Hi Ian

my husband has larynx cancer an just finished 6 weeks radiotherapy on fri it’s been long six weeks an he has done really well as when he first started they told us the downs I wrote him off week two but he still got his voice just about an kept his weight keep on top of your pain his neck is really sore now and got sore throat but they said next two weeks will be tough good luck with your treatment

mansy steve

hi mandy just git to hang on to things willgetbbetter I am 10 weeks post radio,eatingbstill difficukybthank god for high calories drinks but little by little am eating and regaining strength 

I have written a blog if yiu want to read the ups  and down s feel free to ask any questions between us we all help each other

www.radioactiveraz.wordpress.com

hazel 

Thanks for the words of encouragement I`ll up my water intake, Im doing the mouthwashes after eating and every two hours as I was told by the nurses, Iv got a horrible taste all the time now and food just doesent appeal... from a food lover thats quite a statement. Iv got a white coating around my Uvula (dangly thing) and its swollen..hope its not thrush..definatley feeling sorry for myself now..:)

Dave 

Hi Dave

umm could well ne thrush it’s quite common no matter how religious we are at mouth cleaning the tongue ceases to donits job until u can’t use it we have no idea how much work it does do.

ive had oral thrush on and iff all the way through and my mouth accordingbtindrs is one if the cleanest they had seen.

i bought iff Amazon 3 toothbrushes curaprox 5400 soft bristles they really do work think about £10 for 3 .if you find the duraphat toothpaste too strong which I did changebti mildest sensodeyne you can get.

re thrush keep an eye on it ask in Monday they should prescribe Nystatin for you , thrush can make it painful to eat and drink which is the last thing you want.

i am 15 weeks post radio and still having some issues but lunchbtodaybwas a bacon sandwich in a panini bliss ,there’s is light at the end if the tunnel.

just don’t suffer in silence see the radiotherapy team in Monday. Are you having chemo as well ? How many mire radiotherapy I had 35 sessions 

Try toneat as it’s possible thatbin a few weeks time yiu can’t ans yiu need to keep your weight in

take care Hazel

Hi Hazel im on the duraphat toothpaste and soft brushes it seems fine for me, Im having 30 Radio sessions and have 20 left to go , no chemo as I caught it early, i`ll mention my problems on monday or Iv got a hotline number  if  needed too. I know about keeping my weight up in fact I put some on in the first week to get ahead of the inivitable loss.

This bloody desease consumes  your every waking hour and half the night, sorry for the moaning Im feeling miserable today but im grateful for the help and treatment there are people 10 times worse than me.

Dave

Hi Dave 

it certainky does itsbone of my favourite sayings when something else pops up. U are entiteles to feel how u arrvfeeling we didn’t ask for it .

yiu May have told me where in uk are you ?

i only had 2 chemos which were enough ,butbjust keep remembering lightbat the end if the tunnel

shout out if yiuneed anything or just want to rant

hazel

Thanks Hazel im from Manchester and being treated at Christies so Im in safe hands.

Dave

dare I ask United or The others. ! We are united although from Yorkshire I am allowed as mum n dad were from Hyde and Denton .

judt watching  game now. Yes in good hands at Christie’s 

keep in touch 

hazel

Hazel Im red born and bred. :)

Had trouble swallowing today so I contacted Christies.. to cut a long story Im on Oramorph and some drops for Thrush.

Dave

hi Dave 

wontbxomment kn resukt

oramorph is ok I was on it for 3 months just weaned my self off ut this last 3 weeks but omg if u need it it certainky help save ok u may need naps but sleep is good . Keep up with the thrush drops as well as they take a few days to start working and finish the course 

glad I got sorted 

hazel

Thanks Hazel always good to get the heads up what to expect, I know we are on different tailored treatments but good to hear all the same.

Shocking result today but not surprised.

Dave

Hi Hazel,

ah well just to share with you my friend that for the first time today,  I have managed a little food.

2 fresh thin frankfurters and little heinz sauce to help go down. First of something hot and solid that I have tolerated for some considerable time now and hope the baby steps of some progression

So chuffed as not great but I did manage as little worried about weight loss so these are quite fattening so should help.

So i now have a menu that i can tolerate of think frankfurters and mini curl wurlys for dessert.

Who and hoooo....a la cart or what!

Hope you are still doing well and enjoying your pies !

kind regards

ian

Hi Hazel,

ah well just to share with you my friend that for the first time today,  I have managed a little food.

2 fresh thin frankfurters and little heinz sauce to help go down. First of something hot and solid that I have tolerated for some considerable time now and hope the baby steps of some progression

So chuffed as not great but I did manage as little worried about weight loss so these are quite fattening so should help.

So i now have a menu that i can tolerate of think frankfurters and mini curl wurlys for dessert.

Who and hoooo....a la cart or what!

Hope you are still doing well and enjoying your pies !

kind regards

ian

Hi Ian

bravo what a great start. But one thing is missing a starter !,,, no Michelin award sorry. 

I kniw the feeling of elation ,when I had the inside of a m n s pork pie you would have though I had won the lottery. !

had some good news one of the girls who I got to know early in the process had her scan mri yesterday n consultant later who although couldn’t give her a full clearance until due process has been done was very confident the cancer had gone. She like us had been unable to eat for weeks and during treatment was sick up to 8 times a day so anither good great prognosis. 

Keep up the eatng ok it’s repetitive but any food is better than constant shakes .what are u like with eggs ? Poached are easy to slip down on a bed of *** white toast spread with lashings of lurpack I find toast easier than bread on its own.  Dont get down if one day frankfurter s seem off it can happen just find a replacement then try them a few days later  strange but the processed meats are much easier ok nit first choice normal but at thus stage take anythjng  

corned beef hash n Yorkshire puddings are another good one  

have u tried plain vanilla ice cream ? J couldn’t eat ut for a while then all of a sudden I can it opens up the possibility of buns n cakes just put on top let it melt makes it easier to slip down.

i am ok steak pie chips only a few n beans tonight  followed by a chocolate eclair  notbtried one recently

like u my weight dropped but has remained stable now for last few weeks not increasing but not lost any more  off oramorph totally n started reducing co codomol 30 mg to 8 mg doing it slowly replacing one tablet every 3 days

kerp in touch

hazel