Hi Mo not silly at all it’s a walk in the dark for all of us hence this thread and our blogs hopefully help. On mine there is also s link to Ian aka Anchor 1707. The drugs will be given to you don’t worry  about that the n h s st cancer level are superb. 

Many questions just ask and please keep in touch you will find we aren’t medically trained but the old adage Been there bought the t shirt read the book etc. 

Try and enjoy weekend and one piece of advise eat as

 much as you can as u may loose weight 

hazel x

Hi Dian

My husband's treatment starts on Monday, so your partner's a week ahead of him.  

Glad things are going well so far - hopefully next week will too.

Hi laurs

grest news another one of the gang whose proof there’s light at the end of the tunnel.  Once again how different we all are Larry the lymph my lump was there for 6 weeks at least without growing but filled up another one just behind it’s strange how we’ve all had different story’s. 

Good luck with  coastguard duties hopefynot needed but am sure he will be 

please keep in touch if only to pass on our experience s to others. 

Hazel xx

Hi Laura,

Great stuff and really pleased to hear doiing so well after treatment.

He seems to be doing remarkably well and having a happy chappy so soon after treatment is another positive story on here and hopefully additional inspiration to others.

Please keep up posted and let us know results from MRI.

Onwards & Upwards

Ian

Just had a call to say Surgery booked for Thursday has been cancelled so back in limbo and waiting for a new date.  Think I might have to break into my wine collection.  I hardly ever drink but this is quite stressful.  Been eating like a horse as advised and feel full and fat ready for the op.  Have my shifts covered at work, shopping done all stuff for hospital stay ready to pack, started the washing with that awful Hibiscrub, now feel lost...

Thank you for all the information on your posts, although initially I am down for surgery was warned I might need Radiotherapy afterwards, think I dread that more than the surgery although I have no idea what i will wake up with possibly a stoma if they cannot save enough of the Epiglottis.  Good luck to all currently having the treatment.

Mo

Hi Mo oh no hope you get a new date soon .In meanwhile  keep eating, won’t say keep off the wine just don’t be very do it. 

Keep in touch when you get new date 

hazel

Evening everyone , I hope this post finds you all well, as well as can be expected that is. 

I though I would give you a little update on Chris progress since his last treatment 10 days ago.

its been pretty rough , in his words “worse than the treatment”.

He has had the worst dry cough since end of treatment , day and night it’s awful and on top of a very sore throat.

Having trouble eating anything lumpy & appetite is low and has lost a little more weight.

Is having a hard time breathing and his chest is rattled, but at the hospital today they said that there isn’t any sign  of infection and he has been put on a high course of steroids of the next 7 days. Not ideal for a type 1 diabetic , but sometimes you need help. 

He was given thickener today for any fluids he has ( he has a lot) as his fluids are going down his food pipe and not the other pipe , (other pipe?) I didn’t know this was a thing so may google unless words of wisdom here can help. 

He uses the nebuliser a lot , not too sure if it actually helps as it makes him cough but he is preserving.

he gave up in the morphine and gave it all back today , just sticking to Co - Codamol . 

Itching to get back to work poor fella ... Has to completely rest for 7 days.

fingers crossed things start to improve ...

hugs Ginny x x

JHi Ginny. All part of the ups n downs Rev the morphine didn’t he gradually reduce it ? As what I wasn’t told you have to wean your self off I didn1 mil at a time don’t mean to scare you. Unfortunately the 10-up To a bit longer is bad answer your body is at it’s maximum intake if Radiotherapy chemo and yiueve just got to go with the long slow release. 

On a plus point we are on family holiday in Wales sonthere is light at the end if the tunnel. Ok still have. Saliva issues and a 20 min nap every day otherwise am back to as near normal as I can be. Meat still an issue but fish apart from haddock is fine vegetable s no problem fruit varies. 

Try and keep as much liquid in him as yiu can. Wonder if they mean the liquid is going into the pipe that should be onky for air to lungs ? And nit the food pipe just a thought be careful as that’s how lung infections can occur. I may be wrong not medical trained

thanks for update takencare

h x

Hi Ginny 

This part is definitely an ordeal and tougher than the actual treatment. My hubby got admitted at day 10 post treatment with severe vomiting and nausea so we know how hard it is but hopefully each day from now on will see him slightly improved. The thickner for his drinks is used as the radiotherapy can temporarily damage the swallow process which means that the epiglottis doesnt close effectively allowing some liquid to trickle down the trachea - tube to the lungs - rather than the oesophagus - food pipe. If fluid enters the trachea it then filters down into the lungs putting hubby at risk of aspiration pneumonia. The thickner makes the fluid eadier for the throat to control and swallow effectively. Be careful with foods such as jelly ,ice ream and yogurt as these melt into thin liquids as well. aYou can put the thickner in soups as well as drinks but you may have noticed that the warmer the liquid the less thickner you need. 

Hope this helps a bit- my hubby still has a problem every now and again 3 years on - he calls it his lazy swallow and he has to make sure he actively swallows rather than just letting it happen.

best wishes 

Emma