Hi MIchele think I will be joining him next time if it’s another locum ok they have to practice but maybe not on fragile dance patients throats !!! 

Good luck keep in touch just had some toast spread thickly with lurpack and 2 chocolates naughty but nice !

Hazel

Hi Hazel

Yep.the Dr was only young and didnt have a clue how to do it or tell.Tony what he should be doing !! Ie put your head right back .  

Will.do and you enjoy lol .  Thats what Tony missed chocolate still a bit of a struggle but he gives it a go 

Xx

Hi Michelle ditto .yhe chocolate inforce myself to eat just a little every night a girls for to have some pleasure. Lol crisps weee my downfall but they really don’t like my mouth anymore lol

good luck keep in touch 

Hazel 

Hi Hazel

Hope your feeling ok?  Tony's jaw is a lot better stayed away from hard food for a couple of days just nice and mushy instead.  He is seeing his own Dr next week and if still feeling sore will ask him about it then if no joy Christies .  See how it goes and make sure does his exercises. 

aka Gormo (set an account up for tony :) forgot I was on it  )

Hi

that’s good just keep an eye on and write things down to tell drs as brains go to mush when u get sat down. Me am ok had first acupuncture yesterday to see if saliva glands will kickstart. Too early to say if anything worked although last night I only had one glass of water and slept through until 7am ! During day though have had several dry spells so who knows. It is debilitating having limited saliva but could be worse 

keep in touch 

hazel

hazel 

Hi Hazel

Yes always tell.him write anythng down yoi think of.  Hows rhe acupunture going ?  Funny enough Tony woke up.on Sunday made up because he had salvia hasnt hapened since but fingers crossed you will all get it back.. 

His jaw is a little better but now his mouth is sore but not thruah feeling and tinnitius is playing up . 

Still its early days and he's come so far .

Hi 

thats good The Tonys saliva it really is debilitating it’s something we all take for granted but when it’s gone it’s horrid.

well I feel that the acupuncture has done something I deffo am drinking less during the night so not getting uo to go to loo or get more water. I even managed a full bag of crisps last night ok walkers plain multi pack size and it took me an hour and bybthe end if it mouth was dry but water soon resored it next one tomorrow so watch this space. 

Onwards and upwards

Hazel x

I am coming to the end of the two weeks post end of radiotherapy for Stage 2 laryngeal cancer and these two weeks have been grim.  

The increased level of mucus has been horrible and I have had some dreadful and frightening times, particularly in the morning, when I think I am literally drowning and can’t clear my air waves.  The hospital has lent me a nebuliser which has helped physically but also mentally as it has stopped me from panicking.

So many of the side effects have been far worse than I was told and the length of time for recovery far longer than I anticipated.    Constipation/ diarrhoea cycle has been difficult to manage.  I have not eaten or drunk anything for nearly six weeks other than nutritional drinks and water.  Have just discovered that a very weak brandy and soda gives a bit of a lift at the end of the day.  On these lovely summer evenings a glass of rose tastes like dishwater. 

When have people been able to eat properly?  Food tasted OK?

Maggie

s

Hi Maggie I am nearly a year post radiotherapy for tonsil cancer. You aren’t on your own re the 2 week period no one I know has been on the mend after 2 weeks some take longer some shorter. I am  ok soart from dry mouth and a 20 min nap most days all medications stopped in late January. Eating I have good day s n occasionally nightmare days. At 8 weeks we flew to Spain eating was difficult thankfully we’ve have a rental apartment there so I took Ensure high calories food supplements by Xmas I managed slowly most of my Xmas dinner. Meat most days can be challenging as fir alcohol no wsy my mouth is far to delicate. Haven’t had a drink since April last year just before diagnosis n no way can I see a drink anytime soon luckily I rarely drink so water is my tipple . I have a blog giving more details with links to others 

www.radioactiveraz.wordpress.com

just best in mind we are all different even though diagnosis n treatment s May be the same. 

Baby steps is the way to go sonedays 2 forward n 1 back but I am proof there’s light at the end of the tunnel . 

Hope this helps

hazel x