How much ?

So hear I am again ....up all night, unable to sleep thinking how the hell did I get to this point?

I'm usually very strong but these nights are becoming regular and it's these nights that lead me away from any normality. 

A year and a half I was diagnosed with brain cancer grade 4 ...translation. ..limited life..! Of course I can't do things by half  gotta go straight to the big one.

Since this I've had a drain put in, have had a brain cyst and various complications. 

Now I'm not asking for pity I'm just questioning it...how did I get here?

There's worse off than me, I know , I've always been open minded about things...

I guess we all loose our way with things like this and I always see myself as "waiting on death row".

Perhaps I'll get out of this better or worse, I really don't know.

All I do know is that this night was a real long *** night 

 

Parents
  • I don't have anything "profound" to say and I can't answer why you got here. I ask myself that question a hundred times a day. But just sharing how you feel on this forum reaches people, it helps them in their dark times. It's so comforting to read/hear someone put into words exactly how you're feeling. Nothing makes you feel more understood and less alone and I might be a complete stranger but I'm in the trenches with you and thinking of you.

  • Hiya, thanks for your reply

    And yes.....it helps...knowing that I'm not isolated from the real world, although I do feel like it.

    Talking to someone who is going through it and knows exactly what you're on about is worth alot.

    My family are great but don't help with all the tea and sympathy,  it's not what I want, and by doing so , they make me angry with them.

    They have stopped treating me like family and now im a wilting tragic little flower ...not impressed. Now it's caused me to pretend all is well and I'm doing 'great' just so they can stop this, and most of the time I do think, Screw cancer, we gotta go when we gotta go.

    But it's other stuff that's starting to niggle me.

    I can't drive, and I loved to drive, my car had to go

    My friends have all grown bored, can't blame them, who wants to look at this bloated face everyday.

    My family only want to see the happy me, I'm constantly at the drs , hospital or bloody pharmacy and that's if and only if I can get...but hey, I'm determined to fight it out and come back the better of it.

    I'm desperate to go back to work , part time of course but for sanity reasons.

    So as for in the *** trenches, shall we lift ourselves out, dust ourselves down and try again? And if I slip back in I'll keep on doing it.

    What's your story ? Want to share.

    Thank you for your words. it helped

     

Reply
  • Hiya, thanks for your reply

    And yes.....it helps...knowing that I'm not isolated from the real world, although I do feel like it.

    Talking to someone who is going through it and knows exactly what you're on about is worth alot.

    My family are great but don't help with all the tea and sympathy,  it's not what I want, and by doing so , they make me angry with them.

    They have stopped treating me like family and now im a wilting tragic little flower ...not impressed. Now it's caused me to pretend all is well and I'm doing 'great' just so they can stop this, and most of the time I do think, Screw cancer, we gotta go when we gotta go.

    But it's other stuff that's starting to niggle me.

    I can't drive, and I loved to drive, my car had to go

    My friends have all grown bored, can't blame them, who wants to look at this bloated face everyday.

    My family only want to see the happy me, I'm constantly at the drs , hospital or bloody pharmacy and that's if and only if I can get...but hey, I'm determined to fight it out and come back the better of it.

    I'm desperate to go back to work , part time of course but for sanity reasons.

    So as for in the *** trenches, shall we lift ourselves out, dust ourselves down and try again? And if I slip back in I'll keep on doing it.

    What's your story ? Want to share.

    Thank you for your words. it helped

     

Children