Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  • Hi Angie,

    First of all,, that s good that you are able to keep a positive attitude as I personally believe that hels and will styand you in good stead, espacially in recovery

    Tonsil - had as well and that was tough and damn painful recovery
    Ive posed a link to my blog beloew and you will see that I had teeth extraction as well before treatment. so yup a few little starters before the main course.

    As for tips, have a read of my blog if you get a chance as this will give some indication along with timelises and tips collected alomng the way. Hazel also has a blog and between us, they are probably quite a good reference point and have helped so many.

    My main mantra was to drink as much water as you can then drink some more.
    I personally beieve one of the best medications was water and it keeps you hydrated as well as contunual use of throat muscles and aids recovery.

    There are no real quick fixes on recovery but on the positive side, there is light at the end of the tunnel and you will get through it and come through the other end. It is one of the toughest treatments and recovery but one with the highest rate of success and cure so I always focussed on that as that quote came from my consultant,

    Good luck to all going thought treatment and recovery and remember so many of us on here understand what you are going throgh or about to go through and are always here to help.

    Try and stay as positive as you can and just ask away anything at all or if I can helpm in anyway even happy to have 1-1 chat.

    radiotherapythroat.home.blog

    regards

    Ian

     

     

     

     

     

     

     

     

     

  • Hi Angiie welcome to the club none of us wanted to join.,your cancer seems very similar to mine.  As Ian has said it all my link to blog us www.radioactiveraz.Wordpress.com. 
    many questions just ask. Tge mask making isn't as bad as it senna the nurses are very slick. Positive mental attitude got me through it plus lots of water. Am now 40 months post radiotherapy and living my life. 
    Hazel xx

  • Thankyou all for your replies

    nervous is an understatement but I'm sure very sure that I will get through this like all of you

    my mask is being done Monday and teeth checked Tuesday it's been a rollercoaster ever since I found out about this but hats off to ENT who have been on the ball from Day one 

    there was talk of laser treatment but they have decided against this

    I had my good tonsil removed last Wednesday and still recovering from this( god the pain) probably got worse to come 

    not sure now when my treatment will start but they said something about 3weeks 

    im going to be having chemo once a week and radiotherapy Monday to Friday 
    im not sure if it's more in my lymph nodes cause he said something about maybe not needing a peg as the cancer is small in tonsil

    but the radiotherapy he is going to do both sides of me neck

     

  • Hi yes after mask made the radiotherapy technician s do their magic  planning. We are all different there's no one size fits all treatment so planning us meticulously done. I didn't have a peg but  agreed to a n g feeding tube if needed end of week 3 I needed it. Kept in for 6 weeks in total. Was a lifesaver as all medications went via n g tube . I too was radiated on both sides one side more than the other. It's hard but you'll get there

    Hazel. 
     

  • Hello Angie

    My husband's cancer was picked up by his dentist, during a check up. He had no symptoms! 
    He is starting week 6 of 7 next week. Not going to lie he's now really (I can't say tired because that isn't what it is) completely fatigued. We go to the hospital every weekday, a 40 mile round trip. We are at Kent and Canterbury hospital  

    Use the toothpaste that will be prescribed for you and do your jaw exercises. 
    After each use of syringe (for feeds and flushes in to your peg) wash and let air dry, cover with a paper towel. You might like to get some micro pour tape (50p in sainsburys) to tape your peg tube out if the way  

    Siliva and phlegm will become very very sticky towards the last few weeks. I cut down milk bottles so for my husband could spit in (not nice I know)

    You might have days when you feel you can't do it anymore. Be strong these feelings will pass. 
    I'm hoping as you are a single parent that you have some family around to give you support.treatment for this cancer has great outcomes. Remember that! 
     

    Keep strong Chrissy B 

     


     

  • Thankyou for your reply it's so sad that your hospital is so far away im Lucky mines just a short drive away 

    I'm sorry to hear about your husband but sounds like he as you helping him all the way 

    I have a more in-depth appointment Monday regarding my treatment so hopefully will be told about toothpaste and any thing else I might need 

    I was told I might not need a Peg but it depends on me how I adapt to it all and plus the cancer is more in lymph nodes then tonsil but I have been told so much over the past 6weeks I might have got it wrong 

    my main worry at the moment is being sick ( as I have a phobia of this ) and plus choking as he said it Affect my swallowing I know there are alot more side effects but pain I hope I can deal with 

    my children are 25 ,17,16 and will Help me through  this and I have a very good partner and family around me 

    my partner is hoping to be able to stay but they depends on my Financial situation

    i Hope your husband is feeling ok and getting there x

     

     

  •  My husband has never been sick nor feels it, luckily enough. So hope you aren't either. The sickness tablets they gave him made him constipated so he gave them up a bit quick. 
    The only effects he gets after chemo is the next day he gets hiccups!! Besides being wacked out.m for the next few days. 
    If you don't need a peg, that's fab news. 
    gid luck tomorrow at your app Let us know how you get on 

    Chris x 

  • Aww bless him this illness is so very sad

    Fingers crossed for me then

    I really just need to wait and see what I'm like cause I know I've been told everyone is different but you always look at the worse

    wishing my life away I will be just glad when it's all over

    My daughter gets married in June so will keep focusing on that X 

     

  • Hi we are all different all react differently. I was lucky never was sick just took the medication as directed. If you do feel sick as for different meds we are all started on the cheapest ones. I flew to Spain for 3 weeks 8 weeks after treatment. I found it was good to have a focus point which your daughters wedding will be 

    Hazel xx

  • Absolutely, everyone is different. 
    I have two friends who have had the same treatment. They have had different and some of the same symptoms through treatment. 
    Wow a wedding to look forward too. Congratulations. 
    You'll be on the mend by then I'm sure.

    Chris x