Hi Billy,

Oh that's good news then. I'm glad things have improved a bit for you. I shall cross everything that things continue in an upward direction for you both.

All is well here. I'm enjoying this sunshine and looking forward to summer. 

Speak to you soon,

Take care,

Mary

Xxx

Hi Denise

Thank you for reaching out. I am so happy to hear that you are making such good progress on your treatment and that you are able to revert back to physical excersice.....that is one of the things I miss the most at this stage of my treatment, the struggle to workout how I use to but I have stareted Tai Chi which is good for movement and flexinility :-) 

I spoke with my doctor, it turns out chemotherapy wont be the right option for my case at this stage due to my low levels of platelets and HB from the cancer being in my bonemarrow. We will proceed with the current treatment for 2 more cycles to see if the tumour tracker decreases and my bone marrow starts to produce platelets and HB.

I am told I have a very unique case so I except that the outcome will be unique and this will be managed and/or beaten. 

Best,

Chantylace

Hi Chantylace,

i have added you as a friend as wanted to talk to you.

i was diagnosed with stage 4 bc in march 2020. Mine is on my ribs and spine, although all of my mets are tiny (the size of a grain of rice.) 

i too have been told i am unique in the style of treatment they are giving me. And i my oncologist told me he was intent on curing me. I have had four rounds of chemotherapy and my tumour in my breast has nearly disappeared, i still have another two rounds to go. I do wonder if i can be cured as all forums and online things i have read have said secondary breast cancer is incurable. 
 

would like to chat more if you want :)

Rhianne

Hello Mary

Recently diagnosed. Very sad and worried. 

Ceyenne

Hi Rejy22  

I was diagnosed with Stage 4 breast cancer de novo (no previous history of breast cancer) in December 2019 with metastases to the lungs and bones. The metastases were also quite small but in several places. My cancer is HER2 +/ER+/PrG+ - My treatment is chemo (paclitaxol 18 weeks) and Traztuzemab (sometimes referred to as HErceptim) and Pertuzemab every 21 days indef. After chemo to take letrozole orally. I am postmenopausal. 

I finished my chemo a few weeks ago and continue with the Traztuzemab and Pertuzemab by infusion every 21 days. I haven't started on the letrozole yet.  I had PET/CT after my final treatment which showed a virtual complete metabolic remission, so no cancer active. I understand a complete response is not unusual with Trazuzemab and Pertuzemab , although a small percentage don't respond to treatment at all, but this is a very small percentage. My oncologist told me they can't cure me but aim for good quality of life and for long term survival. 

I have read papers about stage 4 breast cancer patients with only bone mets (so similar to your situation) where patients have survived many many years with no recurrence and is considered a 'virtual' cure but only where there are a tiny number of bone mets, I think 2 or 3 (which sounds like your situation), and obviously it depends on no more spread to any other far sites.  But I'm not a medical person it's just what I have read. I am obviously not in your situation as I had quite a few bone mets plus the the lung mets. It sounds like you have had an excellent response do take the positive from this. I took alot of inspiration from Mare's story... My oncologist has also told me that he has a few patients still alive many many years after diagnosis of metastatic breast cancer, which I try to focus on along with changing my diet, excercise etc...

lots of love and all the best

xxx

Hi Mary. 

Chaos again, Sunday before last got told my cancer is coming back, so more scans and blood tests. Was lucky today got a phone call a cancelled appointment so i can go tomorrow for my bone scan, still don't like the idea of being injected with radiation. 

Hope you're still OK and positive. 

Love.. Billy xxx 

Hi Mary. 

Scan went OK, i think, nurse who injected me sent for another nurse who came in with a gigercounter and started checking me over, when i asked what that was for was told she wasn't sure she'd injected me properly so just making sure. My first thought was if it's wrong it's a bit late now.. 

Anyway i survived, no waiting rooms open so had to wait in car for three hours then scan and home. 

Next day felt terrible court a bug or something it's finally gone. But brens got UTi so phoned Dr yesterday pick up antibiotics today she's going about every 20 minutes so no sleep for two nights hopefully it'll clear soon.

Hope you're still as well as can be. 

Got CT Scan beginning next month then blood tests and hopefully find out what happens next. 

As everyone says waiting is the worst thing. 

Love Billy xxx 

Hi Alex. 

Welcome to the forum the club nobody wants to join, 

I can't say much being male or I'll probably get into trouble being sexist or just plain sexy (well i think so anyway).

Anyway welcome. 

Hopefully others will join you soon. If you want to check other places on the forum. If you go to the start of this post you'll see a blue line, if you open search and put in what you want to talk about a list should pop up for you to check through. 

Welcome to the family. 

Billy 

Hi Sarah, 

It was good to read the positivity in your post. 
 

This is my first post on a forum so hope I'm doing it right as a reply. 
I have been diagnosed with Stage 4 breast cancer de novo yesterday after finding a large lump in my breast 6 weeks ago. 
The hip pain I was told was bursitis is unfortunately mets. 
I also have a tumour on the spine which seems to be primary concern and I am waiting to hear today if need urgent radiotherapy or surgery. 
A lot of my appointment yesterday is a blur, but the oncologist said I will be treated with Hormone Therapy not chemo. 
I will be having Zoladex, Lestrazole, Denosumab and Ribociclib ( once spine met dealt with) I just don't understand why some patients still have chemo ( which was planned neoadjuvantly ) and some don't. Was this discussed with you at your appointment? 
I am devestated and so tearful, how do you ever begin to deal with this diagnosis? 
 

love and best wishes 

Viv xx