Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

Parents
  • hi Ian 

    my hubby finished his treatment Nov the only thing that helped him through 6 wks was being on steroids as it helped keep inflammation down n carry on eating he went for ct scan today mri next thurs an we see doc on 13 fingers crossed treatment has worked good luck on your journey x

    mandy 

  • Hi mandy

    thank you for your message and like yourself hope you get good news when you see doc and will cross some extra fingures for you.

    and im sure i will get past this fatigue and lack appetite soon

    regards

    ian

  • Hi Hazel 

    noticed you put link on blog so thanks for that and a  couple have already been in touch

    I like your new hairstyle btw and it suits you - looking all glam now and supermodel ish

    So we now have Superdave and HotHazel..Great characters in this little club !

    Sorry to hear of your appointment drama but glad you sorted.

    And yup do you know what, I have taken some inspiration from Superdave and forced myself out this morning. Went into other village and got hair cut, then picked up medications then went shopping.
    Will force myself out tomorrow again.Gave myself a slap in the face with a wet fish this morning and determined to up the ensures again ( i've been slipping, me bad) and getting out more. Even if Im tired im tired anyways. Think im short of a game of football but I do actually feel I should do more and I can honestly say it was a little wake up after reading how well Dave is doing ( so thanks Dave)
    Will see how I get on but probably not helping myself by not  taking all my ensures and meals so what can I expect and just needed a little wake up call. Hopefully next week will have me on better terms

    If I picked you up correctly do you still struggle with getting prescriptions from your GP?
    Mine does not bat an eyelid and ive just picked up 168 bottles Ensure. As for mouthwash I get Caphasol tablets and 4 bottles of Difflam every 4 weeks so they give me a bottle a week to use.I noticed in the chemist Difflam mouthwash is about £8.60 a bottle ! but in anycase strange no chemist around you stocks as its on shelf in mine. Even so,can you not get an alternative prescribed?

    At least you have some sunshine to look worward to and hope you really enjoy ( AGAIN LOL )

    ian x

  • That’s the spirit Ian push yourself more if your body will allow it..do it and stay positive.

     

    Dave

  • Hazel where do we stand with travel insurance once you get the all clear?

     

    Dave

  • Hi Ian. Good lad it’s a vicious circle a little exercise will make u feel better I am niw down to a 20 min nap around lunchtime. 

    Drs getting better but all ensures have been taken off prescription anyway am down to mouthwash’s and my head blood pressure little tablet 

    just attended a seminar run. Y Macmillan compared by to mist if them I am Usain Bolt Dave deffo superman and you Seb Coe unwound Ben surprised how many 12 month down line still on peg or purée food. Just a thought purées veg ? For you.

     

    no worries te blog as Tesco say every little helps. 

    Consultant has to see me for scope up nose even worse she attended clinic yesterday so looks like I was bumped !!!!!!!!!!!!!  So goodnight them they have 4 days to sort out new appointments or i a month off 

     

    watch this space 

     

    h 

  • OHi use b u pa coz I need a 99:day cover. They don’t cover the cancer but don’t intend getting it again !  I know a couple who rung boots up and gotva 2 week she cover declared the cancer for £49 don't try n do it  online as you have e to be screened but it’s nit as bad as u think price wise. For our joint yearly policy we pay £245 

     

    agree re football need to spend some pennies mind un£19 mil to get rid of Jose !!!!!!

     Re my hospital have put info on post tomIan I am not best pleased at min looks like inwas bumped off yesterday’s coz I have finished treatment !

     

    h x

  • Hi Ian amd Dave

    got an appointment finally sorted Thursday at 1530;cutting it fine but. ENT need to do a camera up the nose to check the throat to make sure no swellings  fiberous  tendons etc somfair enough butbstill not happy that I was bumped off yesterday’s clinic .

     

    dave new sweet for you to try  Hariobos  tangfastics they certainly get the saliva buds going justbremember to brush teeth afterwards.

     

    Ian new biscuit for you to   Try mini Jaffa cakes go down quite well even without a cuppa to dunk ! Progress baby steps lol

    h

  • nice one Hazel and glad sorted before your holiday

    gonna try the jaffa cakes and cuppa tea.used to love them and forgot all about them - thanks

    ian 

  • Glad you got your appointment sorted Hazel but bad that you got bumped off. 

    My sweet tooth is hit and miss now I used to be snacking between meals all the time biscuits crisps and nuts..now I have the odd desert or small cake the urge just isnt there now, maybe it will come back? 

     

    Dave

  • Hi Dave

    i miss crisps nuts n snack things like you it’s small meals n nothing in between I occasionally dunk a biscuit was never a dunked but inkybway I can get them down. Will report back on camera up nose can’t wait haven had that done since last May. Oncologist never saw the need to do it. 

    Have u tried xymelts from mouth lozenges company for dry mouth in night you stick one romside if gum Andy they melt away I used them for a while well half of one at a time 

    Ole ole ole tough game Monday 

     

    h x

  • Im having the camera up the nose next thursday Hazel Iv had it twice already the first time the doc sprayed my nose with numbing spray the second time my now regular doc just shoved it up without any spray like he was clearing the chimney and it made my eyes water a bit but it wasnt that bad, its just something they need to do. 

    Im not looking forward to the Chelsea game we dont ususally come away from there with anything, maybe Ole can change all that though.

    Dave 

Reply
  • Im having the camera up the nose next thursday Hazel Iv had it twice already the first time the doc sprayed my nose with numbing spray the second time my now regular doc just shoved it up without any spray like he was clearing the chimney and it made my eyes water a bit but it wasnt that bad, its just something they need to do. 

    Im not looking forward to the Chelsea game we dont ususally come away from there with anything, maybe Ole can change all that though.

    Dave 

Children