Anal squamous cell cancer

Is there anyone on here who has had anal squamous cell cancer x

  • Hi Lisa, I can't believe they don't give out more to help. It gets very painful, you won't manage without more help. I found the gel an instant relief, even with the itching. I still use it occasionally and the Diprobase but my bits are getting better now. All the broken skin has healed, with me now it's just the going to the toilet pain. My wee doesn't burn now but I have to be careful how I sit as I can feel the inside my lady bits and anus are a bit tender. As I said I have 2 tubes of Diprobase I can send you, although I think I went thru about 5 tubes altogether. Send me your address if you want them. Did they give you a potty? That was a godsend, I use that for going to the toilet then clean water with salt to sit in for about 10 mins each time, I'm convinced that helped my broken skin too. Sue xx
  • Hi Sue, you’re very kind to offer! I think I need to book an appointment with the GP on Tuesday morning and ask for something more, they may not even need to see me, but be willing to prescribe anyway. 

    Did you use the Diprobase on broken sore skin? I thought  that would be a similar product to the aquamax- told not to use that on broken skin!?

    I have my own bidet that is the best thing I’ve ever bought!

  • Hi Lisa, Yes I used Diprobase all the time, even thru treatment. And the morphine gel morning and night, but with the gel it had to be prepared especially so they needed 3 days notice . If u change your mind let me know and I'll send you the Diprobase. Sue x
  • Hi Girls

    i have radiation cystitis, very painful to pee!

    did any of you hav this and if so can you offer any advice. I’m drinking lots of water which eases it although having to spend more time going to the loo. Is there anything else I can do?

    Lynne xx

  • Hiya Lynne,

    Yes I got it too. The best thing I found for it was peelng into warm water on my potty and painkillers. There' not a lot you can do, the good news is it doesn't last too long, well it didn' for me. The worst thing I've experienced is the pooing thing. It's only now that I feel things are settling down a bit and I'm 2 weeks post treatment now.

    Sue xx

  • Hi all, Yes peeing pain and pooing pain.....we all have had it! One good this is it does go and quite quickly when I look back. I found the most relief for me was cold water pouring over my front end using a jug when I had a wee - the cold water took away the pain of going and pooing in warm water eased the other end..... It only lasted a week or so although at the time was horrible. I was lucky enough not to use any pain killers or gel like everyone has mentioned - although a nurse told me after treatment to go to waitrose and buy baby bottom butter and it was lovely - smelt divine also!. My Dr didn't like us to use anything so I had to grin and bear it! I'm pleased to say I have no pain front or back now and I have my first Dr appointment tomorrow after treatment - i.e. 6 week later appointment. Sue mentioned warm water peeing - if it doesn't work for you try the cold as it definitely took the pain away for me....good luck and don't forget it doesn't last long. love to all. Mandy x
  • Hi Lynne,

    I used A&D ointment to coat that area.  It is clear and doesn't have an odor. It's similar to vaseline.  It keeps the urine from burning the skin; however, it does not heal the area.   I would not put it on until after treatment that day.

    Yeah Lisa!  

    Sheri xx

  • Hello Ladies,

    Did anyone have tummy issues after treatment was completed?  I had bad diarrhea during treatment but I didn't have stomach cramps with it.  For the past few months I have been doubled over with stomach pains.  The gastro doc thought it was my gallbladder which is low functioning and referred me to a surgeon.  The surgeon does not believe that the gallbladder is causing the severe stomach pains.  So we are still trying to figure it out.  I do not have any food allergies.  

    Sheri xx

  • Hi Lynne, I have it too at the moment! Dread going to the toilet! (Sore to both pee and poo!) 

    All I do, is drink plenty, keep dosed up on pain killers and pour cool water as I wee, helps a little but still bloody sore! 

  • Hi Sheri, I’m sorry to hear you are having stomach pains. I haven’t had any but still suffer with the need to go to toilet urgently. I don’t however get any pain ...I hope they do more tests and it gets sorted for you. Wishing you well..love Mandy xx