Hi Emma Good reminder. 
scarily  it's 4 years since my treatment started you were my rock then and still best friends. 
Hazel x

Hi All,

I had a CT on Thurs and was told Friday, subject to the PET scan in September, that the tumour has been eradicated and the lymph nodes are back to normal

I'm 6 weeks post treatment and starting to eat better. I'm mostly off the shakes and managing soft easy to chew/swallow foods. Having to slow myself down a bit as I'll try to eat something that will damage my mouth/throat - I'm not one for patience!

Still short on saliva but taste buds are definitely coming back. I feel a bit guilty that I seem to be ahead of where others have been. Not going to go back to work until September so will continue to work on my recovery over the summer.

Ian, thanks for the response to the msg. I continue to go back and read where you and others where at this stage knowing where you are now :) Very helpful.

Hope everyone is coping with the heat. Enjoy the summer!
 

Regards,

Robert 

Yes I mentioned here before , its affected my thyroid, subclinical no meds so far. And acid worse so got ENT  to look at esophagus too.  Its serious treatment  this. Latest scan fine, 3 scans to go till 5 years are up.  I never assume anything. Its changed me mentally. This forum helped / helps. Onwards  mis amigos xx

Hi there Ro8ert. 

I've been looking for someone to ask regards eating after radio so your post is a blessing for me. I'm 3 weeks finished of 33 doses of radio. Currently I'm on the shakes but I'm really keen to get going forward. Because of the burns and ulceration to my mouth, I'm reluctant to try a lot. I tried tomato soup but u wasn't aware of the acidity which made the stinging of my tongue flare up. Tinned tomatoes likewise. I managed a custard slice last night which despite being small, is a massive win for me. 

Youve said 6 weeks in your post. I appreciate that's not a uniform recovery but I'm keen. Can I ask how you weaned your way on to foods again? Porridge maybe? My saliva is starting to come back gradually which gives me hope. 

I've sent you a friend request on here so I could message you privately. Either accept or not it's OK. Just looking for someone who can offer me a personal diary rather than nurses telling me i will get there. 

Furthermore, because of my radio, my jaw has lost some opening. Has this happened to you also? How did you deal with this? 

Thanks. Matt.

Hi Matt,

Ive posted a link to my blog which may help with timelines.

Food can be a challenge in recovery and I had really good advice from my support team and dietician on what we classed as "good" and "bad" calories and when to take them.
Main thing is getting fuel into your body and even starting with softer foods like mash,scrambled egg, yougurts rice puddigs etc and gradually move on. Many of us took a bit of time to fully get back on the road to what we would class as proper eating and its a gradual process i'm afraid in most cases.
Hope the blog helps as a section on dietry/eating foods etc and I would also advide speaking to your dietician who are all part of the support on the road to recovery

Hope helps but feel free to ask away if I can help with anything at at, I am more than happy to do so.

radiotherapythroat.home.blog

kind regards

Ian

Hi Matt,

Well done for getting this far. The 2 weeks either side of the end of my treatment were my worst so hopefully you are over the worst. Ian just beat me to it! I was going to suggest you read his blog.

From reading historical posts on this thread, it is fair to say that everyone is different. I feel lucky as, as well as reading stories of others, the consultant and dietitian have told me that my progress has been ahead of the curve. 
I am 10 weeks post treatment and have been in Czech for a month (Czech wife). We have done a few 50km bike rides and a lot of walks and I'm feeling much better. I have to drink constantly and investing in a hydration backpack is the best thing I have done!

I'm eating sensibly. I can eat most things but foods with a lot of sauce are ideal. My saliva is coming back but still a way to go and my taste buds are still off.

Will send you a msg with some more detail.

Robert

Hi. Chrissy oh dear sorry to hear re dilation. As for thyroid check if you have a cancer nurse give her a call sm sure she can arrange  one I know mine can. It can't hurt to ask for refferal know Vin Paleri is doing amazing surgery. 
please kerp in touch 

Hugs Hazel xx

Hi Matt well done on completing treatment it's still early days for you we are all different my blog might help you. 
www.Radioactiveraz.wordpress.com

I'm almost 4years post radiotherapy for tonsil cancer with several affected lymph nodes 

Hazel 

Oh yes. We watched a prog "Super surgeons". He was on it. 
I must get on his consultants case!!!! 

thank you 

Chrissy xx