Anal squamous cell cancer

Is there anyone on here who has had anal squamous cell cancer x

  • Hello Girls

    such a long time I’ve been on here, but I got a message in my email telling me there was activity. 

    To those of you that have already gone through the treatment I hope you are all still in remission and well.  I’ve been on an adventure last January I had half my thyroid removed and last September I had my ovaries removed, both organs had lumps on them, albeit benign the hospital thought best to get rid.  On top on this I started to have problems with my gallbladder, after same severe attacks which meant I ended up in hospital I go in on the 7 April to have the offending organ removed.  The consultant said I had a habit of getting rid of organs that I no longer used!

    i’ve also Had severe depression, mainly through having cancer and not being able to cope with it. I m now getting some counselling and things are looking better, plus the pills help.  My Mum bless her had to go in a home last December as I could no longer cope with the dementia, but she is now settled and I feel less strained.

     

    To the new diagnosed people, it’s a blight on your life, but you can get through it, luckily for us it’s very treatable. I am now 2 years on and doing fine. I have.a new normal and have to be weary of what I eat but apart from that I’ve come through and the treatment in now firmly in my past. Take each day as it comes and be kind to yourself. Rest when you need and let others help you.

    Take care all

    Lynne xx

  • Oh Nata!   Please don't cry!.....once you go into the hospital and get your full results and a programme of treatment you can start looking forward. Everyone reacts differently... The worse for me was the early days coming to terms with it. So I know what you are thinking.....its the worse thoughts possible... Now I keep as positive as I can and as time goes by it does believe we get easier althoguh its always at the back of your mind.   You will get through this... like everyone on this site we have had those same thoughts and worries....There really is light at the end of the tunnel.  We are all testiment to this...deep breath!  I am thinking of you and wishing you well.. Mandyx   

  • Hi Natasha,

    I was the same, every cough I had I thought the worst, and nothing anybody would stay to be made a difference. Lack of sleep was a norm for me. I didn't go to the GP for anything as I felt I had enough drugs going around me. You need to find what relaxes you, for some, it's relaxing music, walks, is there a maggies centre near you?. I didn't personal go but others found it useful.  I used my family and friends x 

    Keep away from dr Google, best advise I had, stick to the sites that the drs recommend and don't be afraid to ask the drs questions x 

  • Good to hear from some of the girls on here....after  2 year journey.... Lovely to hear from you LyndyLou... You seem to have been in the wars.  Sounds as though you are out the other end now and I wish you well.  My mum like yours has dementia and its a strain. She is still managing at home but I can see the time soon when this won't be possible... I am pleased you are feeling less strained and can chill a little with the help of your councelling...wishing you all the best and sending lots of love. Mandy x

  • Hi SunnyShine,

    It is simply amazing that you have passed the worst and going back to normal life!!! The simple life is the best life, why don't we appreciate it when we have no problems?

    Thank you girls for making this forum alive although this time I have to be added to..

    Since I have been diagnosed with this horrible decease i can't recognise myself at all. From a jolly, always smiling lady I turned into a grumpy and very depressed person. I am at one moment is laying down at the bottom of my existence and the next moment I am getting angry that nothing is being done to spreed up the things: I still have to wait for a few weeks for PET and only then I will be able to see an oncologist . I think I can feel every minute passing by. I am so scared that it is too late..Also I am in physical pain as the tumour pushing down and bleed everyday although I didn't before the biopsy. To be honest I want the treatment to start as soon as possible so  I can be in more physical pain but not mental!!!
     

    Nata

  • Nata,  I wish I was there to give you a massive hug, the wait is awful, the only thing I can say is the emotions you are going through are normal, I too had the pain, the anger and what did do wrong to deserve this. I hated not having any control over what was happening to me and my heart broke everytime I thought of my girls (3yrs and 9yrs) and still does when I think about what they went through x But I promise you will find the strength and resilience to deal with it.

    xx

  • Hi Sunnyshine,

    Can I tell you that you picke up such a nice and warm username.

    I am embarrassed to admit that now I get jealous of seeing people sitting in cafe eating, laughing and having good time! I can't remember the feeling of being hungry, I have to forse myself to eat. 
    Just been to Maggie centre, a half an hour of crying and letting out my thoughts on a nurse shoulder. Do I feel better? No, I won't till my treatment starts.

  • Hiya, 

    I am also one of the original crowd from 2 years ago. I had surgery first and the diagnosed cancer, so I also had chemo and 5 weeks of radiotherapy, I would not have got through it in one piece if it hadn't have been for the ladies on here, I worried myself sick about everything, even on how the radiotherapy was going to be given!

    It's 2 years this month since I started treatment, and I got through it, I'm due back at the hospital in July after a year of being given the all clear. 

    You will be OK, it's hard going thru the treatment, but you will find everyone so supportive, and any worries you have then talk to someone, there is an army of people there to help you. Want to have a moan then come on here and moan to us, someone will always respond, we know what it's like. And I found the waiting for things to happen unsettling too, but it will all start soon. 

    Good luck and keep us informed on how you are doing.

    Sue xx

  • Hi Suzym,

    Last weekend I spent reading your posts guys and every name pops in I recognise from the  chats. I can't tell you how much of hope it is giving just to read it. What I want right now is to bring all of you girls in one circle and start cuddling and hugging... and crying, you can't go without it.

  • Hi Sandra,

    Just came home from Maggie centre. Well, as soon as I entered I was greated nicely and offered to mangle with the people sitting there. I choose to sit in the furest Corner so nobody could see me crying. Yeap, as soon as I went in I could not stop crying. Had a short conversation with a nurse, it didn't help but I intend to come back again might be with my husband tomorrow.

    Also I need to see GP for sleeping tablets.I am so glad that many girls responded to my message proving that it is a long battle with some sacrifices but it possible to win ether a whole battle or a fraction of it. Preferably the whole...