help at least one person but in the main was to record my  journey and my progress warts and all and its been very therapeutic for me so I guess I have been selfish all along as well then, It still is my rationale for doing this.

 However i'd like to think all of us have pulled together, contributed and helped one another especially as we are all at different stages and often have different symtoms at different stages.

ian

Hi Ian 

totally agree I do think sharing experience s has helped me no end. Like I say we are all different but in  a way all  the same if that makes sense. It certainly helps to know you aren’t alone st 0300 when spitting secreations out or trying to drink your bush tucker quota of ensure love that analogy. Blog ready for publishing in next few mjbd. Wonder if I will sleep tonight. lol. Keep in touch 

Hazel 

Hazel how long does it take to get the results after the scan?

Dave

HHi Dave if it’s a pet ct scan usually a week I.e. guybtoday gets his next Monday as I let ct scan needs more time for whatever reason. Wirhbchristmas and new year they had a back log so I knew well in advance mine was 11 days .so just put it out of my mind and compartmentalised it ,with the well it’s done I can’t influence it either way so forget about it and to be honest I did .ok last nights sleep was fractured but that could be dry mouth and apprehension.

I kniw a girl who had an m r I scan as her final scan  different consultant s ask for different scans she had her scan at 11 am waited jn hospital until 1600 consultant read  it and gave her a provisional all clear and said 2 days later will ring you to confirm  which they did and it was. .

my oncologist takes the belt and braces attitude and want the security of the pet ct scan , with it there is a risk if it’s done too early you can get a false positive ie u still have radiation in your system which can affect the scan Hence why I was 16 weeks from finish , I have known m r I scans some at 10 weeks done . Do you know which one you will have .

hazel

Doc told me i’ll have an examination at 6 weeks camera up the nose etc and scan at 12 weeks, he didn’t say which type of scan.

Dave

Ask him next time you go.would younbelieve I only had a camera up on the 2 nd lovalmloval Ent clinic  Oncologist hasn’t done one he believes in science from the scans , in my case with it being tonsil said the camera wouldn’t tell him anything somwhy put me through it. 

Tell yiu one thing it’s a very very strange feeling today m John and I just been talking and we are both the same elated that the cancer has gone but there’s a deflated feeling as well hard to put into words maybe becasue we’ve lived ut day and night since 14 May last year and now it’s gone !!!

Hazel 

Ask him next time you go.would younbelieve I only had a camera up on the 2 nd lovalmloval Ent clinic  Oncologist hasn’t done one he believes in science from the scans , in my case with it being tonsil said the camera wouldn’t tell him anything somwhy put me through it. 

Tell yiu one thing it’s a very very strange feeling today m John and I just been talking and we are both the same elated that the cancer has gone but there’s a deflated feeling as well hard to put into words maybe becasue we’ve lived ut day and night since 14 May last year and now it’s gone !!!

Hazel 

I think the whole process is a strange experience Hazel, Iv gone from being fighting fit for my age riding bikes, walking, playing football to being hit by a juggernaut, even now months on I can’t accept it fully but I’m in a process of getting me back to normal and doing everything I can to get back to where I was, never thought it would happen to me.

Dave

Ditto if you’ve read my blog we cycled 1100 km lastvMay ok had what turned out to be s lymoh nide with cancer cells in it but I don’t drink don’t smoke n for 61 female fairly fit n get tonsil csncerbfrom h p v 16+ virus. Why us when there’s scores out there that abuse their bodies.  Only saving grace the cure rate is good. Like my oncologist said on first meeting him it’s the cancer he would choose if he had to get one. But the treatment is probably the worst of all as until u can’t use your mouth u have no idea how much it and the tongue do. 

Hope u get a good night anyvwuestions justcsdk. Just because I’ve got my results I am still going to help as many as I can for a long time to come . Off to Spain Saturday 19 days gentle bike riding no mountains though all flat 

hazel 

We are 2 1/2 years into remission and athough that sounds a long time the experience changes you forever. It’s something you can’t explain to those who haven’t been through it. The doctors say go live your life but that’s easier said than done especially when the cancer diagnosis creeps up on you with no major symptoms.

There are so many unanswered questions- why did I get it , why did I survive , will it come back ? How will I know ? As time goes by although cancer may not be the first thing you think about when you wake or the last thing before you sleep it is still there everyday.

I do think theres a whole piece of work regarding survivorship that needs doing particularly the psychological impact and how you move forward.

Until then those who are lucky enough to get the ‘cancer free’ meeting muddle along living their lives to the fullest and managing the longbterm side effects.

How you guys get on with machine maintenence/breakdowns? We got told Fri no treatment Mon, machine wroks. Drove up today, waited 2 hours past my time they kept saying maybe 20 mins, then we all got cancelled!  They are calling tomorrow to advise if off still. It sounds unusual and maybe, dangerous to our outcomes?

I got moved a few times to other machines to keep things moving but never had a breakdown in 6 weeks.

Yes, think our newest machine is a one off here.

Hi Dave Ian Tfs 

bit if interesting reading that’s I’ve come across if u google After the treatment has finished-then what. By dr Peter Harvey Leeds hospital trust. It’s an excellent article on recovery. Hope everyone is ok ?

hazel

Thanks Hazel. x

thanks for sharing that Hazel, Excellent article as you say and can relate to that.

ian x

Ian, you back to work, doing ok ?