Afternoon everyone I hope you are all well and still on track, another milestone day for me just over a year since my treatment ended, saw my Oncologist today and happy to report that he is happy with me all good, I don't see him now for two years. I will still have 2 month check ups with another doc and will be having a scan soon but no date yet. 
 

Dave

Hi Dave

good news ,scary how time is flying by I am now 17 month since  treatment finished. again strange how different areas of the n h s trusts work no more scans for me unless e n t guy thinks I need one .Plus my visits are every 3 months unrilm3 year mark then every 6 months .I wouldn’t even see oncologist am only  him yearly with me being a female with what was essentially a male cancer .Just make you wonder is it a postcode lottery with each trust working to their own budgets not that I am complaining my treatment was excellent.Glad to hear we are all doing so well ,in fact better than Man U we really need rid of Woodward but that’s another story.

Onward and upwards 

Hazel x

Yes time is flying it only feels like yesterday when I finished, bloody scary! Yes treatment varies but as long as we get there in the end and we all seem to be in this thread.

I don't fancy United at the weekend but who knows we are the only team to take points off them this season, still loads of work to do down there though.take care x

Will watch with bated breath on Sunday. Yes we are all touch wood doing really well xx

Spain beckons at end of next month  need some bike rides. 

Catch up soon

Hazel xx

Hi, I  wish  you  luck,  I  started radiotherapy  on Thursday and Friday then  weekend off then other full week, and  another four weeks to go, the  first  time of having  treatment after having the mask made  was  horrible I thought having the mask made was bad enough but when it came to treatment I  went in  to the  treatment room  a 63 year old man came out a four year old child crying and shaking the mask was so tight it was like drowning without water, from there on it was not so bad on a different machine, I have a couple more  appointments with the  first machine and I am  not  looking  forward  to  it. Moving on to how I am  now, its like having a lump in my throat no appetite and constant salty taste, all this after one week. Not  trying  to  worry  anyone  just  saying although I was warned about sore mouth and throat from side effects, going through it is another thing,  not  to  mention  the  pain  I got  from  having  the  tube fitted in  my  stomach  as  a  backup feeding sould I not  be  able  to  swallow.  One  more  thing  I am  on medication  for  acid reflux, which was working fine  but  since  radiation treatment my  acid reflux is  really bad.  I guess  it  is  going to get  worse  before it  gets  better.

i think that's a good idea, Ian

Im going to post a little blog on here when I start my chemo and radiotherapy in a few weeks to record my experience and side effects Everyone is different but I find it helpful to know that you are not alone in this bumpy ride.

Silver 

Hi, sorry you are suffering, you WILL get a lot of advice but the theme will be that you must eat, despite not feeling up to it.. The acid is maybe worse due to lack of food.

It is VITAL, somehow get 2500 calories in, the salty taste will pass.My worse days i forced in  2 x porridge, 2 full fat yoghurts, full fat milk.  Ice cream nice on pain, with high calories in it too, and top up with protein via meat/fish/eggs . It is tough but the shakes you may get are awful, and if you dont eat that tube will be the next route. Good luck we are with you on this thread, read it all if you havent yet.

So much  treatment,hats off to you I only  got  five  and  I've had  enough  after  one, thanks for the  encouragement. 

Givemehope,

Dig deep my friend and try and stay as positive as you can.

I repeated often here that although there are some challenges with treatment and espacially recovery,, there is light at the end of the tunnel and you will get through it.

My mantra on my blog was to drink as much water as possible and I personally beilieve one of the best medications. I note you have a back up with tube so you do have a route to get fuel in your body which is so important.

Also remember to speak to your support team if needed around pain as there is usually a solution to control and manage pain.

Ive listed my blog again for ease and should help raise awareness and timelines/tips etc if you have not come across or had the chance to read already.

radiotherapythroat.home.blog

We are all rootting for you and anothers who are on this journey and we are all willing to help in anyway we can. Only a message away for any help.

Onwards & Upwards
Ian