Living with Stage 4 Breast Cancer.

Hi there. I am wondering if there's anyone out there who, like me, is living with Stage 4 breast cancer?

It would be good to be in contact with other people who are living with this disease.

In July 2011 I was diagnosed with Invasive Ductal Carcinoma which was already widespread throughout both lungs and liver.

I would be interested to talk to anyone else who finds themselves in a similar position and who, despite the difficult prognosis, is determined to keep as fit as possible, access all medical treatment and eat well.

Looking forward to hearing from you,

Mary

  • If you look at the tab above this that says messages in the blue bar next to your name, there's a speech bubble to click on for messages. I've sent you some! :)

    Dealing with sick dog today poor love. She's got a bug I think.

  • Thanks Mare I've sent you a message. Sorry about your dog, I'm sure your giving her lots of love and hugs. 

  • Hi mare sorry for not being on for ages had a few problems, not me though my darling wife has been diagnosed with Alzheimers and parkinsons she's also had some mini strokes so I'm now her full time carer. Glad you're still on forum. [@marj58]‍ is still on the go as well and still writing very long letters. Best wishes for the future..... Billy 

  • Hello again Billy! Good to hear from you! I'm sorry things have been tough, it must be very rough handling your wife's care as well as coping with everything. I feel helpless to help.

    But it's good to know you're still about too.

    I am sending you all best wishes, and I shall be thinking of you both.

    Mary

  • Hi All

    I am 38 and have been diagnosed with stage 4 breast cancer at the start of March '20 (just before all the COVID -19 lockdowns lol!) I had no prior prognoses so you can imagine my shock when I was told that I have breast cancer that has metastasized to my bone marrow. The impact; my bone marrow is strughling to produce platelets and heamoglobin. I am now on my 3rd treatment cycle of estrogen suppression (letrozol and zoladex) and Ribocilib (oral chemo)
    My CA-153 tracker keeps fluctuating between 3000 and 4900, my doctor wants to process to the next treatment plan (chemotherapy) but I'm not ready and believe it's too early to jump the gun. Apart from dealing with the progonoses and early menopause (unfortunately I won't be able to have children) I feel fine, this is what confuses me, except for when my blood levels drops and I need a transfusion, I feel good....which is what gives me hope. I am healthy and use to do plenty of excersise. I would love to chat with someone that understands what I am going through....do all cancer patients feel okay and should I hold off on moving to the next treatment plan this early on?

  • Hi Chantylace,I am 42 I was diagnosed in May 2019 with breast cancer recurrence in lungs liver and kidney.Since August I am on weekly chemo.I dont have any tumors in my kidney and liver anymore and lung nodules and breast lump keep shrinking.

    I am feeling really great,doing exercise at home 5km walking and my lungs are ok.Before treatment I couldnt even walk or eat withou spitting and coughing mucus.

    I am even returning to work in June.I am happy to chat with you anytime.I dont have kids either.we were trying before the diagnosis.

  • Hi Lesleypie

    I was diagnosed with stage 4 at the start of March 2020, located in my bone marrow. I was also never treated with primary, only secondary. My treatment is letrozol, monthly zoladex injection and ribosicblic (oral chemo). I noticed you are on only letrozol, was this the case from the start or have you had to take other medications. I am also keen to talk to you about your treatment, which seems to be working really well for you, and see if you had any advise or insights into what may lie ahead? 

  • Hi Mary,

    just wanted to say what an amazing person I think you are!! Been through so much and still positive. Makes me feel bad given the cancer I have had was a stage 2 lobular and I didn’t need chemo. So an absolute lightweight in comparison. 

    I do hope you are staying safe in these extraordinsry times. 

    This forum is a truly inspirational space. Posts like yours give us all a lot of guidance and strength. It IS about holding on. Appreciating all the positives in life (even in lock down!) 

    Stay well and stay safe. 

    Kebbs x 

  • Hi again Mary 

    So sorry for not being on again been chaos with bren she was like a zombie had a job getting food and drink down her thought the end was coming when a good friend told me to stop one of brens meds because it was for schizophrenia which bren hasn't had or got now, within hours she was talking eating certain things herself just completely different more like my darling wife come back to me.

    But it's unbelievable you have to take someone off meds to get them better she probably won't be able to walk without help but she's more like she was 6 or even 9 months ago.

    I've had a bit of good news as well some of my cancer is actually receding, nobody knows why. 

    Anyway I'm talking to much. Hope everyone is well as can be and has a good day. 

    Love to all..... Billy xxx