Hi Graeme 

include you in the weath if shared knowledge we all have ! 

Nithing wrong with prayers but I took help wherever I could get it including carrying a bottle of holy water from Lourdes with me.My friend in York her vicar included me in prayers every week ,In the words of Tesco every little helps.

Hope you are well ,as u may have guessed our flights got cancelled but fingers x for ferry mid September 

Hope you are well Hazel x

Hi

This was taken from Gov website and seems like you should be able to drive with morphine, however,

If in doubt always talk to the professionals

Prescription medicines

It’s illegal in England, Scotland and Wales to drive with legal drugs in your body if it impairs your driving.

It’s an offence to drive if you have over the specified limits of certain drugs in your blood and you have not been prescribed them.

Talk to your doctor about whether you should drive if you’ve been prescribed any of the following drugs:

amphetamine, for example dexamphetamine or selegiline

clonazepam

diazepam

flunitrazepam

lorazepam

methadone

morphine or opiate and opioid-based drugs, for example codeine, tramadol or fentanyl

oxazepam

temazepam

You can drive after taking these drugs if:

you’ve been prescribed them and followed advice on how to take them by a healthcare professional

they are not causing you to be unfit to drive even if you’re above the specified limits

hope helps

regards

ian

Hi Karen

Ok week 3 of treatment I would suggest that you need to speak to your support team and get your pain medication assessed. 

I was on oral morphine week 3 then that was upped to MST morphine tablets that you take every 12 hours so contantly in your system.

Pain management during treatment can be controlled and co codamol in my view would certainly not be suffiecient at this stage.
The first couple of weeks are generally fine and not much happening but it does just to impact and have an effect from week 3.

Please phone them/meet them urgently and they can sort out increased pain medication today.

Not many will sustain treatment and recovery period without proper pain medication and the doses will be as you required.

I have my mantra of drinking as much water as possible and even small sips often helps. It keeps you hydrated and also uses throat muscles.

Please let me know how you get on Karen but please speak with support team as they can prescribe medication just now without going through GP.

regards

Ian

HI karen

You will get through it but it is a long and hard road I'm sorry to say.  My partner had real problems with eating and swallowing eventually having a drip in because he was struggling so much and losing too much weight (too stubborn to let them know how much pain he was in and didnt want to stay in hospital any longer).  As Ian advises speak to your support team ASAP and ask for medication that will help ie morphine and keep trying to sip water.

hope you get sorted as soon as possible

Michelle

Hi Karen

just confirming what Ian has said yiu need to contact someone  ASAP at my worst I was on 8 co codomol a day taking laxido to make sure  I went to loo that’s vital plus up  to 40 mil of oramorph you need a constant amount of painkillers in your system. Do you have a peg or n g feeding tube if not sounds like you May need one push for it if you are struggling now you could be like me I had n g tube in for a total of 45 days .If they say  no  to covid 19 reluctant to give it you do push for it I know plenty who have struggled but eventually hospitals have given them n g tubes. 

Dont give up  it’s a mere blip in yiur life’s albeit not a pleasant one but don’t try and struggle as for next few weeks the pain will be there . Glad  you got toothbrushes ask hospital for loan if a nebuliser as unfortunately yiur next problem will probably we the onset of mucus copious amounts of it. Sorry to be bearer of bad news but keep at it .Do yiu have anyone’s who can move in with yiu to helpmyiu especially driving to hospital ? It’s such a sad time for you as well sending a hug your way know it’s no help .

Hazel xx

so sorry for your loss , so sad to have the new and then lose our husband ,  sending a virual hug and a prayer.  A friend at work got a mass card in Ireland for my partner and he kept it with him all the time as Hazel and Tesco say every little helps  Just knowing people care defo helps.

Hi Karen we are all a bit different in terms of diagnosis but as already said ask someone from your team about pain relief, I found the Difflam that I was given was very good it anaesthatises your throat prior to eating or for general pain control, if you cant swallow solids your team should advise that you go onto the high calorie drink suppliments..cant remember the name? At least then you are getting some nutrition.

Dave

Thank you all once again. My main issue is swallowing. I can tolerate the sore mouth and blistered skin but I virtually screamed the house down this morning when I swallowed first thing in the        morning. Feeding tube has been discussed but they are saying last resort. Because of stomach complications it would have to go up my nose and into my stomach that way. The though of havinf a tube touch my sore throat fills me with dread. The numbing Oxetacaine mouthwash helps a tiny bit but not enough.

All good advice.  Thank you again and Hazel, my nephew has moved in to look after me. I am lucky to have him

Karen

Hi everyone,

I am new on this chat so I just wanted to introduce myself in a few words.

My partner was diagnosed with oral cancer in February, spread to 2 lymph nodes. He went through neck dissection + 6 weeks radiotherapy + 2 rounds of chemo (was supposed to have 3 but his kidneys couldn't handle it). Now is the waiting game of going for a check up every 2 months for the next 2 years...

Everybody on here seems to be doing so well despite these such difficult circumstances!

There are 2 questions I'd like to ask:

- Who here has gone through a cancer that was not HPV? My partner is HPV negative and from my understanding it does affect the prognosis

- Any dietary recommendations? You read so many contradictory information, that sugar, fried food should be avoided...

Thank you and all the best

L