Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

Parents
  • Hi Laura

    not heard of manuka so no and just plenty of water for me.

    Thought about the flu jab but on balance decided against it. Varied opinions whether should get done or not.Touch wood, I have been fine so far but it was and is one of my worst fears of catching the cold/flu and bronchitis would be an absolute nightmare.Been in house most of time with heating on and any time out i have worn a neck warmer/snood and hat and kept well wrapped up.

    Wishing Mick all the best when treatment starts and lets hope side effects are kept to a minimum.

    Keep us posted on journey

    kind regards

    ian

  • Hi Ian

    hope yiu are keeping ok m just got an image in y head of you in a snood !!!LOL

     

    have yiu started gentle walks yet?

    wentbtinlovak drs yesterday for a tablet revue should OMG my repeat script was 3 pages long! So reduce stress thatbdiwn nearly iff the co codomol down ton4 x 8 mg and 4 paracetamol hoping by next weekend paracetamol only.

    although  he has put me Omaprozole for 8;weeks for silent reflux so watch this space never had heartburn before now but it’s a common side affects and it’s hard to enough to eat as it is without that. my oncologist said stop ibuprofen which I did 6 weeks ago and if no improvement get dr to prescribe Omaprozole.

     

    have a good weekend ,3 days to gimfor me and I am remaining calm,don’t know about Monday morning though !

    Hazel

  • Hi Hazel

    hoi ! - you get man and sporting snoods you know lol. mine is Berghuas

    So im doing good end of week 7 and as previous post quite good first appt with consultant,

    Porb just a blip but left side mouth bit swollen past 2/3 days and gums quite tender. left side Maybe something I have eaten but tbh this has flared up now and then throughout. Will rinse a little more with Cahpasol and Difflam and hope that sorts.You think you are 100% fab then somethig always seems to pop up to remind you that you are still in recovery mode!

    Walks...errrr no not yet but planning to try and do baby steps this weekend and get out. - and all warpped up including snood ! lol  Will keep you posted but baby steps - I aint gonna be like you and blast the bike for miles thats for sure, as much as I admire you for.

    Im same re repeast prescriptions lol and im stil on the morphine although cut down on the oralmorph.
    I wouldnt worry bout co codomol as I have been on them for years but had to stop while taking others meds but good that you seem to be reducing. Remember your own advice and take any painkillers you have to as there for a reason. Think I have 9 items on repeat just now, but havnt ordered any more of the bushtucker Endures.Do you still take them or you eating back to full normal now?

    Have a great weekend too and posts are all over place here so remind me, what is happeing on Monday? Are you having another appointment/scan?...Good luck oN monday tho but let me know what's planned.

    kind regards

    ian

     

    Walks - 

  • Hi Ian

    Monday is big results day with top man .i had final pet ctbscan last Thursday keep up !!!!lol

    He was confident end of November thatballmwas ok and nomcancer around but think Monday  Morning will be tense. The guy in before me we’ve done every appointment together more or less so I message s him other day saying don’t be late and hurry up get his reply Andy leave I want to get in !!!at Leeds at 12 can take 46-90 mins to get their so will report back when I am at home Monday . I’ve cancelled the bush tucker trial Ensure standing order weve 96 bottles left inuse one a day to take my tablets ,Jihn is sAying he May have them all next week Andy nitbeatbas he has out weight in whikstbhe has been doing the cooking.

    eatung wise there very little that u can’t eat apart from I hot curry’s ok with a korma or butter chicken type. Some breads stick ie I can’t bake my own but warburtons thin slice or medium is ok. Yesterday I did a panini as a sandwich. Plus a can of diet Fanta !!! Progress indeed.

    dingers x we are flying tomspain the 19 tho so will think about your phased plan of getting back to work whilst in my bike ,but won’t be aiming highnwill settle for 12/15/Kim’s out for 19 days back 3 weeks. Then take carvon feerybro Santander for longervstay results willing dr Sen has already said go for it .Life is for living nit hanging round hospital s,he says I am responsible enough to come him every if I feel I need to so taking him at his word for niw

     

    wrap uonwadm , I am a RAB or mountain hardware girl myself mind u they are over10 year old now and seeing as I am nit putting weight back in mightbneed a shopping trip. Ouch I hear jihn saying 

    enjoy weekend 

    hazel

  • Hi Hazel

    okayies much love and luck dust for Monday and will keep fingures crossed for you.

    Im sure all ok and we all remain positive around all this huh.

    I think you have done amazingly well, espacially with your exercises and its been really good having you in front of me as ive managed (and others) to pick up quite a few tips and suggestions from you.

    Just need to start listening re the walking !

    Sounds like your energy levels getting there as well as more and more food intake so thats all good.

    Ive had a mental 4/6 weeks recovery period with retail and admit I have been a little OTT but hey ho I'll calm down but I admit i did enjoy the focus of retail therapy. As for your shopping trip - go for it gorl. as you say life for living so you desrve a wee treat.

    Keep up your positive vibes and I'll hear how you get on re Monday

    kind regards

    ian

  • Hazel

    sorry just a little side issue

    Your going to spain for a few weeks. How does that work re insurance? esp since youve not had all results yet?

    Do you get insurance but without cover for cancer or does the EU card thing work in Spain if in the unlikely event needed?
    Early days for me thinking about abroad again, but just curious re insurance

    kind regards
    ian

Reply
  • Hazel

    sorry just a little side issue

    Your going to spain for a few weeks. How does that work re insurance? esp since youve not had all results yet?

    Do you get insurance but without cover for cancer or does the EU card thing work in Spain if in the unlikely event needed?
    Early days for me thinking about abroad again, but just curious re insurance

    kind regards
    ian

Children
  • Hi Ian

    we went in October 8 weeks after treatment because we sometimecstsy 8 weeks we gave a yearly policy with 90 day max stay .

    i was a travel agent before retiring so am used to the varies of travel so one day say down took the plunge rsng  my insurers  by the time I had said tonsil cancer the tears were flowing !!!! So composed my self theynwoikd keep me insured b ut nit for tonsil cancer or anything to do with cancer which is fine don’t plan getting it again lol !!!plus it’s not like heart trouble  any twinges I woukd be at an airport on my way home before u can say jack Robinson !!

    at the moment the EHIC card will cover yiu for emergency treatment in EU countries a big bone of contention is if we leave on a no deal that will will stop on the 29 th March. Spain are as a country concerned how it will affect tourism and Valencia Murcia n adalusia province are hoping to strike separate deals to keep,it going.  What u she be yontemember the EHIC onky covets emergent nit things like repratiattion if u need a private’s plane to get unhime.

    my current insurer  wouldn’t cover me when policy expired  so I started the trawl of finding someone who would. .

    we have got a joint yearly policy for me n jihn max stays 90 days unlimited trips for £235 for the 2 of us excluding my tonsil cancer so will live with that.  To include tonsil cancer was iver £2000 so took executive decision cheaper to fly me home business class if need be. Want it  more  if I fall off my bike trip over kerb etc etc  hoping I do neither. 

    Got it via B U P A. Online then rang to explain re cancer it’s surprising how the c word elicits a soft voice. Lol. .

    hope it makes sense if u only want a normal 2/3 week cover u shouldn’t pay much more than u would have before 

    hx

    thanks for best wishes