Hopefully you'll get more out of your next visit Nata and your husband will be able to support you to.
It is so lovely to hear everyone's stories on here again - can't believe it's been over two years since we all started talking on here. Sending you all hugs x
Nata I can only reiterate what all the girls are saying we all have been where you are and totally understand how you are feeling - please believe that there will be better days ahead for you. Sending you all hugs x
I'm so sorry you are going through this. I, too, would LOVE to meet these ladies in person and have a group hug, but I live in Texas. This was the only support group I could find at the time.
Like you, I was so scared of the chemo and the radiation, but I just put one foot in front of the other and made it through. I think I was in shock. I only allowed myself to cry for a couple of minutes because crying made me feel worse. Mine was quite large (3b, T4), in the sphincter, the vaginal wall and 2 lymph nodes. Although I've had health issues since treatment like Lyndy, I am currently NED (no evidence of disease) at 28 months out from treatment. My docs did not tell me to go to radiation with a full bladder. A full bladder pushes the bowel out of the line of radiation. They also failed to refer me to pelvic floor physical therapy after treatment which is not fun, but helps get everything down there working properly. So I wanted to make sure that you know about these things to reduce the damage.
Mandy, yours was bigger than mine! Mercy me! Mine was 5.9. I actual drew a scale a couple of days ago out of curiosity. I think your positive attitude really made a huge difference in your recovery.
Lyndy, I'm so sorry you have had so many health issues and also sorry to hear about your mom. My long term memory has been bad for years but the chemo affected my short term memory. I write myself lots of notes. : 0 )
Nata, everything will be ok. The treatment is harsh, but it's highly successful. You will dance at your daughters weddings.
I was worried for you knowing how many problems you had to go through so delighted you joined us to share with us your successful journey! It is 6.00 am, I can't sleep, and must say that the moment you wake up is a cruel one because you are back to reality and it is no night mare unfortunately.
I spend a whole day reading your girls post and wrote down all your advice: ordered a potty, cotton boxers, polymem pads, bath salt ets. Yesterday I even bought protein milk shakes as I am not eating and loosing wait quickly what is not advisable. I remember you mentioned before that your doctor never told you to drink a few cups of water prior to radiotherapy so I wrote it down as well.
I know that staying positive helps but I can't keep myself calm at all. I am looking at my beautiful daughter who is just 17 and I want to scream: Oh God why?? What for you punishing me so severely?! I have always been healthy, looking after myself and family, love helping others, going to church often. So what have I done wrong???
l am so not in a right mood now because it looks like it spreads into liver and I need PET to confirm it. Oh I can't even enjoy my last months, crying so much and it's probably make my case worse. I love life so much like we all do and I don't want to shorten it prematurely. I always wanted to be a granny but this seems not for me....
Have a lovely day girls, you have fought for that!
You doc can prescribe something to make you less anxious. Many of us feel like the diagnosis caused PTSD. It's traumatic diagnosis for you and your entire family. Once you get going on treatment you will be amazed as to how far your medical team can take you. They pulled me out of a couple of scary situations. I wasn't fearful at the time because my team really stayed on top of things and yours will, too. Sending you peace, endurance and a big hug.
I know it is difficult to deal with someone who is in a panic state like myself, so thank you for encouraging words. They mean a lot to me!
I hope I will have a good night sleep tonight due to sleepy tablets my GP prescribed today. I really need this so my brain can relax a bit. I guess this is my body's a fight or flee reaction. Also don't understand why I am sadenly are so bloated. It has been for a few days and it is very uncomfortable. Don't want to read any Google stuff, it make the things much worse.
Thanks again for geting back to me, I am so happy to read your guys comments. Everyone of you have been walking your own path towards the light at the end of a tunnel. As long as you know the right direction and as you Sheri mention,there will be some people there to help find a right way to do it.
i noteced that you have not been on this forum for a while. As I am a new member here I am desperate to know all your girls experiences: bad, good, any. Please if you want to talk to me let me know,I will be waiting for your reply. Thank you.
Sorry I've not been on for ages... How are you all? I kind of decided to put cancer to the back of my mind and get on with life, however today I've been for a check up. I had an examination and the doctor says there has been a change, there's always been a tiny bit of scar tissue at the original site but she said it's changed, feels different and is a tiny bit bigger... so she's sending me for a CT and MRI scan and I'm back to see her on the 17th April.... anyone had a recurrence? It may just be the scarring but obviously I'm stressing now that it's back! Lisa x
i was waiting for your reply. I really hope that your scans will show that there is nothing that you should be worried about, because of what you have already gone through and how much you fought for the future.. Reading your posts I noticed how positive you were, it amassed me and I will pray tonight for your further recovery. Also I am sure the girls will respond as well.
I'm so sorry that you are dealing with this. It's great that they are staying on top of it, but how grueling to have to wait so long to hear the results! Thankfully, I don't believe anyone from this group has had a recurrence or metastasis. The fear is always in the back of my mind, but I probably wouldn't know what to do with myself if I didn't have SOMETHING to worry about. I will be keeping you in my thoughts and in my heart.
Good to hear from you. Its so hard not to worry especially when you have this length of wait..but I’ve not come across anyone with a reoccurance. I had visable signs of scarring which made it difficult to see clearly on the scans after treatment but an examination put my mind at rest. They even wondered about doing a biopsy but I had two examinations by two different drs who decided it probably wasn’t necessary but to kept any eye on it. My next big ct after the year is coming up at the end of this month and it doesn’t matter at what stage it is ..it will always bring dark thoughts in your head. As you say it may not be anything but you must look at it that they are doing more checks and checking this out even if it’s scarring tissue....I will keep my fingers crossed for you and do try and keep positive thoughts..we are all routing for you! Love and hugs Mandy x
