Living with Stage 4 Breast Cancer.

Hi there. I am wondering if there's anyone out there who, like me, is living with Stage 4 breast cancer?

It would be good to be in contact with other people who are living with this disease.

In July 2011 I was diagnosed with Invasive Ductal Carcinoma which was already widespread throughout both lungs and liver.

I would be interested to talk to anyone else who finds themselves in a similar position and who, despite the difficult prognosis, is determined to keep as fit as possible, access all medical treatment and eat well.

Looking forward to hearing from you,

Mary

  • Hi Mary sorry for taking so long bone scan showed new white areas oncologist thought it was new bone growth, not cancer  .

    My BP has dropped below 90 nobody knows what to do I've two lots of tablets what should increase BP but nothing working,so got to take things easy er I fall over not fit to drive job consontrating, but good side cancer count is going down.so have to plod on,I think bren's stronger than me now, she's certainly getting better always tell she gets bossy.

    Oncologist and endocrinologist are trying to figure out what is actually wrong ,

    A good point we've done got wet Room with shower, toilet and sink so Room for wheelchair easily,then move bren to wooden drop down seat she can hold herself up on grabrails to be washed down below . really enjoyed that rather than strip wash for three years.

    Hope you're keeping positive and fighting,bren had covid jab last week mine Saturday.

    Hav you had yours.

    Love Billy xxxx

  • Billy,

    So good to hear from you!

    Just keep on keeping on! You're an inspiration to us all. And the way you and Bren manage is really an example to all of us.

    I'm so glad you're still ok, and so happy to hear Bren is grumpy and improving.

    To tell the truth I'm a bit hacked off that nobody has called me for a vaccine yet. My partner, relatively healthy apart from a bit if angina, at 57, has his next week in Tuesday.

    I'm 54. I've not been called,  with terminal cancer throughout both lungs and liver. I am pretty scared of getting the Covid because my lungs "look like a tb patient's" 

    Grumpy me :( doesn't express how hacked off I am. Especially as I've been helping with the grandkids so that leaves me even more vulnerable

    Best, very best wishes, to you both,

    Mare

    Xxxxxxxx

  • Please don't follow weird and wonderful promises of "cures". There really is no such thing.

    With stage 4 cancer it is extremely tempting to follow promises of "cure" isn't it. And there are many people who would take advantage our yearning to be better again.

    It was good to see that the post above this was removed rapidly.

    Thank you admins. It's good to know you're doing your best to keep us safe :)

    Mare x

     

  • i agree  mare.  That is not  even  funny.  Idiot.  I  have   had  immflamatory  her2 bc for 15 mnths. 30 chemo masectomy radio but now in brain. 3 tumors.  Have had 3 hrs  of cyberknife radiotherapy. Due to start chemo tabs 19 th  and  scan 27th. I am hoping for surgery.  I  hope ur  keepin well. Big hug.x x

  • ps mare i  hope u get jab soon.  Had mine wednesday. X x

  • Hi Phelgm,

    Thank you, I  am so glad you've had your jab. I'm sure I'll get mine soon.

    Good luck with the scans, chemo and surgery, I'll keep my fingers tightly crossed that everything goes well for you.

    Huge hugs from here too

    Xxxxx

    Mare

    Xxxxx

  • Thx matey.  Wel they  rang me  yest to give me jab again ha ha all or nothing. Chase them up. Feels beta havin it.  Wel i am realy dizzy today so netflix day for me lol. X x x

  • take good care of yourself! There needs to be a "like" button on here doesn't there.

    Yes, like busses, nothing for ages.... then the jabs all come at once... lol

    Xxxxx hope you feel better soon

  • I am feeling great. Doesnt  make sense. Just ate whole box of chocs  lol.  Steroids make me so hungry lol. X x

  • Hi Mary, just had My first covid vaccine.

    If something comes on you don't like just report buy pressing" report this post" at bottom of that  page then our moderators Will remove it.

    Hope weather is getting better were you are still snow here just not warm enough to melt yet.

    Hope you're taking care

    Billy