Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

Parents
  • hi Ian 

    my hubby finished his treatment Nov the only thing that helped him through 6 wks was being on steroids as it helped keep inflammation down n carry on eating he went for ct scan today mri next thurs an we see doc on 13 fingers crossed treatment has worked good luck on your journey x

    mandy 

  • Hi mandy

    thank you for your message and like yourself hope you get good news when you see doc and will cross some extra fingures for you.

    and im sure i will get past this fatigue and lack appetite soon

    regards

    ian

  • Hi Ian

    comeon lad we are all routing for you. 

    Fatiugue sucks try a little walk tomend if streetbthis weekend just for me please. 

    Have put your blog out there and know a few have read it  keep it up.

    my news coating yesterdaybjust closing door for ent consultant at local hospital phone rang clinic cancelled to say I wasn’t happy understatement we sail to Spain next Friday come he’ll or high water oncologist gave me his blessing so others can sort it out. 

    Woke up this am to local dr appointment cancelled anyine see a theme here all y 7;weeks at the cancer unit nothing ever cancelled or follow iOS getbto local level n it sucks 

    just spent 45 mins in to get p to be told nothing for 2 weeks so pulled cancer card why donyou think I wanted to see dr today good if my health ive waited 10;days for this appointment Lo n behold the Red Sea parted a miracle happened come up at 1010. Don’t get me wrong I know drs can fall ill but have some common sense. 

    Sermon over.

    elbow sounds painful I can struggle swallowing a paracetamol some morning coz of gunk so good luck with horse tablets. 

    Top ice cream with ensure over top and a xurlynwurly broken up over it ?

    make it look pretty n eat with your eyes John says I just said easynfir him 

    poached egg on toast 

    baked egg and cheese in oven 

     

    like unsay until yiuve been therebits blooming hard to explain 

    week 25 for me 

    come in suoerdave send some krypton it over.

    will update about my hosital saga am having problems here obtaining my mouthwas no chemist have ut in and at &11 a bottle going to have to be amazon good job I don’t drink spending all my money in mouthwashes  lol

    h x

     

  • Hi superman Dave

    have put my saga in a post to ian might give u a laugh 

    re stimulating saliva glands xitol chewing gum basically any sugar free gum helps along with sugar free sweets it does work to kickstart them I am niw getting 6/7;hours straight sleep without waking for a drink and when I do onky slight sticky mouth dontbget me weongbyhe saliva is thick but at least it’s there and each day getting better. 

    Big game on Monday come on Ole Ole we lost coverage of the Pais game so what happened ?

     

    onward n uoward

     

    Hazsl spain beckons next Friday warmth  n my bike  bliss 

     

    H x

  • Hi Hazel Im glad you got your appointment sorted out, thanks for the Chewing gum tips Iv been trying Werthers but its a short term fix with everything Iv tried so far.

    The game against PSG was a disaster, that squad isnt good enough Im afraid and needs putting right in the summer, god knows why they are giving players like Jones a contract extension? but what do I know?  

    Nice that you`ve got the Spain trip to look forward to, we are just waiting  until I get my scan results which will probably be early May then we will be off to Skiathos :)

     

    Dave

  • Hi Hazel 

    noticed you put link on blog so thanks for that and a  couple have already been in touch

    I like your new hairstyle btw and it suits you - looking all glam now and supermodel ish

    So we now have Superdave and HotHazel..Great characters in this little club !

    Sorry to hear of your appointment drama but glad you sorted.

    And yup do you know what, I have taken some inspiration from Superdave and forced myself out this morning. Went into other village and got hair cut, then picked up medications then went shopping.
    Will force myself out tomorrow again.Gave myself a slap in the face with a wet fish this morning and determined to up the ensures again ( i've been slipping, me bad) and getting out more. Even if Im tired im tired anyways. Think im short of a game of football but I do actually feel I should do more and I can honestly say it was a little wake up after reading how well Dave is doing ( so thanks Dave)
    Will see how I get on but probably not helping myself by not  taking all my ensures and meals so what can I expect and just needed a little wake up call. Hopefully next week will have me on better terms

    If I picked you up correctly do you still struggle with getting prescriptions from your GP?
    Mine does not bat an eyelid and ive just picked up 168 bottles Ensure. As for mouthwash I get Caphasol tablets and 4 bottles of Difflam every 4 weeks so they give me a bottle a week to use.I noticed in the chemist Difflam mouthwash is about £8.60 a bottle ! but in anycase strange no chemist around you stocks as its on shelf in mine. Even so,can you not get an alternative prescribed?

    At least you have some sunshine to look worward to and hope you really enjoy ( AGAIN LOL )

    ian x

  • That’s the spirit Ian push yourself more if your body will allow it..do it and stay positive.

     

    Dave

  • Hazel where do we stand with travel insurance once you get the all clear?

     

    Dave

  • Hi Ian. Good lad it’s a vicious circle a little exercise will make u feel better I am niw down to a 20 min nap around lunchtime. 

    Drs getting better but all ensures have been taken off prescription anyway am down to mouthwash’s and my head blood pressure little tablet 

    just attended a seminar run. Y Macmillan compared by to mist if them I am Usain Bolt Dave deffo superman and you Seb Coe unwound Ben surprised how many 12 month down line still on peg or purée food. Just a thought purées veg ? For you.

     

    no worries te blog as Tesco say every little helps. 

    Consultant has to see me for scope up nose even worse she attended clinic yesterday so looks like I was bumped !!!!!!!!!!!!!  So goodnight them they have 4 days to sort out new appointments or i a month off 

     

    watch this space 

     

    h 

  • OHi use b u pa coz I need a 99:day cover. They don’t cover the cancer but don’t intend getting it again !  I know a couple who rung boots up and gotva 2 week she cover declared the cancer for £49 don't try n do it  online as you have e to be screened but it’s nit as bad as u think price wise. For our joint yearly policy we pay £245 

     

    agree re football need to spend some pennies mind un£19 mil to get rid of Jose !!!!!!

     Re my hospital have put info on post tomIan I am not best pleased at min looks like inwas bumped off yesterday’s coz I have finished treatment !

     

    h x

  • Hi Ian amd Dave

    got an appointment finally sorted Thursday at 1530;cutting it fine but. ENT need to do a camera up the nose to check the throat to make sure no swellings  fiberous  tendons etc somfair enough butbstill not happy that I was bumped off yesterday’s clinic .

     

    dave new sweet for you to try  Hariobos  tangfastics they certainly get the saliva buds going justbremember to brush teeth afterwards.

     

    Ian new biscuit for you to   Try mini Jaffa cakes go down quite well even without a cuppa to dunk ! Progress baby steps lol

    h

  • nice one Hazel and glad sorted before your holiday

    gonna try the jaffa cakes and cuppa tea.used to love them and forgot all about them - thanks

    ian 

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