Hi ian. Just shows how we are all different I’ve had it down the last twice first one 9 may this year locum took me back weeks in terms of mouth sticking as gunk is bsck. Just got it right and this Thursday gunk bsck and irritatingly cough know it’s gunk as just had 20 mjn poertbnap and tongue  stuck to roof of mouth snd thsfd not happened since June. Like I often say  we are all the same but different. It’s Like when  foreign body is inserted my secretions come back to protect my throat if that makes sense.

H xx 

I know how you feel about feeling a bit abandoned Hazel I suppose we are just a number to the NHS, good to hear your weight is stable too. i`ll update my next appointment in a couple of weeks.

United have not done enough in the transfer market so far for me, need to get their skates on just 10 days left.

Dave 

Hi Dave ,yes we are on the plus side my oncologist does e mail me occasionally maybe coz I am special lol. Being one of 3% female student with predominantly male cancer of the gang who went through treatment together I am the only one who will be going back to see him all the other symptoms have been discharged back to local leval ,but he wants to see me yearly until year 5 .somthats in every thing , but yes we are now only a number,but when we needed it they were there for us !!!

fingers x Woodward gets his fingers out and money spent xx take care 

H x

Hi 

Just wanted to ask if anyone is still struggling with eating.   My partner last had treatment in December and slowly he is getting there but recently he has started to find it hard to eat and he has been getting a sharp pain in his jaw going upto his ear.

Good to hear everyone is still.doing well.

Thanks Michelle

Ps if Utd dont sign McGuire soon my partner will not be happy  

I still get some jaw ache but I can’t say it’s a big problem and hasn’t stopped me from eating, I had it rammed home to me how important the mouth exercises were from day one and did them 3 or 4 times a day even when I was in agony around Christmas but I think it did me a lot of good.

Dave

Hi MIchelle 

i have periods when eatings is still difficult as u type this today has been a bad calorie day somsat drinking a fresubin of all things oh how I hated those things during and after treatment but I realise niw we have to try  to maintain at least 2000 calories a day.i don’t have any jaw pain but like Dave’s says his he still doing jaw exercises i tend  to do them  in the car or whenever I am washing up. Our necks have taken a battering and the tendons are still prone to stiffness .

re then eatung make sure he hasn’t git oral thrush as that is very debilitating I can’t seem to get rid if it Flucozole and nystatin I seem immune to them both am back in salt and baking powder rinses. 

My eating problems this weekend are stemming from the camera up the nose and down then rhroat I suffer every time from extra mucus and swelling for a few weeks oh the joys of cancer  lol

Good luck

Hazel

Hi Michelle 

I would definitely get this checked out with your Consultant as we were told to watch out for ear pain. It’s probably nithing but always better to get it checked.

Best wishes

Emma xx

Hi Emma I have mentioned this to him as it had more or less gone but seems to have come back with a vengence

Thanks xx

Hi Dave 

Tony's pain has been that bad he has been unable to eat but I do think not keeping up with his exercises hasnt helped.   I'm going to tell him (nag) to keep.on with the exercises but as Emma said speak to.his consultant to just check it out .

Thanks