Hi Laura

not heard of manuka so no and just plenty of water for me.

Thought about the flu jab but on balance decided against it. Varied opinions whether should get done or not.Touch wood, I have been fine so far but it was and is one of my worst fears of catching the cold/flu and bronchitis would be an absolute nightmare.Been in house most of time with heating on and any time out i have worn a neck warmer/snood and hat and kept well wrapped up.

Wishing Mick all the best when treatment starts and lets hope side effects are kept to a minimum.

Keep us posted on journey

kind regards

ian

Hi Ian

hope yiu are keeping ok m just got an image in y head of you in a snood !!!LOL

have yiu started gentle walks yet?

wentbtinlovak drs yesterday for a tablet revue should OMG my repeat script was 3 pages long! So reduce stress thatbdiwn nearly iff the co codomol down ton4 x 8 mg and 4 paracetamol hoping by next weekend paracetamol only.

although  he has put me Omaprozole for 8;weeks for silent reflux so watch this space never had heartburn before now but it’s a common side affects and it’s hard to enough to eat as it is without that. my oncologist said stop ibuprofen which I did 6 weeks ago and if no improvement get dr to prescribe Omaprozole.

have a good weekend ,3 days to gimfor me and I am remaining calm,don’t know about Monday morning though !

Hazel

Hi Hazel

hoi ! - you get man and sporting snoods you know lol. mine is Berghuas

So im doing good end of week 7 and as previous post quite good first appt with consultant,

Porb just a blip but left side mouth bit swollen past 2/3 days and gums quite tender. left side Maybe something I have eaten but tbh this has flared up now and then throughout. Will rinse a little more with Cahpasol and Difflam and hope that sorts.You think you are 100% fab then somethig always seems to pop up to remind you that you are still in recovery mode!

Walks...errrr no not yet but planning to try and do baby steps this weekend and get out. - and all warpped up including snood ! lol  Will keep you posted but baby steps - I aint gonna be like you and blast the bike for miles thats for sure, as much as I admire you for.

Im same re repeast prescriptions lol and im stil on the morphine although cut down on the oralmorph.
I wouldnt worry bout co codomol as I have been on them for years but had to stop while taking others meds but good that you seem to be reducing. Remember your own advice and take any painkillers you have to as there for a reason. Think I have 9 items on repeat just now, but havnt ordered any more of the bushtucker Endures.Do you still take them or you eating back to full normal now?

Have a great weekend too and posts are all over place here so remind me, what is happeing on Monday? Are you having another appointment/scan?...Good luck oN monday tho but let me know what's planned.

kind regards

ian

Walks - 

Hi Ian

Monday is big results day with top man .i had final pet ctbscan last Thursday keep up !!!!lol

He was confident end of November thatballmwas ok and nomcancer around but think Monday  Morning will be tense. The guy in before me we’ve done every appointment together more or less so I message s him other day saying don’t be late and hurry up get his reply Andy leave I want to get in !!!at Leeds at 12 can take 46-90 mins to get their so will report back when I am at home Monday . I’ve cancelled the bush tucker trial Ensure standing order weve 96 bottles left inuse one a day to take my tablets ,Jihn is sAying he May have them all next week Andy nitbeatbas he has out weight in whikstbhe has been doing the cooking.

eatung wise there very little that u can’t eat apart from I hot curry’s ok with a korma or butter chicken type. Some breads stick ie I can’t bake my own but warburtons thin slice or medium is ok. Yesterday I did a panini as a sandwich. Plus a can of diet Fanta !!! Progress indeed.

dingers x we are flying tomspain the 19 tho so will think about your phased plan of getting back to work whilst in my bike ,but won’t be aiming highnwill settle for 12/15/Kim’s out for 19 days back 3 weeks. Then take carvon feerybro Santander for longervstay results willing dr Sen has already said go for it .Life is for living nit hanging round hospital s,he says I am responsible enough to come him every if I feel I need to so taking him at his word for niw

wrap uonwadm , I am a RAB or mountain hardware girl myself mind u they are over10 year old now and seeing as I am nit putting weight back in mightbneed a shopping trip. Ouch I hear jihn saying 

enjoy weekend 

hazel

Hi Hazel

okayies much love and luck dust for Monday and will keep fingures crossed for you.

Im sure all ok and we all remain positive around all this huh.

I think you have done amazingly well, espacially with your exercises and its been really good having you in front of me as ive managed (and others) to pick up quite a few tips and suggestions from you.

Just need to start listening re the walking !

Sounds like your energy levels getting there as well as more and more food intake so thats all good.

Ive had a mental 4/6 weeks recovery period with retail and admit I have been a little OTT but hey ho I'll calm down but I admit i did enjoy the focus of retail therapy. As for your shopping trip - go for it gorl. as you say life for living so you desrve a wee treat.

Keep up your positive vibes and I'll hear how you get on re Monday

kind regards

ian

Hazel

sorry just a little side issue

Your going to spain for a few weeks. How does that work re insurance? esp since youve not had all results yet?

Do you get insurance but without cover for cancer or does the EU card thing work in Spain if in the unlikely event needed?
Early days for me thinking about abroad again, but just curious re insurance

kind regards
ian

May i add best wishes from me too Hazel, a great help and inspiration to us, telling us warts and all, which is my preference.

Hi Ian

we went in October 8 weeks after treatment because we sometimecstsy 8 weeks we gave a yearly policy with 90 day max stay .

i was a travel agent before retiring so am used to the varies of travel so one day say down took the plunge rsng  my insurers  by the time I had said tonsil cancer the tears were flowing !!!! So composed my self theynwoikd keep me insured b ut nit for tonsil cancer or anything to do with cancer which is fine don’t plan getting it again lol !!!plus it’s not like heart trouble  any twinges I woukd be at an airport on my way home before u can say jack Robinson !!

at the moment the EHIC card will cover yiu for emergency treatment in EU countries a big bone of contention is if we leave on a no deal that will will stop on the 29 th March. Spain are as a country concerned how it will affect tourism and Valencia Murcia n adalusia province are hoping to strike separate deals to keep,it going.  What u she be yontemember the EHIC onky covets emergent nit things like repratiattion if u need a private’s plane to get unhime.

my current insurer  wouldn’t cover me when policy expired  so I started the trawl of finding someone who would. .

we have got a joint yearly policy for me n jihn max stays 90 days unlimited trips for £235 for the 2 of us excluding my tonsil cancer so will live with that.  To include tonsil cancer was iver £2000 so took executive decision cheaper to fly me home business class if need be. Want it  more  if I fall off my bike trip over kerb etc etc  hoping I do neither. 

Got it via B U P A. Online then rang to explain re cancer it’s surprising how the c word elicits a soft voice. Lol. .

hope it makes sense if u only want a normal 2/3 week cover u shouldn’t pay much more than u would have before 

hx

thanks for best wishes 

Hi TFS

many thanks ,I took the decision that sugar coating it was no good to anyone . Positive mental attitude wins every time , plus forewarned is forearmed .

Hiw are yiu feeling ?

H 

Hi TFS

many thanks ,I took the decision that sugar coating it was no good to anyone . Positive mental attitude wins every time , plus forewarned is forearmed .

Hiw are yiu feeling ?

H 

Hi Hazel, and everyone, i am great, day 10 done slight mouth sore and tiny bit throat tightness but a spray or two of manuka and im good. Im not fooling myself, know the easy bit is about to end, but the machine is off Mon so i get 3 days off now, then  i think it will  all start to escalate as next week ends.Oscar, great to see you progress i saw you were a bit unlucky at the start but well done.

Hi TFS

enjoy yourv3 day break ,week 3 things start to ramp up at bit, week 4 is when the fun could start but we are all different .

enjoy weekend , do yiu have to go to Puerto de las Cruz for treatment ? Is it IMART that u are having so u know ?

H

Santa Cruz is our main hospital here capital  city  about 25 miles from Puerto, although i live in South about 50 miles away takes an hour or so each way. We have an amazing expat charity here, that have helped me so much with transport, translators and more, called FACT  (fighting against cancer Tenerife), selfless helpful people.

My treatment is like yours Vmat. They seem to really believe in it.

Hi

Yes the treatment is state of the art targeted to .ooo1 mm or something like that I know many a time in the table it moved remotely after they had scanned me and it was tiny movements . Years ago we would have had 2 wall bricks out at sides if neck and been blasted to high hell.

Have to agree with you in San Javier near where are apartment is MABS the ex oat cancer charity were brill when we venturedover r 8 weeks after treatment. I contacted them about hiring a nebuliser or where I could buy one along with a humidifier,they git back to me and said they had them all I had to do was go up they would put one in one side . Gave me emergency contact card if u needed anything contactvthem if I needed pharmacia or hospitals and was struggling they would get someone’s to translate for me. So needless  to say gave them a generous donation and quite a few bits for the charity shop. 

Have tomsay the he ex pats are good at stuff like that. 

Hazel 

Hi Hazel I rang the bell but left the mask..I just didnt want it, my garage is already full of junk :)

Im feeling good but very tired now and off to bed soon, I really hope I can eat normally in a month or so, Not knowing what to expect now but obviously improvements! Iv been told to keep an eye on one side of my neck as the skin is very red and could break, Im plastering the E45 cream on and the Hydrocortizone sparingly twice a day, I had chips in gravy for tea and cake and cream after that, Iv lost about a stone now but my jeans are no looser so Im guessing its muscle mass etc. I`ll tell Julie you were asking.

Dave

Hi Dave

xongratulations on reaching end of phase 1 now the long slow haul to recovery. Yiu May have one step forward 2 step backward moments but don’t despair.

imoressed chips and gravy wow , cake and ice cream is excellent double calories!,

my nexk erupted  at end if week 5 and I had 2 more weeks to go consultant  knew I wouldn’t end up with a 3rd degree burn and he was right .After it healed I use bio oil again sparingly but now you can hardly tell .

have a quiet weekend and baby steps next week .i lostb2 stone mostly in the weeks that followed treatment as I was in feedingbtube good lick keep in touch .Sleep is god

Hazel

Oscar;   Just to congratulate you again from me, you give me hope.

Thanks TFS I was pretty fit before the start of the treatment Im almost 61 but keep fit by walking and playing football 3-4 times a week and the docs say its helped me deal with it plus a positive mental attitude, its not over yet but you get my drift.

Hazel has anyone explained why we this indegestion? I rarely got indegestion before the treatment.

Dave 

Hi Dave

have you been taking ibuprofen? That can affect the digestive system. I like you have never ever had indigestion problems , but like dr says there little enough we can eat with out taking massive cuts to our already meagre foods we can eat. 

So he prescribed me 8 weeks of Omaprozole and says the radiotherapy does damage the gastric tubes and like the rest if us has to regenerate so can’t hurt by giving us some help .

i

bedore I went to drs I was taking one  gavisxon dual action tablet after food also don’t lie down within 30 mins of eating. 

just remember  we have been zapped to high heaven and everything has to regenerate slowly think a bit like Dr WHo

Have a good weekend ,best wishes to Julie.

Hazsl n John 

Hi Hazel no I’m not taking Ibuprofen thanks for the info I thought the treatment targeted a quite small area so I wasn’t expecting the indigestion, my doc thought it might be change of diet but he didn’t seem too sure.

Dave