Living with Stage 4 Breast Cancer.

Hi there. I am wondering if there's anyone out there who, like me, is living with Stage 4 breast cancer?

It would be good to be in contact with other people who are living with this disease.

In July 2011 I was diagnosed with Invasive Ductal Carcinoma which was already widespread throughout both lungs and liver.

I would be interested to talk to anyone else who finds themselves in a similar position and who, despite the difficult prognosis, is determined to keep as fit as possible, access all medical treatment and eat well.

Looking forward to hearing from you,

Mary

  • Hi Billy,

    I'm glad you're able to keep in good close touch with your oncologist. In this Covid environment I need to hear reassurances that I won't be forgotten, so it's good to know that you're still accessing good treatment. Thank you.

    I do hope you get on top of the lightheadedness very soon. It must be horrible for you :(

    Yes I celebrated after the latest scans, but I find I am always a bit numb. I prepare myself for bad news every time so it takes me a week or two to adjust again.

    Love and best wishes,

    Mary

    Xxx

  • Hi mary

    I quite understand what it's like I'm same especially with my cancer count rising lately, even though its going down still got scans yet to check other places.. 

    Like we all say keep positive and keep fighting. 

    Best wishes and lots of love Billy xxxxxxx 

  • Hi all,

    I said I'd come back after my first scan and here I am.... my professor was bouncing around as I have responded very well to the chemo and immuno six more chemos then maintenance immunotherapy if all continues as it is. She said it's barely feel able as she said with how mine is the scan would she spread but she prefers a feel to know what happening. I have a low thyroid but that means the immunotherapy is working as it dose in lung patients.

    tentatively happy and praying it continues to do so for many years!!!

    Thank the lord and all the modern advances!!!

    lucy xx 

  • Oh that's such wonderful news Lucy!

    Yay! Xxx

    So pleased.

    You've made my day!

    Xxx

    Mare

  • Thank you Mare,

     

    I'm very pleased  

     

    As with us all it's a tentative happy but it would be nice to not have to worry for a while

     

    xxx

  • Hi Mate,

     

    I read your post from 2 years ago and thought I'd drop you a line. I've also read your website and find you so inspiring.

     

    I have stage 4 inflammatory breast cancer that has spread to both lungs and liver. I've decided I'm too young to die ( I'm 51) My grandbabies are still in the future so I have to stick around for them. Plus my husband and son's will be lost without me.

     

    9 years is amazing but I still selfishly want more so I'm concentrating on diet, supplements and fitness. I'm incredibly positive and so determined not to die. I start chemo next week. It's been a long time coming and I'm desperate to begin my fight. 

     

    Let's hope we have many more years ahead of us.

    Barb xx

     

  • Hello Barb!

    Yes, that is something I always said (it is like being at a birthday party when everyone else is being offered a big slice of cake (40 years maybe) and I'm being offered a few crumbs), and it's not selfish.

    Like you, I want it all! And I continue to do my best to help my treatment along with diet and exercise.

    But I have put on an extraordinary amount of weight again through lockdown and with a hip problem - it needs urgent attention! :o

    Good luck with your chemo next week. I think your attitude towards it is an excellent one (that the chemo will be working for you). I found it too easy to slip into sad mode and feel like a victim of side effects. It became easier for me when I pictured the chemo destroying the tumours like a battle. Then it became a positive experience and my feelings about it became constructive and healthy again.

    Thank you so much for reading my posts. I incredibly grateful to still be here and, after never allowing myself to even hope to reach 50, or have any grand children, I am 54 next month and my sixth grandchild is due in November too! So, if I can give a bit back I'm really pleased.

    Glad you're raring to begin!

    You're always welcome to pm me, and I do often check on here. I will always reply if I see a message or post on here.

    Lots of huge hugs (socially distanced of course!) and best wishes,

    Mary

    Xxxxxxx

  • Hi Mary. 

    Finally starting to get sorted i hope been struggling to do anything without being short of breath head felt like it was full of cotton wool couldn't remember anything, bren had to keep reminding me about doing things, been keeping check on BP since going on those new meds still low so Dr and told me to increase to one more tablet daily luckily my mind was working just then had reminded them that my prescription wanted changed or I'll run out very quickly, Dr was supposed to be coming out to see me instead got a phone call and told to come to dr for a blood test, talk about being messed around,. 

    Any way hopefully I'll be sorted next few weeks., oh got another bone scan 6th Nov that's 5 this year hopefully I'll still have a radioactive glow at Xmas so bren can hang a few trimmings on me.

    Hope things are going well with your household, haven't seen you on lately then noticed you'd replied to some earlier. 

    Please let us know how things are going always wonder. 

    Love Billy xxx

    P.s was definitely struggling to keep going but back to normal routine positive and fighting again 

  • Hi Billy,

    I am glad you are back to your more positive and fighting self again - life is definitely interesting isn't it.

    Good luck with the bone scan, I shall have fingers crossed you get good news. Please let us know how you go.

    Life here is trundling along nicely at the moment. My middle son has moved back in to save money. He is a jazz pianist so the house is full of music again. I love it!

    My daughter is due to have her second baby in November so I'm quite excited for that. I haven't hugged her since February; gosh how I hate Covid!

    I have put on weight over Covid lockdown, and was cheating dreadfully at the diet, but am sorting myself out again slowly. Bearing a lot of weight is not supposed to be good for cancer is it, and I'm bearing tonnes!

    You always make me laugh with your posts on here, and this last one was no different, but I do hope the radiation dies down quicker than Christmas!

    Good to stay in touch,

    I'm always about,

    Love and socially distanced hugs,

    Mary

    Xxx

  • Hi Lesley, 

     

    I was diagnosed July 2020 with breast cancer in December while at my chemo session something showed up on my bloods so I was referred for bone scan and bone marrow biopsy. Bone scan was clear but bone marrow showed microscopic cancer cell. 
     

    started on ribocollib but had to come off after 3 week as slight raise in heart rate so now starting  palbocollib next week. It is very scary time