Had bad diarrhoea for 4 days, skin has broken at bum, just inside my lady bits and up both sides of my groin, thrush in my mouth(again).
Tired and fed up, getting some tablets for the thrush later today, was given polymen dressing last night for my skin, told to take one Imodium for the diarrhoea, and told to alternate paras and ibuprofen for the pain.
Used the dressings last night, fiddly as you have to cut a piece and fold it and put it in between your bum cheeks then cut some for your groin that stays in place with your knickers. Not ideal but does seem to have given some relief.
The Imodium seems to have worked.... touch wood!
just need to get through the next few days
Radio number 26 today, so will be bell ringing in Thursday afternoon, Yay
hope everyone is doing ok.
Lynne.
I’ve lasted well before my skin breaking, I know everyone is different but moisturise as often as possible, never too much. Do it right up between your bum cheeks and your groin. Use a bidet early on and ditch toilet paper early on.
Get some men’s stretchy boxer shorts so you don’t have any knickers lines on your groin to irritate it.
Take piriton daily for any itching.
These are probably my key pointers to get through this treatment, hope you’re doing good well.
Sue, I hope recovery is going well for you?
Hugs to all the other lovely ladies on here, hope all is well.
Hiya Lisa,
Ohhh I know how you feel. Where are you now in your treatment? You sound as tho your feeling exactly the way I felt. I am one week post treatment now. Agony doesn't describe the pain, I know they warned me but it felt like it would never end. Walking less like a penguin now, I spent most of the last week in bed. The skin in my groin is healing, I have one patch by my lady bits that is bleeding quite a lot and around my bum where the cancer was, but it's manageable. Used my potty a lot, and the morphine gel with Diprobase and painkillers.
So remember about a week after treatment finishes it starts getting easier.
Thinking of you Lisa,
Sue xx
its sound a complete nightmare. I’ve completed day 11 appear to be over the effects of the chemo, although still a bit of diarrhoea it was really bad last week, even had an accident last Tuesday at the hospital I was mortified! But the radiographers were really kind and tried to put me at ease.
My bottom is just starting to get sore, was given morphine gel today to help. I have ordered some men’s cotton boxers waiting for them to arrive. I have been moisturing every day but I haven’t used my Potty yet, although been bathing.
You are nearly there Lisa, I hope that it will be better for you soon.
Sorry to hear that you are having a rough time of it. You are in the most painful week. Thursday is just around the corner so hang in there. I wanted to tell you and Lynne that I had a really hard time with diarrhea (8 days uncontrollable). I finally got a nurse that suggested that I completely stop all food until the diarrhea stopped and to slowly introduce bland food. I only allowed myself about 1/3rd of a banana when taking pain meds. It took a couple of days and I was really hungry, but it was worth it. So that's an option should you get it again. The problem I find with Immodium is that it makes me constipated even just taking two and then it's really painful and becomes a vicious circle.
Yay, I finished my treatment on Thursday and I rang the bell! Follow up appointment in one month and he’ll book my liver scans then.
Very sore down below and I’m just not fussed on the Polymem dressings as they make the area hot which I find even more irritating, so using nothing apart from pain relief. Clatterbridge and the trust they are in don’t allow the use of creams or gels, only aquamax and the Polymem dressings!
Can anyone recommend any over the counter products?
Hiya Lisa,
I wouldn't know what to advise on over the counter stuff, I only used what the hospital gave me.
What is aquamax? You'd think the hospitals would use the same stuff wouldn't you?
I've got 2 tubes of unopened Diprobase I could send you, if you think that would help. I've got quite a bit of the morphine gel too left over but I don't think that would survive the journey as it has to be kept in the fridge! But other than pain relief that's all I used.
What about asking your own gp for some potions and lotions?
Hope you get on ok, it does get very painful over the next week or so.
Sue xx
