Hi Ian

i am 7 weeks post radiotherapy hang

In there it’s a tough road I did 35 radiotherapy sessions 2 chemotherapy.

i have also done a blog www.radioactiveraz.wordpress.com takes u from diagnosis to present day.newlymarried on here is good if u have any questions just shout out. Mine was HPV 16 + cancer of right  tonsil and lymph nodes 

hazel aka RadioactiveRaz 

good luck 

Hi hazel I see this was 2018 I was wondering how you got on and could tell me the treatment you went through , I have just been diagnosed with tonsil cancer and going for my first CT scan tomorrow any info would be gratefully accepted.

I couldn't have put this any better,although I'm 1 month behind your partner things have improved gradually, I can now eat crisps although I have my water next to me, last night I had my first curry, tongue/mouth tingled and I only eat half of it but another step in the right direction, for the guys who have now finished treatment you will get there,follow the advice of people on here I did and still do, but you have to be patient 

Hi Chrissy had your hubby had his dilation done yet ? Was thinking about him and you today. 
hugs Hazel xx

Hi 

yes Hubby did have the procedure. Unfortunately it hadn't works. He was told it might take 2-3 procedures to work! 
 

thank you 

Hi Chrissy. Bug not what you want to hear was hoping it worked first time for him fingers x for next time .

Hugs Hazel x

Oh wise one  
It's a darn shame it didn't work first time. But hopeful it will work out in the end.

Thank you Hazel

Chrissy x 

I'm sending Yoda healing hugs for the next time .Reminding ebp everyine  this month to remember ti get thyroid bloods checked annually as well. I'm one of lucky ones at leastb50% of us end up of thyroxine for under active thyroid. Ask ent consultants for referral for bloods ti get TSH  and t4 levels  checked. 

hugs Hazel 

Hi all

Just popped on to say hi and although I haven't commented recently I just wanted to mention that if anyone is having problems with swallowing- gastric pain post treatment- my hubby is 6 years post chemoradiation and neck dissection please get it checked out. Apparently you are more susceptible to Barratts Oesophagus- can be a precursor to oesophageal cancer - if you've had chemoradiation for head and neck cancer - and my hubby has recently been diagnosed with it. Luckily its only a short segment and only needs monitoring at present but just to make everyone aware its a risk factor. 
 

Anyway just thought Id mention it in this thread as Hazel was reminding everyone to get their Thyroid levels checked - hubby has a damaged thyroid too ! But as he says he's still here and living life to the full which is the main thing.

Onwards and upwards 

Good luck everyone xx

Emma 

Hi Emma Good reminder. 
scarily  it's 4 years since my treatment started you were my rock then and still best friends. 
Hazel x

Hi All,

I had a CT on Thurs and was told Friday, subject to the PET scan in September, that the tumour has been eradicated and the lymph nodes are back to normal

I'm 6 weeks post treatment and starting to eat better. I'm mostly off the shakes and managing soft easy to chew/swallow foods. Having to slow myself down a bit as I'll try to eat something that will damage my mouth/throat - I'm not one for patience!

Still short on saliva but taste buds are definitely coming back. I feel a bit guilty that I seem to be ahead of where others have been. Not going to go back to work until September so will continue to work on my recovery over the summer.

Ian, thanks for the response to the msg. I continue to go back and read where you and others where at this stage knowing where you are now :) Very helpful.

Hope everyone is coping with the heat. Enjoy the summer!
 

Regards,

Robert 

Yes I mentioned here before , its affected my thyroid, subclinical no meds so far. And acid worse so got ENT  to look at esophagus too.  Its serious treatment  this. Latest scan fine, 3 scans to go till 5 years are up.  I never assume anything. Its changed me mentally. This forum helped / helps. Onwards  mis amigos xx

Yes I mentioned here before , its affected my thyroid, subclinical no meds so far. And acid worse so got ENT  to look at esophagus too.  Its serious treatment  this. Latest scan fine, 3 scans to go till 5 years are up.  I never assume anything. Its changed me mentally. This forum helped / helps. Onwards  mis amigos xx