Hi there,

Many thanks Emma & Hazel for positive comments.

Well my first week is over and touch wood - so far so good.

In a routine now and all my appoitments are 9.00am which I prefer.

I am literally around 8 mins from house to hospital and have a free daily car park ticket and park right outside dept.
Have been taken on time and Wed appt was taken at 8.58 and back in car 9.15!

Very slick operation and staff are brilliant.
Made a large batch of home made tablet for the staff Thursday which they appreciated and seen advanced nurse practioner who advised of potential side effects to come.
I'm sure they will but will deal with them as treatment goes on.

So week 1 has been absolutely fine with no real side effects and apart from little more tired, I just have a power napo and fine again.
Will update end week 2 and hope more of the same.

Best wishes to all

kind regards
ian

Hi there,

Well week 2 is now over and again so far so good.

Little more tired and would say started to notice more mucas but that apart I have not really felt any discomfort or noticable side effects.

Aware goinf into week 3 next and potentially when more sied effects will kick in but will have to deal with as and when they arise.
Will post another weekly update next week , good and bad and hope helps someone in similar circumstances.
Happy to answer any questions based on my own personal journey.

Staff in radiotherpay are wonderful and consider it a blessing we have the wonderful NHS.
Not always right but by and large wonderful system and people and when you consider the cost of treatments we do not have to worry about the cost or health insurance etc over and above the diagnosis.

Kind regards to all
ian

Ah! Thanks Hazel. Thanks for advice. I'm going to get the mouth stuff you recommended and read your blog. Can't get motivated to get out of bed yet. 
cheers

Karen 

Hi Karen

I have also attached my blog that you might find helpful along with Hazels.

I doubt it would be advisable to drive while on morphine as one of the side effects would be drowsiness. I would check as I am sure it will be on one of the banned drugs re new driving laws.

I'm no expert but would probbably advise against, but check even with consultant or support team who might be able to advise better. I drove while on morphine a couple years ago and I seemed fine.

And yup, stay as positive as you can as that goes a long way in treatment and recovery.

Here to help anyway we can if you need it.

radiotherapythroat.home.blog

regards

Ian

Hi Karen you have come to the right place no one knows more about this than Hazel, I asked if I could drive during treatment and was told yes, I was given Pregabalin, Oramorph and liquid Paracetamol but i didnt get on with Oramorph because it gave me chronic constipation so i didnt take it for long.

Stay postive weve had one of the most treatable cancers.

Dave

Hi Ian

Thanks for your reply. I'm taking on all the advice I can get. I will certainly read your blog. I want to try and stay off morphine as long as possible (although I won't be a martyr  to pain) so that I can drive to treatment. Unfortunately my husband died two weeks ago and I am struggling on my own. The hospital is difficult to get to on public transport and Uber us £18 each way. 
Thanks again 

best wishes 

Karen

Thank you Dave

I am so pleased I joined this group. Getting lots of good advice and I have already acted on buying mouth stuff. 

I have all of the above apart from oramorph but should have it this week. The Pregablin I only take at night as it completely knocks me out. Good to know driving is ok. 
Trying to stay positive but my husband died two weeks ago. I started treatment the day he died! 
thank you again

best wishes

Karen
 

So sorry about your husband and then you get diagnosed too, life can be so cruel.

Dave

Oh Karen so sorry to hear about your hubby how cruel can life be . Just ask anything in here ine if us will get back to you. Between us all we are fountains of knowledge most of it useful . Do you have a Macmillann or cancer nurse assigned to you ? If so they are also pretty good.

sending a Sunday hug. If u want to send a friend request please do 

Hazel x

Adding my support Karen, devastating times for you, but on this thread, with Ian, Hazel and Dave, you've got the best support you can get. My heart goes out to you, in my prayers (many dont, i do, no harm in it ). Best wishes, Graeme.

Hi Graeme 

include you in the weath if shared knowledge we all have ! 

Nithing wrong with prayers but I took help wherever I could get it including carrying a bottle of holy water from Lourdes with me.My friend in York her vicar included me in prayers every week ,In the words of Tesco every little helps.

Hope you are well ,as u may have guessed our flights got cancelled but fingers x for ferry mid September 

Hope you are well Hazel x

Hi

This was taken from Gov website and seems like you should be able to drive with morphine, however,

If in doubt always talk to the professionals

Prescription medicines

It’s illegal in England, Scotland and Wales to drive with legal drugs in your body if it impairs your driving.

It’s an offence to drive if you have over the specified limits of certain drugs in your blood and you have not been prescribed them.

Talk to your doctor about whether you should drive if you’ve been prescribed any of the following drugs:

amphetamine, for example dexamphetamine or selegiline

clonazepam

diazepam

flunitrazepam

lorazepam

methadone

morphine or opiate and opioid-based drugs, for example codeine, tramadol or fentanyl

oxazepam

temazepam

You can drive after taking these drugs if:

you’ve been prescribed them and followed advice on how to take them by a healthcare professional

they are not causing you to be unfit to drive even if you’re above the specified limits

hope helps

regards

ian

Hi

This was taken from Gov website and seems like you should be able to drive with morphine, however,

If in doubt always talk to the professionals

Prescription medicines

It’s illegal in England, Scotland and Wales to drive with legal drugs in your body if it impairs your driving.

It’s an offence to drive if you have over the specified limits of certain drugs in your blood and you have not been prescribed them.

Talk to your doctor about whether you should drive if you’ve been prescribed any of the following drugs:

amphetamine, for example dexamphetamine or selegiline

clonazepam

diazepam

flunitrazepam

lorazepam

methadone

morphine or opiate and opioid-based drugs, for example codeine, tramadol or fentanyl

oxazepam

temazepam

You can drive after taking these drugs if:

you’ve been prescribed them and followed advice on how to take them by a healthcare professional

they are not causing you to be unfit to drive even if you’re above the specified limits

hope helps

regards

ian